Forum Replies Created
-
Fantastic news Wair
Looking really good for you
LG
So pleased to read this Donna, UND and Alt 11? That’s awesome
I feel for you, needing to get your son tested and my thoughts are with you.
LG
I also took mine on waking. Set alarm, woke up and swallowed
I thought that best for ‘getting in the habit’ and remembering same time each day.
Kept meds by bedside in a daily labelled pill box, so brain fog didn’t confuse me about whether I’d swallowed the meds or not.All the best, LG
So totally delighted for you RSF
, happiness & good health to you 
Dear Coral
– I am glad the sides you are having are not of the worst kind, but sorry you have to deal with them at the same time. I’m also very happy things are looking optimistic thus far You took a brave and clever step to ‘strike while the iron is hot’ – I am looking forward to hearing your good news and you know where I am if you ‘fancy a natter’ in the meantime Hey Tatty, Yes, you can definitely hope for an improvement on the 4 week test
You can post here and will get lots of good advise re your results. It’s helpful if you can put basic details such as genotype, VL, meds you are on and any previous treatment etc in your profile signature? This will help others to help you. Some truly good folk here, don’t know what I would have done without them!Response to treatment really varies regarding how people feel…I started off feeling amazing, and loads better, then I got a chest infection and felt, well, dreadful! Then after that I was just incredibly tired all the time. Well, I do think when the body is healing , you need good quality sleep. Also, gentle exercise too.
I hope you don’t have to wait too long for your results, keep us posted, I’m sure there will be an improvement
LG
ps and Thank-you for your congratulations
Dear Wair,
You have made a very good decision and so lovely to read about you feeling better both mentally and physically
You had a large VL to kill and when inflammation is reduced we realise what we have been living with for such a long time ! Delighted for you.
Be sure to test at around 8 weeks, just in case you need to extend a little (I did and am now clear of the virus, SVR 12), you may not need to, but it’s always good to have plan A, B and C, which is the great thing about this ‘alternative’ route, which in my opinion is superior.
I wish you the best of luck and good health from UK.
LG
Congratulations from me too Willeert
My best wishes for good health and happiness from across the sea
Hi RHF
very amazing that it is written “redemption trial”
Yes, I thought so too, when I think back to earlier struggles, things are moving slowly in the right direction.
More champagne? I don’t mind if I do – Cheers mate !
Thank-you Coral
As well as the obvious, I like the fact it says “Redemption Trial “ for treatment.
I do hope this will encourage others who have been put on the back burner via their health authorities to investigate this pathway and also encourage NHS liver clinics to see the evidence and monitor more patients taking this route.How are you doing on your treatment?
Hope all is wellLG
… and here it is again, in writing, on paper etc by todays post
Thank-you MonkMed, FixHepC, Drs Freeman & Debasis Dr A Hill, Dr GC, Local specialist nurses, IV and Infectious Diseases nurse, thIs 2nd list of NHS support also proving that although in extremely difficult times, staff ‘on the ground’ are still working really hard to uphold patient care .
Thanks Gaj
But in this case they are saying that if the HCV virus has made its way into a patient’s central nervous system/brain and if it is replicating there, then the normal protective blocking processes of the BBB may make it harder for the DAAs to reach the virus and stop it replicating.
Hmm .well, ‘make it harder’ could amount to a similar thing, no? Maybe not in a technical sense re cause, but with the possibility of a slower response outcome?
All v interesting, if rather complex! Not sure my brain has totally returned from the fog, although much improved
Very interesting indeed SCat,
“multidrug resistant proteins” – are these the RAVS that are talked about?As I responded slowly to the meds, but still responded (and now SVR12) this is of interest to me, could this be connected to Neurological and Cryoglobulin disorders? I had terrible back, hip and pelvic pain pre treatment, could hardly walk. Also I was losing weight and it appeared not absorbing proteins etc properly.
Blood tests flagged up very low triglycerides pre treatment. There was so little to read about low trigs. most articles focused on fatty liver and high trigs, very few articles on low ones and really had to search hard. Always in the minority me !
These tests were flagged up in a private blood test under the cholesterol section, my hospital(s) didn’t routinely test those. I always ‘knew’ there was something I didn’t quite get to the bottom of, there was some discussion on this forum re this if I remember correctly. My feeling is this kind of info could indeed be helpful pre treatment with DAAs, but it seems a very complex area and no doubt NHS patients would need to pre test privately. I also instinctively feel VitB12 may could play a part in my own case.One of my consultants had a full-time heamotologist in their liver clinic, handy I would say !
LG
