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Viewing 15 posts - 646 through 660 (of 1,348 total)
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  • in reply to: Prof Gane’s remarks: implications for relapse #11523
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Phew Thurl, a lot of interesting points you make there, I don’t know what to say , except try to
    ‘keep positive’ !

    These meds can play with our minds, along with all the stress we’ve endured over time.
    I think there’s another discussion re this somewhere else and the genuine consensus was that Prof Gane was asking a legitimate question rather than stating a fact?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Antibiotics? #11520
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Dan , Although I don’t fancy more constipation :evil:

    I have the dizzy thing today, woke up, room was spinning, bored to tears by it – very restricting.
    Sneezing has stopped as soon as it started, but flu-like mild fever and chesty cough are still ongoing.
    I don’t know what could be sx and what could be fighting off some bug,
    there’s a lot of it about. I also have the lower back pain that got me diagnosed, so maybe a bit of both,
    Either way it’s very frustrating after ‘bouncing around with so much renewed energy for the past 4 weeks.
    Oh well, at least I’m not missing any nice weather :lol:
    How are you doing?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: More nausea-inducing news about Gilead’s strategy #11502
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Gilead are rather clever at forward thinking. They offer financial support to organisations in need. ie Charities and Public Health Authorities and of course, seeing as they need Dr research too ….some Drs.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Hepatitis C Trust UK – Latest bulletin #11501
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Please also, anyone reading the link I have added at the bottom of my post regarding that poor mother and child, I am going to ask the people who have posted that if she was helped. The more the better and after all, there are some on here, that could help that one ‘little starfish’ …… without too much financial loss.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Ariel takes the Plunge #11500
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    To Pat1 a huge hug
    That’s the hardest to bear and you alone would know the truth of that

    Hard to find the words for what you have gone through Pat, words just won’t do and so I echo Ariel and send you BIG #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: FixHepC – Party Playlist #11499
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I shall be released :cheer: #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Hepatitis C Trust UK – Latest bulletin #11498
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Tina, Thank-you for your faith, however I doubt the HepC Trust would welcome me at all as an advocate or patient experience etc , as they are partially sponsored by Gilead . They know I’m on treatment with generics.

    However, one of their staff has been very kind to me in a long phone call when I was very down about previous consultant and general treatment by the NHS since diagnosis, bless her, they are good like that, but their idea of advocacy and mine differ somewhat !
    xx

    ps see above comments I have highlighted in bold txt


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #11477
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    If you ever want to chat, please PM me

    Yes,I am here too Chejai if you ever want a chat, although I can’t offer phone number as wouldn’t want to add a giant phone bill to your situation #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #11470
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Ariel DT, Changed my mind, now feel this is some sort of an infection.
    Immune kicking in and low back pain, itchy shins have now appeared/
    Am totally blocked up, room spinning on waking early hours, chesty cough etc.
    Boring !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Nadia’s journey #11467
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Nadia, My very best wishes for your 12 week test. LG #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Ariel takes the Plunge #11448
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    You know I really think that the specialist who did this to you should be prosecuted for grievous bodily harm.

    The question is, “why“??

    Although my 3rd specialist experiences made me ask the same question, I was not so physically harmed by his actions and was more informed than Ariel was at that point. However, I wasn’t always that way when first diagnosed, again like Ariel, I was in shock and very vulnerable. I have also read and read since then and when I witnessed my consultant telling lies in person and later on paper, I can still only ask the same thing – Why? Is it a bullying thing? Arrogance? Power trip? Misogynist? Personal dislike? What is it that makes someone who is paid to care for you, as their job, do such a thing? I came out of mine less physically hurt than Ariel, but had emotional distress which really doesn’t help untreated patients as I’m sure many of you know well, but for sure Ariel, he needs to answer some serious questions. I will be reporting my old ‘specialist’ once treatment is over, I think you will too? I am going to leave it until at least 12 weeks post EOT as I see it as a negative during treatment. This time is for us, the patients and we need to concentrate on getting well, don’t let that man take anything more away from you. Go get him when you are better and stronger.

    Well done for posting this, I hope some consultants and specialists read these posts and I hope you’re writing thoughts down in your new giant notebook ;) You could even print out your post above. Much #love to you dear Ariel, so glad you’ve been getting out and about, surfing, gardening and mowing lawns :) (I cannot imagine dead-heading flowers with the howling wind and rain at my window!)

    Week 4 already !
    Yes, we have all had to be incredibly strong, but now we are softening as the medicines work on us .. hey?
    Still, we won’t be putting up with any more of this crap from any Drs we may see in the future :lol:
    I had the great pleasure of saying to Dr no. 3 (the 1st one didn’t show up to appointment and the 2nd retired) – “No, I’m sorry, that just won’t do “.

    Well done for this post Ariel #flower #love #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Ariel takes the Plunge #11446
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    You know I really think that the specialist who did this to you should be prosecuted for grievous bodily harm.

    don’t know why this posted twice, a bit tired this side of the world maybe ;)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: How to quote only part of a message? #11432
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yay :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: How to quote only part of a message? #11429
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yes :+1:

    So :

    1. Copy what you want to quote
    2.Hit reply
    3. Hit the quote bubble above (above the ‘blush’ emotive)
    4.Paste your words in between start quote and end quote

    ps if this is fiddly on a ipad, then type the quote codes manually as previously mentioned


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: How to quote only part of a message? #11426
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    you have to put [quote (but with a closing bracket) before your quote :-)
    I can’t put it all in one post, or it will turn into a quote!

    so [quote then put/paste your quote here then [/quote but with closing brackets

    hope that makes sense ?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 646 through 660 (of 1,348 total)