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Viewing 15 posts - 301 through 315 (of 1,348 total)
1 2 3 … 20 21 22 … 88 89 90
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  • 16 June 2016 at 1:45 pm in reply to: AHF Campaign to shame GILEAD #19218
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    at the end of the day, it’s all about trust.

    I remember well the anxiety levels before I was on treatment too…and some patches during !

    Deep breath.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    16 June 2016 at 1:03 pm in reply to: AHF Campaign to shame GILEAD #19213
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    ?

    I am banging my head against a rock currently too!

    You can lead a horse … etc etc

    #love

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    16 June 2016 at 12:17 pm in reply to: AHF Campaign to shame GILEAD #19209
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    not even reading the maths, taking your word for it :)

    (ps joke about my lack of maths/algebra capabilities, nothing else)

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    15 June 2016 at 12:27 pm in reply to: So we made it into The Times-UK #19112
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Ah thx Gaj, I must have read an iffy article.
    Either way, as you say, the Portuguese Gvt have done a deal to treat all and have therefore reduced drug prices – The WILL to treat people is there; Here, the will is not.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    15 June 2016 at 11:26 am in reply to: So we made it into The Times-UK #19106
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    From what I understand Dr Ryder, who is extremely pro-active at highlighting the plight of English HepC patients, says that if NHS England had agreed to treat 5,000 more patients, Gilead would have reduced the price even more. Quite rightly he doesn’t understand why they haven’t done this. I wonder why. (Note, no ?).

    Portugal eg agreed to treat ALL and have done so, in fairness to Gilead, they got the drugs at a highly reduced price and apparently 96% Portuguese HepC patients are now cured.

    NHS England is now full of highly paid managerial suits with privatisation and business interests at heart, not patients (some corruption cases recently brought to light) , if we leave Europe I reckon we can wave goodbye to free healthcare. Some great NHS staff who are treated badly under this government know it, one told me ‘The NHS are bastards’. eg they just got a ‘payrise’ of 1% a friend told me with the current rise in National Insurance (originally set up to pay for free NHS treatment ha ha) his wage packet was actually less than before his pay rise. Meanwhile our Gvt (most who have shares & interested in private medical companies & big pharma and something like 90% who were born millionaires) recently awarded themselves a 14% payrise while trying to cut junior Dr pay causing the first NHS strike in decades.

    NHS Scotland however are on a mighty path to eliminate HepC and are way ahead.

    The HepC Trust are raising funds for a judicial review to question the legailty.

    Sadly, It’s a corrupt mess and it would take a mighty force to untangle it.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    14 June 2016 at 9:58 pm in reply to: Fibrosis Cirrhosis kPa and F Score and Hepa Score #19058
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Jeff, The great thing about the new LiverMultiScan is it doesn’t need contrast dye at all, they have taken this into account.
    I know this is becoming more international, how long it will take to be a regular thing where they take it on I don’t know, but you can check it out here :
    http://perspectum-diagnostics.com/products/livermultiscan/
    Now FDA approved for the USA.

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    14 June 2016 at 12:21 pm in reply to: Geographic differences between GT 1a #19042
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Gaj,

    “Whether these different clades influence the response to other DAA-inhibiting HCV at different steps of its life cycle deserves further investigations.” (P18)

    Yes !

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    13 June 2016 at 5:58 pm in reply to: Geographic differences between GT 1a #18995
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    How extremely interesting and at the same time unsurprising.
    So, GT1a has 2 clades and clade 1 is harder to treat and harks from non-European countries such as USA etc, do I have that right?

    and So the Q80K resistance is just towards Simeprevir? or all associated meds ?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    11 June 2016 at 11:16 am in reply to: Fibrosis Cirrhosis kPa and F Score and Hepa Score #18910
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    My AST/ALT score is F1 and my APRI score is F4?

    Hey Sabrecat, Mine too!

    Had the amazing new LiverMultiScan and I was overall F1 with small ‘spots’ of higher fibrosis in the center & left lobe area (F3/4?) , but not joining up, just small spots. However, instinct tells me small spots can cause some problems, they seem to be where there are other organs eg heart and a lot going on in that area, maybe easier for the virus to hide in? and harder for the meds to reach possibly? Again, just my instinct. I can see why exercise is helpful, looking at my LIF scan. One thing I really learned after this new scan, is fibrosis is not necessarily evenly spread.

    Added LIF image below as my blog is long and it’s hard to find; this is a mix of 4 scans :

    ps green is good, red is bad

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    10 June 2016 at 10:15 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #18846
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Debs, A long wait, but hey, we’ve done sooo much waiting already and your nurse sounds like a total gem :+1: and it will be good to talk to her in person.

    I totally hear you re little gifts, so much against us initially and then these kind helping hands along the sometimes rocky way to help us over the bumps in the road, it restores the faith. I have a few good souls to thank too.

    Still on the road here, but not for too much longer, hopefully .

    Big #love

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    9 June 2016 at 2:27 pm in reply to: FixHepC – Party Playlist #18754
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl
    Bhindi Bhagee :

    ” Welcome strangers, to the humble neighbourhoods”…

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    9 June 2016 at 1:52 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #18752
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    :+1:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    9 June 2016 at 1:48 pm in reply to: FixHepC – Party Playlist #18751
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    For all those who have their SVR12 :

    “Blackbird”

    Blackbird singing in the dead of night
    Take these broken wings and learn to fly
    All your life
    You were only waiting for this moment to arise

    Blackbird singing in the dead of night
    Take these sunken eyes and learn to see
    All your life
    You were only waiting for this moment to be free

    Blackbird fly
    Blackbird fly
    Into the light of the dark black night

    Blackbird fly
    Blackbird fly
    Into the light of the dark black night.

    Blackbird singing in the dead of night
    Take these broken wings and learn to fly
    All your life
    You were only waiting for this moment to arise
    You were only waiting for this moment to arise
    You were only waiting for this moment to arise.

    http://www.last.fm/music/The+Beatles/_/Blackbird

    Sorry, couldn’t get it on YouTube, click link.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    9 June 2016 at 11:59 am in reply to: EOT Viral Load result #18747
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Fantastic news Hazel ! So happy for you :cheer:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    8 June 2016 at 6:57 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #18690
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Debs, Was thinking about you today, will email later.

    I still have my lovely GP on board. I don’t want to say too much, but I briefly lost hospital support and was ‘cast to the wind’ but now I have support again, thankfully :+1:

    This is good news, as supportive as my GP is, I can’t get all the tests they give you at the hospital, so now I have those in place for EOT and post tx thanks to those that need thanks ;-) I am very relieved about this !

    Not that long left on tx now, you must be coming up for some more tests soon? Thinking of you #love #flower

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

  • Author
    Posts
Viewing 15 posts - 301 through 315 (of 1,348 total)
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