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Viewing 15 posts - 316 through 330 (of 334 total)
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  • 8 December 2015 at 1:56 am in reply to: on tx “pulsating, heart beat, speedy feeling” #5453
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    ‘I don’t really have the “speedy” feeling some describe, I don’t have more energy, but I do have very strong pulsations & can hear my heartbeat in my head very strong, esp at night when I try to sleep on my sides. My head hurts & I suspect my blood pressure could be high.
    Does anyone measures their Blood Pressure while on tx?’

    Hi Jolie
    You very accurately described a sensation that I have experienced periodically over the years and for me it was always at night. For me this feeling generally occurred when attempting sleep and it was sometimes after a couple of drinks. It felt as though the virus was replicating and like you I could feel a strong sensation of ‘heartbeat in my head’ especially when lying on my side and it was just impossible to relax or sleep until the sensation passed which usually took several hours. I take meds for high blood pressure and my blood pressure is recorded as at the high end of ‘normal’. I was also on cholesterol meds which I have halted in anticipation of my sof/dac tx.

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    30 November 2015 at 11:23 am in reply to: Emilio’s Place #4871
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    W o n d e r f u l N e w s
    Very exciting for you and again very encouraging for those of us walking the walk!

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    30 November 2015 at 4:25 am in reply to: You Can’t Patent The Sun #4849
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Very succinct short flick

    great visuals

    blood flowers, war, hope, time

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    27 November 2015 at 1:51 am in reply to: Browny working 9 to 5 #4724
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Thank you Browny for your post.
    All the replies have been so positive and immensely helpful to me as they are first hand accounts of responses and feelings about continuing work while under treatment. It’s happening now and all attainable. I can clear the virus and live my life.

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    25 November 2015 at 11:46 am in reply to: Browny working 9 to 5 #4639
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    I am interested in hearing about coping mechanisms for working while on treatment also. I am the sole income earner for my household. I work in customer service and administration – so together ideally I should present with a cheery welcoming countenance while paying attention to detail. To tell the truth I am struggling with this at the moment as I am waiting to begin treatment. Hopefully I will get through ok.

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    22 November 2015 at 12:08 am in reply to: More nausea-inducing news about Gilead’s strategy #4381
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Alsdad
    That was a horrible, nasty read!
    :evil:

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    20 November 2015 at 10:51 am in reply to: US Importation …. Legal or Not #4273
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Mike- Maxwell Smart makes me smile every time

    dointime – listening to Arlo Guthrie this evening just made it a better day

    such great news coming out of the USA

    Cheers

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    14 November 2015 at 2:26 am in reply to: Adelaide doctors #3910
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Hi Lizzi

    FYI
    There is an apt available with Doc Freeman on Monday 16 November at 2.30pm @ GP2U via Skype. I suggest you book as soon as you can if you are going to take that option because at least you can be sure that you will be offered a script. It has been my experience that I had been promised a script by a specialist and the very next day that was promise was withdrawn.

    cheers

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    12 November 2015 at 1:32 am in reply to: Day 14 Results #3698
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Paul, your latest results are very reassuring; great news :)

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    11 November 2015 at 8:58 am in reply to: Fibroscan – the scoring card #3658
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    I’ve lived my life with hep…and then I find that in my lifetime – :ohmy: :blink: :woohoo: :pinch: the parallel universes collided!!

    I find out that a cure has been discovered and I now have an opportunity to own the disease and self treat. The doctor performing the fibroscan asked me how much the meds from China cost and what was the name of the company in China.

    He then followed with ‘ your result is ok, if I were you I would wait!”

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    11 November 2015 at 1:38 am in reply to: Joy To the World #3639
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Great news Joy, how wonderful. :cheer:

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    11 November 2015 at 1:30 am in reply to: Gamma GT #3638
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Alsdad, wonderful news for you and very encouraging for me

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    4 November 2015 at 1:06 am in reply to: Hepcinat LP #3278
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Hi652
    Here is Greg Jefferys latest post today
    http://hepatitisctreatment.homestead.com/generic-indian-harvoni.html

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    1 November 2015 at 12:25 pm in reply to: Buyers Club Scheduled To Meet Key Decision Makers #3156
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    silent disease, quiet killer

    I sadly know people who are suffering with breast cancer or bowel cancer and other life threatening illnesses. I wonder bout my friends – how many have HepC? – I don’t know because it is not up for discussion.

    I don’t censure physicians and specialists who work at Liver Clinics or in Gastroenterology but I do think they are kinda apathetic. I have repeatedly been let down by medicos and institutions. If you were passionate or cared I think you would support progressive health movements and choice. I understand why you maybe can’t.

    I consider myself to be an honest person. I have empathy for others and offer assistance wherever appropriate. I contribute to society. Know one knows but me how I am and I do the very best that I can.

    People that I know would be surprised to learn that I have HepC. They would maybe question how this happened. I don’t know and it doesn’t matter.

    There is a cure but not generally available. The FixHepC Buyers Club and online forum have helped me so much. I want to be cured and I don’t want to die for the lack of treatment. I have children, grandchildren and elderly parents and want to spend time with them as they do with me. I am a human being and I am exhausted. I feel isolated and withdrawn and I shouldn’t live have to live my life this way. I need help. I have lived many years on the ‘outside’ presenting as fine.

    I live in Australia supposedly ‘the lucky country’. I pay the Medicare levy. PBS where are you? I also pay thousands of dollars for private medical cover.

    Doc Freeman has helped. I have ordered my meds through FixHepC Buyers Club, there is no other option and I am thankful and hopeful.

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    22 October 2015 at 11:50 pm in reply to: Nadia’s journey #2639
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    This is wonderful and exciting news for you Nadia :)

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

  • Author
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Viewing 15 posts - 316 through 330 (of 334 total)
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