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  • 12 February 2017 at 6:05 pm in reply to: EOT diet Advice ?? #25279
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Happi,thanks for your advice on the supplements. I’ll give them a try!

    Thanks

    14 January 2017 at 3:56 pm in reply to: Exercise during treatment #25038
    London_R
    • Topics: 3
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    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Gaj,

    I am just over the 8 week mark in my treatment – Harvoni and ribavarin – and I echo your words.

    I used to train almost every day and I am 15kgs heavier since my original diagnosis 10 years ago. Up until 2-3 years I was still pretty fit but then just kept hitting a wall with energy.

    I was undetectable at the two mark and since then I have been lifting heavy weights, doing spinning classes, Pilates and feeling like my old self.

    My advice to anyone would be push yourself as I was so surprised with what I could do again. With that we should also recognise we need to rest so our body can continue healing itself!

    Best
    R

    4 December 2016 at 2:44 pm in reply to: New to Harvoni & Ribavarin week 2 bloods #24592
    London_R
    • Topics: 3
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    • Total: 12
    • Acolyte
    • ★★
    @london_r

    @Coral – really sorry to hear that. After failing previous treatment I know it’s tough. But you seem positive & determined so best of luck with your journey back to health #love

    3 December 2016 at 1:43 pm in reply to: New to Harvoni & Ribavarin week 2 bloods #24585
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Thanks @Coral for your kind words. I’m really postive everything works out. So far, so good and it’s so much easier to tolerate than interferon.

    I just read your bio – did you fail the new treatment & are currently on another course?

    9 October 2016 at 5:23 pm in reply to: Fatigue – my first post #23674
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Jeff, Gaj and Ariel,

    It’s really good to hear your journeys – both good and bad.

    Its reassuring to hear that when treatment works life / energy can return to normal.

    I’ll keep you all updated on my journey which starts this Thursday with a visit to my Dr!

    Peace, love and light to all ❤️❤️❤️

    8 October 2016 at 11:56 pm in reply to: Fatigue – my first post #23639
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Donna,

    Thanks for your kind words ☺️☺️

    I was diagnosed 10 years ago and there wasn’t a choice so I did what I thought was best.

    I like your attitude as I’m willing to buy meds and do it without my Drs support. However, I think they will help, and as you say they have a duty of care.

    Looking forward to telling my story and a happy outcome

    8 October 2016 at 2:28 pm in reply to: Fatigue – my first post #23636
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Beaches, I don’t have to pay as it’s the NHS. I am literally going to ask them for treatment. If they say no – as expected – I will ask if they’ll monitor me as I will buy the medicine through here. If not I will look at other options to get monitored. And as yet I haven’t got any formal medical advice from here yet so watch this space!

    LG, St Marty’s have usually been great but my consultant just retired so I am not sure what the new Drs stance is. But I reckon they will be supportive.

    Thank you

    8 October 2016 at 1:49 pm in reply to: Fatigue – my first post #23633
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Lynne, Donna, London Girl, Beaches, RHF,

    Having posted for the first time last night I am touched by your responses this morning. Thank you all for taking the time to share your experiences.

    To be honest the 72 treatment I did years ago was a living nightmare for me and from what you are all saying I’m now excited.

    I haven’t seen my liver Dr for 18 months due to appts being rescheduled but like you it’s gone from we have wonder drugs to your not eligible.

    My regular Dr has also just retired so I’ll be seeing a new Dr and have no idea on their stance – St Mary’s in London if anyone has any experience?

    Thanks again all and congrats on achieving SVR – it’s my dream to come true.

    Big hug #love

    8 October 2016 at 4:06 am in reply to: Fatigue – my first post #23620
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    @Sven, thank you for your response and kind words. I’m excited to know there is an end in sight, it feels like a long journey!

    I just read your stats and congratulations on clearing HCV – such a relief.

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Viewing 9 posts - 1 through 9 (of 9 total)