John Hilton - FixHepC - Page 5 of 14

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5 October 2015 at 10:08 am in reply to: Why would pharma eradicate Hep C? #1821
Johnboy
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- Guardian Angel
@johnboy
All too true.

There is an issue approaching fast for Pharma.

On the past it has mainly been controls. These days more and more it is cures. It is their number one problem.

Many new genetic therapies are on the Horizon. It’s got them really worried.

More and more people will be turning to sites like this and places like India etc.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 10:01 am in reply to: Twinvir #1819
Johnboy
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- Guardian Angel
@johnboy
There is another thread on this if you care to scroll down

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 9:55 am in reply to: Twinvir #1818
Johnboy
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- Guardian Angel
@johnboy
Hi Alan, may I direct you to the site where we are discussing this aspect more fully.

It is a FaceBook page “Hepatitis C treatment without borders”

The short answer is yes. Go for it. You can get a doctor there to give you a script but it may not be necessary.

I believe there is tests being done right now by people on this site and the FB page and results from Twinvir tests will be available any day.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 9:37 am in reply to: Has anybody here imported from Greg J. to USA? #1817
Johnboy
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- Guardian Angel
@johnboy
As JF states above….. The issue is getting the script

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 9:23 am in reply to: Has anybody here imported from Greg J. to USA? #1814
Johnboy
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- Guardian Angel
@johnboy
Yes

http://hepatitisctreatment.homestead.com/importing-sofosbuvir-into-the-UK.html

The US bit is further down the page

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 6:48 am in reply to: Ledipasvir or Daclatasvir #1812
Johnboy
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- Guardian Angel
@johnboy
Nadia… Where did you get this information ??

My information is that there is a meeting coming up by Indian Authorities. Nobody can know the outcome of this meeting before it happens. Therefore the situation is still very much up in the air.

The recommendation is that further trials be held in India. There is a slew of people who have written to the board considering the recommendations and they are asking for the trials to be waivered.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
5 October 2015 at 6:41 am in reply to: Hep C 3 treatment #1811
Johnboy
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- Guardian Angel
@johnboy
You can import three months at a time. This does not mean you have to wait three months to import your next lot.

No issue my friend. As Meso have closed their doors to individual supply I would imagine Fixhepc will be your provider. In that case I think you will find they have this issue under control

If you are using Indian sofosbuvir through Greg Jefferys then the same would apply.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
4 October 2015 at 1:26 pm in reply to: SOF/Dac could it work it eight weeks? #1782
Johnboy
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- Guardian Angel
@johnboy
Generically it is cheaper by a fair margin.

I would not be considering price unless I had to. Saying that however, it seems to be just as good as the big H. Just that the there is not sufficient data from a large trial base.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
4 October 2015 at 12:52 pm in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1777
Johnboy
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- Guardian Angel
@johnboy
Feeling better today. Even patches of quite good! Two weeks in.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
3 October 2015 at 6:15 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1704
Johnboy
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- Guardian Angel
@johnboy
I’m still quite sore all over but my cough has somewhat disappeared. It seems most symptoms come and then go. It’s still a bit of a battle but I know it will be worthwhile.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
2 October 2015 at 4:19 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1677
Johnboy
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- Guardian Angel
@johnboy
I am having no issue with smell taste or appetite. I’ve had to eat very slowly though as i feel sick. I had four days of difficult flu like symptoms which abated for a day but now I am very worn out and sore. I am coughing more than I ever have but assume that’s the meds telling me that my lungs are not what they should be. I am a smoker but have not been able to smoke for a week or so. Good news I suppose. This morning I felt terrible again after thinking yesterday I was getting over it. Interferon and RIBA did not affect me like this. I sailed through most of that. Quite strange how everyone is so different. Anyway I got up and at ’em this morning in an effort to feel better. It worked to some degree.

This stuff is no walk in the park. If I thought I might feel like this I would have prepared myself better. I have things planned for the coming month and seriously doubt if I can follow through. I hope things get better soon.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
1 October 2015 at 8:08 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1630
Johnboy
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- Guardian Angel
@johnboy
Great news.
So it seems these sides will fade. Let’s hope so.
I will be keeping people informed of course.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
1 October 2015 at 7:27 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1628
Johnboy
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- Guardian Angel
@johnboy
Feeling a lot better today.

A little sore everywhere but much better than the previous four days.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
30 September 2015 at 11:32 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1579
Johnboy
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- Guardian Angel
@johnboy
Thanks for that. I suffered fatigue and giddiness but my numbers were pretty good, F1 good bloods.

Incredibly, Dr JF rang me while he on a short interstate holiday. What an amazing man. He did this of his own volition.

He has explained a few things to me and I’m confident this will pass. We are organising a few tests to be sure.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
30 September 2015 at 6:57 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1572
Johnboy
- Topics: 16
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- Total: 91
- Guardian Angel
@johnboy
Forgot to mention that I am only fifty three kilo. This may be why I’m feeling it.

A little sick in the stomach today…….My lower gut is getting quite painful ATM.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
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