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Viewing 15 posts - 1,306 through 1,320 (of 1,348 total)
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  • 8 October 2015 at 10:25 pm in reply to: compounding Sofosbivur (& Daclatasvir) by oneself #2050
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Jolie, I think, as it stands right now, this is only available if you are in Australia.as legally, the medicines can’t be re-sent out of Australia.

    Please correct me if I’m wrong anyone?

    But you can have them delivered direct from a manufacturer if this is permitted, so yes, if you do this, they would come in API form and need to be capsulated.

    Is this right?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    8 October 2015 at 1:20 pm in reply to: Nadia’s journey #2029
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Nadia, I have some ‘instinct’ that the Meds can poss. change pulse, heart-rate, BP
    I think regular observations on these, maybe from GP would be handy.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    8 October 2015 at 1:16 pm in reply to: compounding Sofosbivur (& Daclatasvir) by oneself #2027
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Totally agree with Gary on that Life,
    We all have different issues & health specs.
    Special , ie professional care needs to be taken with other medicines, supplements and even, I have read, some foods.
    I know StJohns Wart for example should be avoided and some talk of grapefruit & Seville oranges.

    Susie

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    8 October 2015 at 1:06 pm in reply to: Nadia’s journey #2023
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi guys, by ‘spin’ do you mean actual dizziness?
    Wonder what causes that and if it’s anything to do with blood pressure..

    Sounds like you’re both doing well, enjoy your lunch :cheer:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    7 October 2015 at 9:31 pm in reply to: Declatasvir – available online, is it safe? #1988
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Not sure I’m up to flying there myself I must say, but good to know people are

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    7 October 2015 at 12:39 pm in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1974
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I believe there are many in the medical profession who believe they need to be ‘cruel to be kind’ thinking that we may ‘learn our lesson’ if they are cruel to us. It is shocking. Some maybe think we will not ‘endanger’ ourselves again if they make our experience as difficult as possible. Some think it’s our own fault and we are wasting medical resources. Seems to me, many of us are over 50, this has been my experience since diagnosis, they would prefer to have us labelled junkies out of a ‘life-style choice’ I think. It keeps public opinion on the side of no funds for treatment. They also seem to overstate the cost of treatments in the press. Well, English Health Authority do anyway. It’s handy for them to blame NICE.
    Johnboy – The blood test thing is interesting ….sorry you had to experience that.
    I believe HepC patients all over, are discriminated against.
    My personal experience of the medical profession in England regarding this illness has been, in a word, bad.
    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    7 October 2015 at 1:31 am in reply to: Ledipasvir or Daclatasvir #1946
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you David. I appreciate appreciate your post.
    I have read about the Harvoni and know that it seems very tolerable in most patients.

    I am a little concerned as I am so tiny – It amazes me that someone my weight would have the same dosage as a large, well-built guy, you know? To give you an idea I can fit in child’s clothes age 12-13. I also have had some immune responses and have been quite ill intercepted with better phases, weight-loss & muscle wasting has been an issue and a there are a few other issues that worry me somewhat but I’m going to discuss these with the Hepatologist when I see him. Not that they will necessarily be totally forthcoming I’m sure! I feel monitoring is essential, not so much endless blood tests, but blood pressure, listening to heart etc – basic obvs, want to get this in place.

    I find it ludicrous that many of the medical profession seem to say none of our symptoms are connected to the virus, yet they don’t really seem to want to investigate them either! there are clearly common symptoms in many sufferers, eg joint pain .

    Yes, I know I have to rid myself of this here thing and my body is letting me know that.
    I thank each and every one of you for your input and advise.

    LG

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    6 October 2015 at 9:53 pm in reply to: Emilio’s Place #1942
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good luck emilio

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    6 October 2015 at 9:47 pm in reply to: Hello from UK, need help please #1941
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Muir & Jolie -Girl :)

    I can only agree, but I will say, that isn’t the UK, it’s England. Scotland are totally pro-active and have got rid of interferon for GT1s recently and been prescribing and treating with new meds for a while. Wales and Northern Ireland are apparently offering DAC, so it’s the English Gvt, the English Health Authority and NHS England who are trailing behind. Infuriating – Why? Hmm

    We shall overcome !

    Good luck to all.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    6 October 2015 at 12:02 pm in reply to: Hello from UK, need help please #1914
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    ”
    Yeah we’ve adopted Jolie, we need him on enemy lines. Em”

    Huh? Though Jolie is a ‘her’ not a ‘him’ ? ,

    or are we talking about the Dr?
    Has anyone seen this guy?

    Thanks (goes to make more coffee)

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    6 October 2015 at 11:52 am in reply to: Twinvir #1913
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good morning all, Is there any news on the Twinvir testing?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    6 October 2015 at 12:27 am in reply to: Hello from UK, need help please #1868
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Jokie, That is the one I had previously, Easier travel for sure.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    5 October 2015 at 10:00 pm in reply to: Hello from UK, need help please #1866
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Jolie, Could you message me the London contact please? It’s a lot closer to home! I did have a London contact way back, but wasn’t sure if he was still able to help. If anyone has the details, I’d be very grateful if you could pass them on via chat.
    Thanks

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    5 October 2015 at 1:07 pm in reply to: Hep C 3 treatment #1842
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Sunshine is indeed my friend, but also in UK. The sunshine here is not good enough, if we see it at all ! We can get cheap flights to warmer climates easily, I need my VitC fix frequently and always feel a huge improvement. Last bloods, my VitD result showed just enough, that was after taking suppliments over last winter.

    Magnesium is a v interesting one, it seems to help many ailments associated with HepC. Although my Dr said it was ‘unlikely’ I have found it has helped me personally.

    Edit: Please note I am not on treatment, would also be interested in DrF’s take on that

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    5 October 2015 at 12:19 pm in reply to: Science vs HCV #1832
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news Chester :)

    (Wheels in motion)

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

  • Author
    Posts
Viewing 15 posts - 1,306 through 1,320 (of 1,348 total)
1 2 3 … 87 88 89 90