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Viewing 15 posts - 1,321 through 1,335 (of 1,348 total)
1 2 3 … 88 89 90
  • Author
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  • 5 October 2015 at 12:16 am in reply to: Ledipasvir or Daclatasvir #1801
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Confusing !
    Will continue to ponder.
    I guess many are waiting for official generic Harvoni ?
    and test results Twinvir?
    Thanks for your help.

    Still non the wiser really, I guess ask Hepatologist advise too.
    That will be interesting .
    I have some time, but still need to do homework.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    5 October 2015 at 12:09 am in reply to: SOF/Dac could it work it eight weeks? #1800
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Ah – How typical of English bureaucracy !

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 10:57 pm in reply to: Ledipasvir or Daclatasvir #1796
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hepcinat?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 10:42 pm in reply to: Ledipasvir or Daclatasvir #1794
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    When are the ‘official’ generics due. confused :huh:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 10:32 pm in reply to: Ledipasvir or Daclatasvir #1792
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Nadia, I wonder if when we are typing a post, it doesn’t work?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 10:31 pm in reply to: Ledipasvir or Daclatasvir #1791
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good to hear Nadia, long may it continue that well.

    What I am trying to understand I guess, is are there any differences showing between the Harvoni and the Sofo/DAC treatments. Are there any over 50 GT1s with aches and pains pre treatment on here who have taken Harvoni? Or are there any reports on either treatments to compare? Etc I am doing my homework :)

    If I need to get a prescription, I have to decide what for.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 10:19 pm in reply to: Ledipasvir or Daclatasvir #1788
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    The final appraisal from NICE for NHS England is due this coming November, then it will probably take 3 months from that date. Then it will be up to the NHS commissioners and local hospitals. There will be waiting lists, so I believe the triple sofo/Interf/Riba may well be offered to many who don’t wish to wait. Some have been told waiting list is 2 years already. I guess it will depend on your post code. I know someone with cirrhosis who has not yet started treatment, all those patients are supposed to have started treatment by now. Unbelievably, there are people being offered the old triple here in England! As for me, I was mainly talking about my initial feeling when first diagnosed and in response to Nadia’s comment above. Lasts bloods showed ‘strong auto-immune response’ – I need to do what I have to do if treatment isn’t forthcoming and have other health issues I believe are caused by the virus., even then, if all goes well NHS England will only offer 8 weeks Harvoni. I guess the logic is many will clear and it’ll be cheaper to re-treat the 6% or so that may fail. We are waiting to see what NICE say, but in reality, it will be down to individual hospital budgets and where you are on the list. So we have to wait for NICE then see our consultants for adise in our area, I don’t think there will be identical treatment options in every region. Hope I’m wrong, but that’s what I’ve deducted from a variety of articles, videos and professional opinions, you know? Things are different in Scotland and Wales. Scotland have officially got rid of Interferon treatment for GT1s. Go Scotland !

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 9:16 pm in reply to: Ledipasvir or Daclatasvir #1786
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Wrong side of 50 & suffering a variety of ailments, think all HepC related. Blood pressure Ok when it’s rarely checked. This is why I really don’t want Interferon at all, My immune system is already fighting & causing problems.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:33 pm in reply to: SOF/Dac could it work it eight weeks? #1783
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I am interested re health authorities. They ‘may’ offer 8 weeks of something or the other in the UK, so you could top it up with an extra bottle if waiting for that eg? Just wondered why if DAC is cheaper to them, why it’s all about Harvoni for GT1s and talk of DAC as being expensive when I’ve read it’s cheaper.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:22 pm in reply to: SOF/Dac could it work it eight weeks? #1781
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Isn’t DAC cheaper? Or us it more expensive in the UK ?

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:05 pm in reply to: Ledipasvir or Daclatasvir #1779
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Is there a general picture appearing re sides Harvoni v Sofo/DAC ?
    Still deciding here , or trying to !
    Any advise welcome. Thanks

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:39 am in reply to: Hello from UK, need help please #1758
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I am GT 1 – A lot of 3s here -Unsurpringly!
    Yes Dr must be doing well, but good for him, for ‘thinking outside of the box’ and helping.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:36 am in reply to: Would you like to be part of a social movement? #1757
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Alsdad, sent you a chat message, please read.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 1:04 am in reply to: Hello from UK, need help please #1754
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Jolie, I am also in the UK and looking to get a script. I have just had full bloods done and have always kept all my other previous test results. As soon as I get the latest tests back, I shall be making an appointment and it’s a long journey but if you book a train ticket in advance can be quite reasonable. Will keep you posted. Ps what Genotype are you?

    Well done Wilko – Result ! :)

    Ps Jolie I was also confused – I still am a bit, but one step at a time.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    3 October 2015 at 1:17 pm in reply to: Gamma GT #1725
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    This tells me two things, firstly, they forget what they’ve told you previously and rarely read your notes prior to consultation; secondly it’s pot luck what they tell you on any given day according to their mood and therefore it’s important to keep informed and not to accept the first thing they say but ask questions! I have heard many reports in UK of patients saying things like ‘but I just read the latest EASL report and ‘ …….etc etc
    And the consultant saying ‘oh really?’ etc etc

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

  • Author
    Posts
Viewing 15 posts - 1,321 through 1,335 (of 1,348 total)
1 2 3 … 88 89 90