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Viewing 15 posts - 271 through 285 (of 1,348 total)
1 2 3 … 18 19 20 … 88 89 90
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  • 4 July 2016 at 10:22 pm in reply to: First SVR is in. #20466
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    :+1:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 July 2016 at 4:36 pm in reply to: Why I choose to help #20448
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Geoff, Are you in the UK? I can offer first hand experience and advise from here if you are. LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 July 2016 at 1:03 pm in reply to: 6 month end date today but continuing for another 3 #20441
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey AA,

    Also having some trippy dreams, along with nightmares involving large scary animals .

    Hopefully these are expelling the bogey-men of our mind ;-)

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 July 2016 at 12:55 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #20440
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Just got VL test back from 24 weeks, still UND – Thank God :cheer:

    So that’s 8-10 weeks of UND, 7 more days to EOT, then the anxious wait. Feeling a bit tired, having some nightmares at night and a little grumpy, but otherwise much more like my old self :) Hospital appointment Friday, I think they see me as ‘interesting’ . Will get full blood work result then.

    Thanks again to those you helped me to get NHS support, if you’re reading, you know who you are.

    #love 2 all

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 July 2016 at 4:24 pm in reply to: HCC #20396
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Archer, Sorry to read you now have this to deal with too.

    Maybe you could contact LiverMultiScan folk, (non-invasive and no contrast dye needed).

    They were running a trial and I know they were coming towards the end of it, but they may be able to advise how you could get one.

    http://perspectum-diagnostics.com

    http://perspectum-diagnostics.com/livermultiscan-study-now-recruiting/

    I hope all the help you need is forthcoming soon.

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 July 2016 at 2:11 pm in reply to: Hi everyone ! #20384
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    íhi Fhcn, I took hepcivir-l for 12 weeks. If it’s via MonkMed / FixHepC Redemption it will be fine and many are now UND on that medicine, some SVR 4 and maybe (as I sometimes find it hard to keep up) SVR 12. I may have a photo somewhere, will see if I can dig it out for you.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 July 2016 at 1:25 pm in reply to: 6 month end date today but continuing for another 3 #20377
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks RD,

    It is further complicated when a patient has cancer or another condition and you have 2 departments with their budgets and consultants that are only concerned with their own field of medicine and health authority bureacracy. Waiting lists for appointments dreadful and chaotic admin with serious errors while livers worsen and cancer grows.

    I should also say that I have also been extremely heartened to have encountered a few great NHS medics who are actively trying to help patients among some of the big pharma educated ones, it helps to keep the faith to know there are a few who are still in it for the right reasons, ie Patient Care.They are out there, but doing it quietly so as not to rock the boat and cause further obstacles for patients.

    Back to the negative, I have, during my journey, had to encounter one of the worst, arrogant, lying hepatologist who I looked up to discover his training was funded by big pharma.

    It has been a very interesting journey, to say the least ! I have learned much and I have experienced both good and bad, the bad has left me reeling with indignation, frustration and anger, the good has given me hope for other patients and direct help personally and those guys are awesome.

    ps Sorry AA to rant on your post. Hope all is well with you.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 July 2016 at 12:53 pm in reply to: Hi everyone ! #20374
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    My friend was on an Abbvie treatment, he did have some spikes in Alt, but I think put it down to a herb he had ingested. He also had to take Riba, so your treatment should be easier, of course so long as no known interactions and medical advise.

    ps Check your PMs have messaged you.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 July 2016 at 12:35 pm in reply to: Hi everyone ! #20372
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi FHCN

    I know of someone who was in the same situation as you and are now clear of the HepC. but they’re not on this forum. Will PM you.

    All the best for you treatment.

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    2 July 2016 at 6:39 pm in reply to: FixHepC – Party Playlist #20325
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    for all the lovely girls on this site ;) #flower #love #flower

    “Girl put your records on” ….

    https://www.youtube.com/watch?v=oWQl00LWEwE

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    2 July 2016 at 12:29 pm in reply to: 6 month end date today but continuing for another 3 #20318
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Each case is different and we all have to make decisions for our own health and evaluate the advice we get from our Medical professionals. In my case this year had I listened to them I wouldn’t be here as I was told NOT to take the generic course but I know it has saved my life.

    Dear Woobia,

    I have a friend who is in a similar position, I am trying to help, and I will try to get them to listen regarding this. I am hoping your post may help.. Thank-you so much and I wish you continuing health improvement.

    LG

    ps I believe NHS England could be guilty of manslaughter. in some cases Strong accusation I know, but that’s how I feel.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    2 July 2016 at 12:12 pm in reply to: Thanks to the moderators and others managing this site #20317
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    me too – Thanks Gaj

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    2 July 2016 at 12:10 pm in reply to: TREATMENT RESISTANT TREATMENT #20316
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Michael,

    How is your friend doing?

    I was UND between 2-4 weeks on the Sofo/Dac. Dr Freeman recommended I add Sunprevir for 4 weeks towards EOT. I’m waiting on VL result taken at 24 weeks. Feeling rather ‘drugged’ but very manageable. I do hope your friend listens to the advise from Dr F on this site and hope all is well with her.

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    1 July 2016 at 12:18 pm in reply to: Should I start treatment #20240
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi JF,

    I was also on Harvoni generic. At first I had hints of a very mild headache which as others have said, went immediately on drinking water (filtered). My immediate side effects were that I felt much better! consultant said this was due to reduction of imflammation .

    4 weeks in I got a cold which turned into a chest infection, it was winter in the uk at the time, but was told this was quite common on this treatment, but if you needed antibiotics you would need advise on which to take before swallowing. Spain of course will be very warm, but if on a boat (you don’t say large or small boat) I would take care not to sit around damp clothes on a windy day!

    I can remember the uncertainty & nerves re starting treatment, if I had to do it again, I personally would go to Spain on holiday. I take it you have your EU health card? (use it while you still can!).

    Having said all that, there is a small risk , some people have had high blood pressure on starting tx for example. We are all different.

    Don’t know if you know, The Spanish healthcare system is very good, but also, private Drs are affordable. There are private Hepatologists in the Malaga area, I looked into that when I was looking for monitoring, I remember also a Dr in Mallorca being mentioned, I think Greg Jeffereys has those details. So you could have a plan in place if needed. Also, cheap flights to return home if you felt concerned.

    My feeling is, fresh air, warm sun & relaxing would do you good, but definitely put some ‘what if’ measures into place to be prepared just in case.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    1 July 2016 at 2:42 am in reply to: undetectable at 9 weeks sof/dac gen 3a F3 inf/rib relapsr #20207
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Bob, I hope you get some advise. How many weeks have you done? I can’t add up at this time of night ;-)

    LG

    (edit) Just re-read in the morning, I see you are one month short of 6 months tx. I am in week 25 of treatment as I am a slow responder and have added a 3rd DAA for the last 4 weeks (Sunprevir) , but I am GT 1a. I would try to speak to Dr Freeman asap or email care@monkmed.com and get a phone appointment with another excellent Dr, Debasis. You will need to allow time for any new meds to be sent if you are advised to do so and if I remember correctly, this is tricky to Ireland?

    May I also suggest natural yougurt? It helps with heatburn etc Your symptoms could be stress, we have to deal with so much of it! but no harm in getting checked out?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

  • Author
    Posts
Viewing 15 posts - 271 through 285 (of 1,348 total)
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