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Viewing 15 posts - 331 through 345 (of 1,348 total)
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  • in reply to: a script…for what? #17613
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Altruism is the answer to your question Enrico.

    The more concise version of what I was trying to say Paul :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17607
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I don’t want to keep going on as some of it might be confidential.

    :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17606
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Not hating on them but there a business. The first order of business is to make as much profits as possible.

    This is actually not true of MonkMed. From what I know , they currently hope to make back their costs. They are certainly not out to make as much profit as possible. MonkMed want to help people gain access to medicines.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: discomfort in liver after tx #17598
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    These medicines are for ridding the body of the virus, but I guess they don’t cure the damage and digestive issues caused by it overnight, so if there was liver damage previously, it will still be there, albeit with less inflammation ? Time has shown an improvement in many patients from what I have read. My liver has improved quite a bit on the medicines. (I am still on treatment, so we shall see after it ends).

    I also still get this discomfort on the lower right hand side as many have described above. I went for the amazing new LiverMultiScan and strangely, that area was the clearest part of my liver regarding fibrosis ! I have read the lower ribs cage can become inflamed, gallbladders can also cause problems. When you see your liver on the LiverMultiScan it makes your realise just how large and important the liver is – I was shocked at the size of mine, it is huge and goes right around to the left side too ! it makes sense to me now, that if the liver is unhappy, then nearly everything else will be.

    Who knows what it is, maybe something in the ‘piping’ ? ;-) It would be very interesting to know !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17597
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Enrico.

    MonkMed have been my ‘rocks’ throughout my treatment. Both Tim and Dr Debasis. They are awesome people working extremely hard for the good of us all, you may find it hard to believe but there it is (and no, I am not on commission).

    They offer a reliable, legally documented, tracked and supportive ‘service’ of supplying licensed medicines from well-known companies known by UK Drs as our NHS use their medicines (and therefore helping some of us in the UK to get monitoring) throwing in a big dose of kindness as a free gift. Their partnership with Dr Freeman whose truly amazing work has been well documented on this website makes absolute sense. We are all extremely grateful. These people are not just ‘sellers’.

    Dr Freeman / Fix HepC have done an amazing amount of work getting the Redemption Trials officially listed (will try to find link) and taking the results from Australia to Barcelona to tell the EASL meeting the positive results, as well as organising prescriptions, advising patients and being the promotional face of the whole kaboodle and needing staff to help him which I’m sure, will incorporate costs. These actions have benefited us all and the idea is to try to get the word out to benefit thousands more.

    The UK HepC Trust (as I think you may have mentioned) have even come on board now as saying this is a reliable supply chain.

    Although it is impossible to guarantee anything – and we certainly do not – our research has led us to believe that the best place to go is http://www.fixhepc.com. This site was established by an Australian doctor to help patients get the drugs before they were available there.

    . http://hepctrust.org.uk/buying-hepatitis-c-drugs-online-%E2%80%93-what-you-need-know

    There are unfortunately some unscrupulous sellers out there. This website do their best to vet all who post on here and try to weed out any dodgy ones. Why risk it when you have a reliable option? As you say, £1000 is alot of money to many and trust is involved.

    Yes, It is hard to believe in this day and age, but it is what it is and that is what it is !

    There may come a day where they cannot do this for us any more, If you want to rid yourself of this nasty virus, it is my personal opinion, along with others here on this forum that these are the very best people to help you.

    The other option is waiting for the NHS in the UK or just sourcing through a plain seller. Currently, the HepC Trust are trying to raise money to take the UK fund a judicial review of the NHS patient cap after they went back on their word regarding access to treatment for many patients. See here : http://www.hepctrust.org.uk/news/may-2016/hepatitis-c-trust-considering-seeking-judicial-review-nhs-england%E2%80%99s-decision-ration There are good people doing good work, but it does take $ and £ to take on these issues on a larger scale. I guess many of us here have seen it grow and support the whole ‘movement’ (for want of a better word).

    I can understand your fear, Hope this helps.

    ps I will also add, there are many very genuine and kind people on this forum who have supported each other and still go on to support new people after they have achieved SVR from the goodness of their hearts . This forum helps many who have not told friends and family or have told them but they find it hard to keep up with it all. It has certainly helped save my sanity !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17498
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    hey enrico, have sent you a pm (link above right)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17452
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    my doctor here in london, at my precise question, said he will monitor me if i get meds

    Hey that’s great news :+1: – Is that your hospital consultant or your GP? – Either way, a good start.
    You could drop by your hospital /GP and ask them to print-out your test results (it’s your right), I have found calling in is easier / quicker than asking them to post. I recommend Redemption via Fix HepC / MonkMed. As Gaj said

    You will also get access to expert medical support (in addition to your own monitoring doctor) from the Redemption trials partners MonkMed

    I was delighted to see the HepC Trust had finally got on board :)
    Wishing you the very best in getting treatment sorted out.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #17403
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you Paul, Yes, it is a bit of a :woohoo: – trying not to think about it too much, I can only do my ‘bestist’ …
    I’ve been thinking of you, hope you’re doing ok?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: a script…for what? #17371
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Simone,

    I am in the UK and I have to say, I have never heard of anyone getting a prescription from any GP or consultant here, although a few have agreed to monitoring bloods on treatment.

    My advise would be to research thoroughly how to go about things before asking any Dr here.

    I took the cheat sheet Gaj mentioned to my GP after rehearsing what I was going to say, this was to request support in the way of blood tests, happily he agreed to help, but only with a NHS consultant keeping an eye on me.

    Regarding prescription, I signed up for GP2U and got my initial prescription though them. My second prescription (I have extended treatment) was written by the MonkMed Dr.

    Happy reading and good luck.

    As Gaj says, some further info would be helpful to get some more help, you could put it in your profile. eg Gonotype etc.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: You can….. make a difference #17110
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Tweeting galore !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: My Twinvir SVR12 #17067
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Congratulations – I’m delighted to read this news :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you guys :) Just got to keep it that way now !

    Coral, I see you have run a similar path to me, with the GT1a slow response & Sofo/Dac extention – You’re looking good to me :+1: #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Emilio’s Place #17025
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Catching up on the news here, so very pleased to read yours ! Congratulations :cheer: :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #17022
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you all #flower #flower #flower #flower #flower #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So who are the reliable Indian suppliers? #16989
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    So who are the reliable Indian suppliers?

    Why … MonkMed of course – Partners of Fix HepC !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 331 through 345 (of 1,348 total)