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Thank you all for your replies. I figured the roll-coaster was part of it all..the pre treatment anxiety…it is reassuring to know that I am not the only one. I do have a sense of humour and am able to have a laugh at myself. Once the anxiety passes. Humour can really help me get through anything. And I am noticing that the uncertainty doesn’t last very long.
I am encouraged by all your experiences and am heartened by your openness to share and help each other.
Yesterday I met with my specialist and nurse at the liver clinic. My specialist confirmed that he & nurse will be monitoring me through the treatment and I feel totally supported by them. I had my first base line bloods done and I feel reassured and confident and ready to take on the next few months. I should be on treatment this time next week. Sooo…just waiting.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Hi Rowan I too am awaiting arrival of drugs..will join you on the journey.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Thanks Archie will have a look.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Thats Great News Vicki!!! I am happy for you..
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Hello
thought I would make a post…just to keep me in practice..this is all new to me posting on forums and its a little strange, however, I don’t want to feel isolated and need to have contact with other people with HCV who are going through treatment. I had contact with FixHepC buyers club yesterday and my drugs are in the process of testing and I should receive them by Monday next week.Thats great news…although I have gone from a sense of empowerment to feeling apprehensive and I am fearful of the side effects of the drugs although there is a slim chance that I may not have any. I am 55 kilos and have a very ‘clean diet’ and am not sure how my body will process the drugs. I see this all, the roller coaster, as part of the process, of pre-treatment…. the relief, sense of empowerment, positivity, fear, uncertainty, not wanting to feel sick, anymore, wanting to clear the virus, having energy and a cure. On and On it goes.
These are the things that are going through my mind as I am waiting. I have no doubt that I have made the best decision for myself to purchase the drugs and wouldn’t change it. I just want to express the mixed emotions of pre treatment.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Hello All
I have been reading the Patients posts and it is reassuring to realise that others have suffered from similar symptoms that I’ve had for a long long time. Such as dizziness, pressure on right side, like liver is about to explode, dry eyes, urinating often..on and on. I had never thought that it could be Hep C related and is comforting to know that I am not alone and I may be relieved of a lot of these symptoms once I start the ‘new drugs’. Thank you all
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Hi Joy
I was reading your first post and my story is similar. I was definite about not going on Interferon and got sick of waiting for New Drugs on PBS. I saw Greg Jefferies name mentioned on ABC and contacted him but was still waiting for ‘new drugs’. I feel very empowered now I have made this decision and you posts are encouraging as so far you have no side effects. I look forward to hearing about your journey..
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015Hello Vicki
Good to hear your story and that you persevered despite the discrimination. Also good to hear Geelong hospital have come on board and are supportive. Its a matter of education..even for the ‘Experts’. I am waiting for Sof/Dac to arrive, in approx 2-3 weeks. I have support through my medical team at RPA liver clinic Sydney. They are treating other people who have accessed their own drugs. I would have found it very hard to take the drugs without their support. My specialist didn’t provide me with a script, I saw my GP who wrote one for me, very willingly.
I wish you well.
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015 -
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