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Viewing 15 posts - 766 through 780 (of 1,348 total)
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  • in reply to: Going Fishing …… #10215
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Ooh luvverly Paul – Enjoy your trip :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: medhelp.org #10213
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Twitter lets you post it all day long #JustSaying ;-)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Obama executive order to control drug prices #10212
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I hope David Cameron’s listening :lol:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10211
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    :+1: I look forward to that Tina


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10195
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I have been a silent witness to this, and its the reason I have done a story about it in a magazine here in NZ.

    That’s awesome Tina, do you have a link? would to to read it #flower

    go that bread and butter pudding

    Ha ha – I had one last night ;) #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10194
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I agree DT, unfortunately – I have witnessed this at first hand in A & E especially, where I ended up helping the elderly in there who were left moaning and calling out for help. It upset me so much I considered helping out as a volunteer, this was before I became unwell myself, but I may do so when better.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10193
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Lynne said

    That’s just awful LG. I guess I have been lucky in my journey, my GP is very supportive, medical staff are fabulous and certainly not judgmental.

    Hi Lynne, thanks, my GP surgery are actually lovely, but their (nice) nurses aren’t the greatest at taking bloods (for whatever reason) – It was the local hospital receptionist in the Phlebotomy department who did this (she really should know better).

    I shall keep on keeping on – and now with some renewed energy thanks all the good people on this site & connected. #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10192
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Ariel – How dreadful, “what are you doing here ” – It’s almost enough for me to want to hop on a plane to that clinic say “Ahhhh It’s YOU ! – you’re the receptionist who embarrassed my friend in public when she was sick – Hey, you’re famous on the internet ! ”

    Medical receptionists need to be better trained. End of. I read up on this a bit last night and in the UK at least, patient confidentiality is supposed to be adhered to by receptionists (!) I need to read more, but apparently, you can ask to speak to them privately if you wish. I feel this is an important issue as this kind of thing could actually prevent people from seeking help at times – Yep, serious consequences for you to think about receptionists.

    I guess I have experienced this so much, that now , at least it doesn’t upset me so deeply, It’s also noted down in my big blue book ;-) – it is a matter of principal for me and hopefully some medical people may read and take note to talk to their receptionists. I do think it important that we report such behaviour – I shall wait until EOT then will do so.

    On a positive note, yep first bloods done, I asked for just basics, LFTs , CR &E & VL – at week 4, I’ll ask for the whole kaboodle. I made a point of thanking the phlebotomist who said bloods should be done right away & back for Monday (NHS admin obliging) and also wrote a rave review about my GP online, so it’s not all bad ;-) You and Debs are right behind me #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10188
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    but this endless judgement, prejudice and obnoxious behaviour we have to endure is outrageous.

    Chejai, I am s sorry you have had to experience this too #love – and it does nothing for our health. When you eventually see someone and they tell you to try to reduce stress – laughable if not so debilitating.

    Well, I guess we have taken their advise and reduced stress as recommended by avoiding these people as much as possible !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10187
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Ooooh like it! That giant blue notebook LG! Sounds ominous! :evil:
    If that receptionist only knew

    Ha ha Debs, I was advised when first diagnosed, to take a large notebook to my first consultant appointment & jot down what they said as there is a ‘steep learning curve’ – So bought a large one with enough space to keep blood results etc all in one place.

    In the event, it wasn’t needed, as after 3 months of waiting for my appointment and getting to the hospital with agonising joint pain after their txt reminders not to miss my appointment ,up stairs and down long corridors etc, waiting ages anxiousy in the most overcrowded miserable waiting room, the ‘consultant’ didn’t show up, just leaving a note with reception saying he ‘didn’t want to see me’.

    A taste of things to come eh?

    LG xx


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: One for the ladies in the house. #10186
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good morning ladies, I hate to say it, but feel I must. I have an extremely sensitive skin and have tried Elemis and it irritated my skin over a few days use. I am not at all convinced of its purity.

    There are very few products that are actually organically pure, your skin is your largest organ, so whatever you put on it, needs to be processed and enters the blood-stream and I guess therefore, the liver. Personally, I try to avoid any toxic products, including household cleaning products and especially laundry and my skin has improved enormously. Why give my already stressed liver and more to deal with, you know?

    Here’s a very helpful site : http://www.ewg.org/skindeep/
    At the Skin Deep website, you can type any product in the “search” field and it’ll rate the toxicity on a scale from zero to ten (best to worst).

    Here’s another interesting link for you : http://www.soilassociation.org/Whatisorganic/Organicbeauty

    A quote from that website : “Unfortunately, unlike organic food, there are no legal standards for organic beauty products. So as a result, some companies choose to label a product as ‘organic’ even if it only contains 1% organic ingredients or if it contains potentially hazardous substances”

    Beware clever marketing with the use of the words ‘natural’ or “nature” etc – Many toxins can occur naturally!

    Hope this is helpful

    #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: On the road to recovery with Cipla HepcvirL #10185
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi KenBM

    Would you guys take BP meds if your pressure was jumping between 100/75 to 140/80 a lot of the time?

    When mine was 145 at one point, my nurse told me that was ‘nothing much to worry about” – I would suggest you ask Dr Freeman or contact MonkMed Drs and get some professional advise.

    Best LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10130
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you DT – A great ranty post – #love it!

    What I am wondering is, my GP gave me the lab test sheets to give to the phlebotomist (?)
    It had the details on the front page of GP, surgery request and the rest over 3 pages, was precise instructions for each test ie which bottle, lid colour, quantity etc The forms go directly to the lab sealed from the phlebotomist who has to sign it.
    So… why did the receptionist feel the need to go through every sheet reading which tests I was having when the GP Surgery request was on the front page? She is a receptionist and a very nosey one at that !

    I have wondered a few times what receptionists are allowed to know about our medical records and procedures and patient confidentiality. I can imagine if you lived in a small village, everyone would know your business
    Just glad that receptionist isn’t working at my GP surgery!

    Agree re little Hitler syndrome, those types can be found in many walks of life, unfortunately.

    I will get round to writing up my experiences, so appalling the HepC Trust said “you couldn’t make it up” ! . I should say though, I have only ever experienced this kind of thing regarding HepC – Every other area of NHS that I have needed consultation with, have been excellent and pleasant too (Ophthalmologists / Breast Cancer screening). I won’t go on, (remembering the ‘physiotherapist’ who told me I needed to ‘see a physiotherapist’ after accessing my medical notes). but that’s another story !

    Meanwhile, It’s all in my giant blue note book.

    But job done and hoping for a great result for you

    Thanks Debs #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Flu vaccination #10116
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I wouldn’t Dan, You know they’re trying very hard to get rid of an over-stock from what I hear and it doesn’t see to cover many of the flus, they are saying only 30% – Why risk it? I have been advised not to have it.
    Of course, I am not a Dr – just my personal opinion.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Waiting game #10114
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Paulino, I wouldn’t say much at all about anything. If he asks , just say licenced Gilead approved generic medicines from a large international respected drug manufacturer.

    You are an adult who has made an “informed choice” and would like to receive care even if he can’t condone your pathway

    Good luck with it all and hope you get your medicines soon.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 766 through 780 (of 1,348 total)