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Viewing 15 posts - 991 through 1,005 (of 1,348 total)
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  • in reply to: So who are the reliable Indian suppliers? #7897
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Enkel, As you know,I was talking to MHPharma some time ago. They were helpful and I have heard of someone getting their medicines from them successfully and doing well.

    However, when I asked them what guarantees they could give me if a shipment was lost or refused by customs, they wouldn’t give me an answer. I persevered, but still no answer apart from being told to have more faith (can’t remember the wording right now, it was a nice sentiment, but not a practical one !).

    This is another reason I have chosen Fix HepC / MonkMed , in case of customs confiscating the meds or the shipment lost/stolen on route etc., I think it’s only FixHepC that state they will refund your money or let you pick the meds from India /Australia (at no additional cost), so I feel that extra security takes some of the anxiety away for me – and anything that can lessen anxiety for me, is a bonus, you know? There is some assurance at least.

    Not forgetting that Cipla meds are recognised here in England and I felt this could be helpful in getting support for monitoring while on treatment – It’s extortionately expensive to go private here, blood test quoted by private Doc £650 each time!

    Also, as stated in another thread, I hope that my contribution in the way of trial data will also help others in the future too.

    Hope you’re doing well Enkel and fingers crossed I’m not too far behind you ;-)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: A New Year in the State Belgium #7895
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank for the music everyone – Got some ‘me’ time to give it a blast


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Improvements during and after HCV treatment #7894
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Mike – Great to read, thanks .
    Also hopeful for the weight gain, I need it too – Good to hear.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So who are the reliable Indian suppliers? #7893
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great – I am also GT 1a btw and hoping to start next week, thanks to MonkMed / Dr F. Just waiting on meds to arrive and new consultant re-referral.

    There are a few of us starting around the same time – Also, excited, my mood has lifted with the hope :-)

    Good luck.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: HCV and Neurological Symptoms #7892
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    me too Debs! For me, it’s names of things, things I have always known – they sit on the tip of my tongue forever and just won’t come to me. Could be something as simple, such as an item, but worst, is names of people and places, obvious ones too. Drives me nuts. Often, I read back on what I have typed – It’s just really odd mistakes, I have never been a good typist, but whole words that sound similar by ear, get typed wrong…Can’t all be the auto-correct !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So who are the reliable Indian suppliers? #7890
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Alsdad said

    The list of distributors is in it’s infancy Dorian. It will develop and grow.

    Yes, many of the newer meds only launched a few weeks ago and just before Christmas , such a busy time for many of us. Many of us are waiting for delivery and it will be a while before we read about the final results(fingers, arms, legs etc crossed for all) . I guess this is why the Redemption Trials will be very useful in the future , along with members posts on here.

    I will be sharing my own personal experience on the forum, if it helps even one person then it will be worthwhile, as reading others experiences have helped me so much in more ways than one :)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So who are the reliable Indian suppliers? #7889
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey James, Waving to you (also UK) ….
    Have you started treatment yet? (forgive me if I’ve read this already, I do get forgetful of late!)
    Anyway, best wishes for the best result and good health to you.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Debs going on Cipla generics…… #7868
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey Debs, I feel so much more cheery already ! The kindness I have experienced on this forum is something else, it really helps me to keep the faith that there are still good people in this world and now, the practical reality of help :cheer:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: HCV and Neurological Symptoms #7866
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yes, it is in all your mind, and it is caused by real (reversible) pathological changes.

    Hey Dr F – Thank-you :cheer:
    You know, I always wonder why people belittle things by saying ‘It’s all in your mind”….I mean, your mind controls your body surely? and ‘due to pathological changes’ , as you say, changes causes physical symptoms – It all makes total sense to me !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So, the battle is joined! #7864
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great descriptions – thanks Zhuk – Keep ’em coming :)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: So who are the reliable Indian suppliers? #7862
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    But, as explained in another discussion, we need to ascertain if a distributor is honest and reliable before we can put them on the list.

    Absolutely – eg on Indiamart or such places, I would be extremely careful, Its not ‘a seller’ – anyone can sell on there, it is a marketplace. Producing counterfeit bottles and medicines is extremely easy. I have heard from a reliable source, that they have been known to sell half doses mixed with half chalk powder or some such things, like street dealers.

    For me personally, supply chain integrity is more important that getting a slightly cheaper price – We are trying to get well and after all the stress of trying to find ways to access treatment, we should tread very carefully, research thoroughly and listen to the advise of those who have a respected knowledge, medical experience or experience of sellers. It’s hard enough to swallow powerful, but tested medicines, without the concern that they might be dodgy! In recent years, my ‘drug intake’ has been a few Paracetamols, could probably count on less than two hands.

    I am totally in agreement with Alsdad on this.

    Good luck with your treatment Dorian – I wish you every success.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: B12 supplements may improve SVR #7829
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Phew – Short version easier for me !
    Will just take your advise Dr F :)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Phoenix rises with help of Sof/Dac #7814
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl
    Phoenix wrote:

    Thanks LondonGirl! Day 2’s dose is an hour away – feel like I’m in the swing of it now. I’ve had a real sloth cave of a day. I think it’s an emotional hump – memories of interferon horror. This is going to be different! :)

    Way different – For sure !

    I can imagine the emotions – I am waiting for my meds and seem to be on a high right now as I finally have hope :)
    However, highs can turn into emotional outbursts in my experience – but you know, so what? Get rid of virus & get rid of all that stress that has been building up post failed tx on ‘dirty’ drugs or just anxiety if not getting treated at all – I guess we need to heal mentally as well as physically and we need to be more than a little kind to ourselves,

    Don’t forget to breathe !
    (Hoping someone reminds me of my own advise when the day comes !)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: on tx “pulsating, heart beat, speedy feeling” #7808
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    h Hi Jolie – Very interesting, thanks
    Hope you’re feeling better & flu has subsided.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Debs going on Cipla generics…… #7806
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Alsdad, I agree, it is a sad state of affairs. Read an article on a cancer specialist recently who said he felt he had to follow such strict protocol, that he felt he could not help terminally ill patients with any ideas relevant to their individual cases and therefore ‘couldn’t be a Dr’ due to beaurocracy – Madness.

    Good luck to you Debs with your NHS support, it’s never easy when dealing with the NHS these days. My end, I’m still waiting on my new consultant referral, everything takes so long! Had to leave that *very unpleasant* (feel free to insert alt words) last consultant I was allocated when my previous lovely one left my hospital. Shame, as that hospital is such a good one. At the end of the day, if we are not receiving’appropriate care’ from our consultants, it is our right to change under Patients Choice.

    This seems to have got a bit long Sorry !
    We’re nearly there Debs :-)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 991 through 1,005 (of 1,348 total)