Forum Replies Created

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • in reply to: 2B HERE #12365
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    Hi, I’m so glad to see you are doing well. I had labs before starting treatment, then viral load and LFT’s in 4 weeks. He did another viral load a week later because it had decreased but was not UND; it went to <15 (UND) the second time.

    I'm supposed to have labs again after end of treatment (2 weeks from now, I miscalculated), and again in 12 weeks.

    I wish I had known about this site before I started. It was considered unusual for insurance to approve as much as 16 weeks, I would have done more meds if I'd had the chance. I can even put up with the Ribavirin.

    The lab values are under my signature, if I did it right.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    in reply to: NEED GUIDANCE #12339
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    The thing is, I’m now down to 2 more weeks of treatment. Then I have the post treatment labs, then 12 week labs. Would starting daclatasavir change the test results? I don’t think I could bear to think I was at SVR and then have it come back.

    I talked to my doctor’s office about what to do if treatment fails (I’m at stage 4 so I don’t think my chances are that good). She said they would wait for a new pan genotypic med to be approved later in the year. I don’t knòw if it is an entirely new medication of a combination of the other ones. (for all I know, it’s sovosbuvir with daclatasavir).

    If not – I was wondering about doing another course of treatment and using generics (while we can still import them into the US, before greedy Gilead shuts us down completely). I would need to find out from Dr Freeman about doing it, for example, how long to wait between treatments, and whether to use all three drugs: sovosbuvir, daclatasavir and ribavirin.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    in reply to: 2B HERE #12338
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    2b, that’s brilliant. Congratulations. It seems so far away to me.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    in reply to: 2B HERE #12318
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    I wondered about that, now that I’m more aware of treatment options. When I started, I was offered only the regimen I’m on. It may be too late now, I have only 3 more weeks of treatment. I wish I had known then what I know now.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    in reply to: 2B HERE #12299
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    Hi, I just joined this board today. I’m another 2b, and am Fibrosure Stage 4. I’m in the US and am treating with 16 weeks of sovosbuvir and Ribavirin x16 weeks (16 because of fibro score). We are pretty uncommon here, too. I tell people that I have the posh European genotype because I got it when I lived in Great Britain.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

    in reply to: NEED GUIDANCE #12258
    LLJ
    • Topics: 0
    • Replies: 6
    • Total: 6
    • Novice
    @llj

    Hi.
    I’m in the US, too. I’m one of the lucky people here whose insurance approved meds but who knows what will happen next – if I need more treatment, they might not. I also heard from my doctor that my insurance copays are going way up to 29% of medication cost.

    Are there still options so we can import drug from abroad? I heard that there s a problem with India – Gilead is trying to shut dwn export of Twinvir. Is that true?
    Thanks.


    LLJ

    Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
    0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
    4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

Viewing 6 posts - 1 through 6 (of 6 total)