We are all really the first global group after trials finished so I guess it’s going to be a while before any really concrete data is available on tx duration, EOT outcomes etc on a large scale

You ain’t kidding – There’s a little on treatment fails / re-treatment and options etc, I can’t find anything at all on slow responders like me apart from patient experience on US forums.

All news in from liver meets seems to be about new drugs and sell sell sell
I ‘hope’ there will be more and more papers from the likes of London’s professor Dusheiko and his kind, but I’m not holding my breath and anyway, I don’t have time to wait, need to extend now.

Thank heavens I did not go NHS – I have support from MonkMed, FixHepC and good HepC friends and the opportunity to extend.

Thanks for your support Ariel

Hi Ariel, “For whatever reason I am a slow responder”.
VL 32 at mid week 9.
Feeling alot better, but have to extend.
All other bloods good.
Got MonkMed Dr Debasis & Dr F on it.

Thanks for asking
LG

Hi Tina, Was just thinking of you

The MRI scanner is an amazing thing, but I didn’t have a normal MRI, this is part of a trial that will hopefully reduce the need for patients with liver disease to have invasive diagnostics, It’s tied up with a brilliant new system for getting precise fibrosis details, liver damage, iron and fat levels and also has a predictive element as to how the liver damage may procede. It could replace the need for many needing to have biopsies and is so far proving itself to be an exciting new option for patients with liver disease. There is also no need for contrast dye. The images produced are in full blown colour portraying the levels of fibrosis in the liver by different colours. Blue / green is mild Dark orange /red is bad and yellow sort of midway. I can’t wait to see my report in writing

It’s about time they did sonething for us liver patients and itt’s already in use in that top Oxford hospital for patient benefit. I guess the trials (which are continuing) raise the hope that this new diagnostic could be extended across the UK and indeed the world. I do hope so. It’s a much more visual thing for patients too, as with past fibrosis markers, we don”t get to see anything! So I guess, more reassuring that the test is correct. The Dr who invented it is a lovely man fighting our corner as he says liver diagnostics & treatment are 20 years behind other conditions and why he got involved. He’s quite young, clever and I could tell ‘thinks outside the box’ with passion, a bit like Fix HepC – A pioneer.

Yes it was reassuring, more so that I didn’t have cirrhosis! I was told by the Doc considering I have had HepC for so long, my liver was remarkably in good shape and he said no fat and iron levels pretty good too. Great, but I don’t want those nasty little virus attacking it any further and stopping them now is the deal, as for all of us.

Glad your nurse is keeping a good eye on you and everything crossed for the desired result! I was talking to an infectious diseases nurse yesterday at the hospital, he cleared the virus on the Abvie tx not so long ago, He never went UND on tx, EOT 15, then a few weeks post EOT up to 50! then all of a sudden wham – at 12 weeks EOT – UND! Quite an emotional ride for him. This HepC business is just that, such a roller-coaster!
Thinking of you

Ariel, love also to your daughter, nothing pulls the heart strings more!