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For heaven’s sake – all I want to know is to what sensitivity the test works. It’s not rocket science.
Yes, that’s what I meant by frustrating – I wonder who you had on the phone? Maybe it was someone a bit clueless? Can you call and ask to speak to someone else maybe? or even better, email ?
Really, here in England, nothing ever seems to work properly, drives me nuts.As you know , I looked up private VL tests, £245 – Then found a cheaper one, (a hundred and something) but the wait for result was 11 working days … There is just this frustrating feeling with everything, chasing them up, things unanswered etc – As you know I had an issue with Blue Horizon too last time I used them.
It would indeed be extremely helpful if we could find a reliable service and post it on here for all, that’s for sure. Seems so difficult!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCHow very frustrating
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCWell done Paulino – Great news
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCI heard that Gaj, Hmm is it scary? I veguely remember someone saying they took their music and headphones in there once ?
I also get a fibroscan, same day
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCGood luck with the MRI scan.
Thank-you Isang
Has anyone ever had one btw? it’s a funky new MultiLiverScan – No dye
I’ve been told to “bring my pjs” hmy:
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCHopefully F4 panic over anyway – The data was messed up. Scan next weekend, fingers crossed .
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCThank-you Zhuk
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCThank-you lovelies. I feel better for trying to work it all out, even if in public!
Well, I think I will talk further to the Drs, but right now looks like I’m extending tx for sure
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCThank- you guys , you know I feel I’m onto something here. It was you DT that reminded me that Sofo/Led needs good stomach acud to absorb and then there’s last weeks blood test with the MCH high which can mean lack of stomach acid and my rather large amount of coffee drinking in the morning with meds, I actually think it’s very possible I’m not absorping most of the tablet just like I don’t absorb food well either!
Yes, I need something that boosts stomach acid that doesn’t interfere with the meds. cut down on coffee a (boo hoo) and remember to take my VtB12 every day .
Then extend tx, with possible swap to sofo/DAC – Will see what thecDrs say, but some of these things I can put into action right away
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCHi Sirch,
Thanks for your input. I am now in week 8, so I have only just over 4 weeks to go, not over 6.
My feeling is that I have trouble with absorption, but what do I know? I don’t think I absorb food properly and I don’t think I’m absorbing the medicines right either, poss due to low stomach acid (shown as a possibilty in latest bloods). Well, that is todays theory anyway. Either way, it has been a worry and I’m just trying to hash it out.Aside from that, it is our good & knowledgeable Dr Freeman who has checked my pre tx bloods and thinks I could be F4 – It gave me quite a fright. He is looking for reasons for what he calls my ‘very slow and rare response’ according to his data which he has shown me He is also considering other options such as genetic resistance and problems with absorption. I am undecided re the F4 idea, but how can I know? but if you read through the posts, I am having an MRI nxt weekend which could maybe clarify and recent Ultrasound showed ‘ no cirrhosis as far as they could see’ but they could see scarring. So it’s not something I have dreamed up, rather we are trying to get to he bottom of it. I was 8.7 fibro in 2014. Next fibro was questionable and I didn’t trust it at all.
If I need to do an extra12 weeks, as highly recommended by Dr Freeman as my ‘minimum option’ then I have around 4 weeks to make a decision. So that is what I’m trying to do while I’m not at work and have time. This is all on advise of Drs . Sure, I was concerned that at 7 1/2 weeks VL was 68.
Re the Riba, this has also been suggested by Dr F and another hepatologist as a possibility along with Simeprevir, I hadn’t thought about it until concern was show and latest VL test, would probably like to continue longer on Sofo/ Led if I could, but thinking the lack of stomach acid may be a problem
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCWell done isaing Wishing you all the best from me too
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCwell, yes dt, I will do 24 weeks, but if cirrhosis is there it could be more thoughts on which meds,
Riba has been suggested eg
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCJust found out, that low VtB12 can cause low stomach acid!
and apparently Sofo/Led needs this.
Well folks, how to I get that stomach acid going?Hey Life How are you? I eat a pretty healthy diet I think, Fish, veggies, pasta, rice, fruit, porridge, wholegrain bread, errrmm cheese (lots) Hot cross buns ha ha Lentils, eggs, love dahl, curries , Everything except meat, but fish is meat right?
I drink alot of coffee on waking, maybe too much, it’s a cleaner after all?
“Inadequate stomach acid. A much more common cause of deficiency, especially in older people, is a lack of stomach acid, because stomach acid is required to liberate vitamin B12 from food. An estimated 10 to 30 percent of adults over the age of 50 have difficulty absorbing vitamin B12 from food. (1) People who regularly take medications that suppress stomach acid—such as proton-pump inhibitors, H2 blockers, or other antacids—may also have difficulty absorbing vitamin B12 from food. Even people who lack adequate stomach acid can typically absorb vitamin B12″ http://www.hsph.harvard.edu/nutritionsource/b-12-deficiency/
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCInterestingly, my last blood test showed a slight high out of range in Mean corpus. Haemoglobin (MCH)
On reading about it, it can cause malabsorption of nutrients etc due to low VitB12 . I am taking VitB12 supplements, so if I wasn’t, it may well be further out of range.It seems it’s all about a messed up digestive system, bile and stomach acid etc and is common in liver desease Hmmm Could it be that malabsorption of nutrients could also apply to malabsorption of medicines? or is that a crazy banana kind of notion.Think I’ve read about this before and that’s why I have taken VitB12 for a while now. I did alot of reading, but cannot always recall at a later date why, just that I did and came to that conclusion through much research!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCDT the malabsorption thing – I have been trying to address the issue of malabsorption for what seems like forever and a day, I had it with food pre tx – My triglycerides were totally out of range, very low, I read this points to malabsorption / malnutrition, I was way too thin.
Now on tx, I have gained some weight, but is it the right kind of fat? maybe i still have trouble absorbing anything I swallow properly? It is a complex subject, I do not profess to understand it. The abnormal test result showed up in a private blood test under the cholestorol section. It took me a while to find any data on it because most papers are written about too much bad fat concerns but when I did Bingo ! Seemed to make total sense to me as to why I could not hold any weight .
I have mentioned this to a variety of people but no-one seems to think it’s an issue or have any answers. But maybe, just maybe it is hard for me to absorb the meds properly as Dr James mentioned? If this is true, how do I go about absorbing them better? Diet? With food? or is it a completely different & much more complex matter? I wish I knew the answer.Re ravs, I guess I’m worried about lessening my options for the future now , it’s all new thinking for me as if yesterday and I’m not really ‘getting it’ yet and my mind seems to be foggy .I appreciate your experience and opinion.
I think I could maybe access Simeprevir but whether I can afford it is another matter.
I think this scan nxt weekend would help me decide, if there is cirrhosis or not, hopefully I will find out, meanwhile I can ask advise of Dr F and my other Drs and be prepared!
Thanks DTps How is your 2nd lot of tx doing? How are your bloods VL etc?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC -
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