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Viewing 15 posts - 781 through 795 (of 1,348 total)
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  • in reply to: ‘In which LG seeks Redemption & makes new friends’ #10112
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good news – I was in and out of there in less than 2 or 3 mins. #woohoo!

    I was greeted by an extremely miserable & rude receptionist who told me I can’t come to the hospital for bloods as they don’t do GP blood referrals any more. I politely but firmly stood my ground. She shoved my request sheet back at me with a scowl. When the previous patient came out, I asked her if I was next, she rudely told me that she’d given me a blue piece of paper with a number on it – I search bag, chair (about 2 feet away from her, so I hadn’t gone far) , pockets etc – nothing while she smirked at me and eventually said ‘Well you’re next anyway, so go in and by the way, we’ll charge your GP surgery for this’ – On arrival, she had a good read of the tests needed – LFTs CR&E & HepatitisC VL – She looked at me like I was a slug just crawled out of the ground.

    Anyway, I went in and medic was just getting a large needle out, so I announced “I am a tricky one and I would like a butterfly needle” – He said no problem, it took him no time at all, 30 seconds or so, maybe even less. I had a good laugh and a joke with him and was possible a tad over the top with grattitude (hardly surprising with what I’ve had to suffer for the last 3 blood draws!) He also said that GPs can refer patients there for tests if they are ‘difficult’ – Job done.

    Results should be back in time for me to take to consultant next week, hopefully. Pleased :cheer:

    I am posting this in such detail case any health authority people in the UK read it and know what we have to go through sometimes. The things I have been through over my time since diagnosis lead me to believe that stigma against HepC patients comes in many guises. When I am better, I will be writing it up and presenting it somewhere – It’s just not acceptable to be treated rudely – I mean, why?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: On the road to recovery with Cipla HepcvirL #10109
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Debs , Sorry to hear the med change is a pain – it sounds like you’re doing the right thing by relaxing and walks with sea air.

    Are you using the home BP machine? Many people have said their BP comes up higher on those, have you popped into the GP to check? May be an idea?

    Still, nothing wrong with a nice bit of calming relaxation, this is all I feel like doing now I’ve entered my third week of treatment (!) – Unfortunately, I have so much to do, but as soon as it’s done, I just want to sit and read. Organised things need doing in the morning after taking pill and Mrs Zippety-Dooh-Dah ! I am finding it easy to relax in the evening, real easy ha ha

    If you get anxious at night, you can always send me a tx, I’m often awake quite late.
    #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: New-Onset Diabetes from Ledipasvir/Sofosbuvir #10108
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hmmm
    So, ‘serum glucose’ is what it looks like on the blood test?
    I don’t think I’ve ever had one of those tests.
    May be worth keeping an eye on the GP will run a test. Why not?

    I have read that some patients were pre-diabetes before treating and then after SVR it went away.
    I guess we just have to do careful watching for a few things, an unwell liver can cause a lot of problems.

    Enkel said “All patients with Grade 3 or 4 increased serum glucose had either a medical history of diabetes or glucose intolerance (HbA1c > 6.0%) at screenin” – Ahhh thanks Enkel, thought those figures rather high!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: New-Onset Diabetes from Ledipasvir/Sofosbuvir #10094
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    mYes, was about to say, Diabetes is quite common with those with HCV and those over 50.

    Keep a healthy diet, have a check here & there, get rid of HepC !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: New-Onset Diabetes from Ledipasvir/Sofosbuvir #10090
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Enkel, No, but have always said, that while on tx, it makes sense to me to keep an eye on general observations, the more the better.

    This report was only 2 patients from what I understand? one co-infected with HIV and the other obese,
    Is there an easy test for Diabetes / Pre diabetes, or is it blood test only?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: On the road to recovery with Cipla HepcvirL #10087
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Debs, How are you doing? #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: One for the ladies in the house. #10086
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I have been thinking, wouldn’t it be nice if the Hep orgs produced a little pamphlet or handbook devoted for women

    Good idea Ariel, HepC Trust? (if you visit?)
    I’m sure an online downloadable one wouldn’t cost much money, if any?

    Hey, maybe we ladies can put one together and upload it on here, why wait?
    Anyone have the time?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: REDEMPTION-3 is open! #10085
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    2 Weeks in for those considering this trial.

    Side effects are :

    Mood improved
    Cheerful disposition
    More energy
    Smiling alot more.
    Appetite improved
    Nails growing !
    Put on much needed weight.

    So far, sooo good!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So what are the REDEMPTION eTrials? #10084
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    This should help maybe Debs? :

    https://www.clinicaltrials.gov/ct2/show/NCT02657694?term=redemption&rank=1


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Ariel takes the Plunge #10083
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I feel good.

    :cheer: :+1: #flower #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: REDEMPTION is “Official” in the U.S.! #10026
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Wow – That ‘s totally awesome !!
    Respect to Dr F :+1:
    MonkMed too !
    :cheer: :cheer:

    Hey, let’s not forget the patients on Redemption #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10017
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Don’t worry DT, they weren’t on my shopping list ;)

    Seriously though, the one the last nurse used was GIGANTIC – don’t think I’ve ever seen such a big one
    Thinking she saw ‘Patient has HepC ‘ warning and decided to distance herself as much as possible, think it was just too big for my little vein :(
    The previous nurse was very nervous there too, Yep, I ‘m better off at the hospital, I hope !

    Thanks for your concern, it’s appreciated.
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Supplements with evidence #10015
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey CC2B – it’s in there somewhere :)
    I think quite near the beginning #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #10013
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Argggg Indeed DT!
    Will ask for a blue butterfly I think ;-)

    Have requested bloods at hospital instead of GP surgery, they do it all day there, even if further away and a longer wait.
    Last time really messed my arm up for a few weeks over Christmas, don’t fancy that again !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Supplements with evidence #10012
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi all, I won’t take anything but Lamberts, quality & price. There is another goOd make the name escapes me, but it’s very pricey.
    Dr F said ALA is fine on treatment.
    Best, LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 781 through 795 (of 1,348 total)