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  • in reply to: I am struggling to negotiate the site #16008
    jstigwood
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    @jstigwood

    Yes my consultant did go and he was also very impressed with fixhepc. I don’t think he can officially saction by-passing the NHS but is more than happy for me to use the generic versions from India.

    Even though NICE have approved the new Gilead high priced regimens in the UK, NHS England does not the budget to treat everyone, so it is being rationed on the basis of either those who shout the loudest – or those with higher fibroscans. Despite my LFTs and fibroscan being normal i suffer the most debilitating fatigue. I also keep suppressing my VL to very low levels – I yoyo from millions to (at my last count (10,000). there was one 12 month period in which I yoyoed between totally undetectable and a few thousand VL like clockwork every three months!

    My Doctor friend in oz is nervous about writing the script – is there anything he should know?

    in reply to: I am struggling to negotiate the site #15976
    jstigwood
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    @jstigwood

    Thank you – I eventually found the redemption trial application link so my next question was how do I get the script!?! Do I have to pay for an on line consultation to get one or can my GP here write out a private script from the UK?

    Alternatively can my friend who is a doctor in Australia simply write me a private script?

    My hepatologist here in London has agreed to monitor bloods because bloody NHS England can’t get it together to offer everyone their legal right to treatment!

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