Forum Replies Created

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • in reply to: London Girl’s NHS Experiences #6595
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Hi London Girl!
    Based on my own experience it is hard to find a doctor that really knows about hepatitis from the letter B and ahead…
    I found out about my VHC in Chile after donating blood in a major public hospital in 2009. The doctor that gave me the news was sincere and told me that he didn’t know anything about hepatitis. A few months later I came back to Argentina to a small city where my mother lives. The good old doctor I consulted, now retired, was an infectologist a little bit out of date about how to treat it. He told me that there was nothing to about it, he only knew about interpheron and told me that there was little hope to cure it that way, just about a 5% chance to get rid of the virus. I was shocked by the news and spent 6 months planning my life thinking about having between 5 to 10 years of life ahead before going away to my last trip ever.
    He was an experienced doctor as I was told and he probably was all of that but obviously out of touch with the new developments on the matter.
    So, I came to good terms with the skinny lady with the sowing tool… Then I came back home to Buenos Aires, looked out on the net and signed on an argentinian VHC sufferers forum. There they guided me to a public hospital where I found specialist on VHC, VHB and the like. It was like being born again. Those guys and gals really knew about it…
    Interpheron and Rivs were out of the question in my case because the adverse collateral effects. So, they told me, let’s wait for what’s coming. And what’s coming has come this year but at a stratospheric cost. The government only supply the new meds if you are F4. I don’t want to wait to get there to get them…!
    Get a specialist is my humble advise, or if you got the means, go to Australia and see Dr, Freeman, it seems to me that he is a nice person that happens to be a doctor that knows about our troubles. My own doctor is just like that, although overwhelmed by the huge number of patients she has to care for being at a major public hospital. i’ll try to see her next week and propose her to start some kind of buyers club like they have done in Australia for those that can afford a couple of thousands of USD to finally get cured.
    Kindly, Julio… Finally unpuzzled

    in reply to: Hi Everyone! Questions from Argentina #6588
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Hi Guys!

    I failed to copy the signature on the mail I received from the guy from Julphar, so far it seems legit:

    Md. Anamul Haque

    Sr. Executtive, International Marketing
    RAK Pharmaceuticals Private Limited
    RAK Tower, Level-10, 1/A, Jasimuddin Avenue,
    Sector # 3, Uttara, Dhaka-1230, Bangladesh,
    M + 88 01 988881152, T + 88 02 8963772
    F + 88 02 8961972

    Email: export@julpharbd.com

    Website: http://www.julpharbd.com

    Skype: julpharbd/anamul_135

    I exchange a couple of mails with him, one of the questions I asked was about going there to get the meds in person or the chance of having them shipped to me. The reference about a prescription was (I believe) as an answer about my question about the language it has to be written (English or Spanish) I find it hard be able to get one written in their language… :)
    Anyway, a prescription would be needed to enter the meds into my country either way of doing it, in person or by DHL.
    For me it will much easier and off course far cheaper to get them via DHL.
    After writing to you today, I talk on the phone with someone in the Minister of Health stating that (as I was told by my doctor) that both, Dac and Sof, were provided by the state only if I were at the F4 stage. I told her that I had no intention of getting the meds if there were not enough for everyone because there are lot of people in more urgent need of those than me. I just asked for a permit to import them by my own because I cannot afford the +/- 80.000 USD they cost here… She referred me to our own version of the US FDA.
    I’ll try to see my doctor again next week and see how she can help me with it. Bouroucracy is the main enemy.
    That Julphar is for real is good news but is not the only pharmaceutical company on sight. Bangladesh seems to be the cheapest way.
    It seems that before beating the virus I’ll have to beat bourocracy wich might take even longer and with even worse side effects…!!! :)
    Kind Regards to you all!

    in reply to: Hi Everyone! Questions from Argentina #6566
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Hi klhilde!
    I thank you very much for your concern. Sorry about the delay on answering but I have been away for a while.
    I’ve exchange a couple of mails with a person named Anamul Haque from Julphar, a pharmaceutical company from Bangladesh.
    In the hope of not breaking any forum rules, I transcribe his answer to my request. As you will see it has all the info I needed but it also is kind of charming. :)

    “Dear Sir,
    It’s pathetic to hear from you. We do hope your rapid cure to god. We are able to provide you Dalcatasvir, Sofosbuvir and Ribavirin.
    We can send it through DHL or you also able to collect from us physically.

    Price of Sofosbuvir (Hepcee)- US$ 8.3 for each Tablet

    Price of Daclatasvir (Daclacee)- US$ 5.2 for each Tablet

    Price of Ribavirin (Ribacee) – US$ 0.47 for each Capsule

    You have to provide your prescription (if any) and your passport copy to get the medicine.
    We will wait for your further reply for processing the goods.

    Regards,

    I haven’t heard nor have any references about this company, so, if anyone knows about them I’ll appreciate any info you may have.

    Anyway, I must first see my doctor because I am going to need not just the prescription which as you mentioned there are other avenues to get it, but, as a patient of a public hospital I have access for free to every study needed before, during and after treatment. Otherwise, if I have to do it privately it will be very expensive. Besides my hospital is the very best concerning viral illnesses in my country.

    Maybe, just maybe, I may might be able to find a way to importing the meds legally. A lawyer, friend of mine is giving me a hand looking into our laws to find a way thru.

    The local prices of both, sofosbuvir and daclatasvir just went up following our currency’s devaluation after the recent change of government and the new policies regarding public health are not promising at all.

    So, thanks to you and everyone that’s giving me a hand, sooner or later I’ll get my treatment…!!!

    Best wishes

    in reply to: Potential 3-week treatment? #3187
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Thanks Paul for your fast reply…
    Usually in January Buenos Aires gets really hot weather wise. Temperatures could rise up to the upper 30 degrees, some times nearing 40 C, but that’s an exception. The good thing about january is that a lot of people goes off to vacation somewhere else and the city is not that crowded.
    At night feels much better. So don’t miss the Tango shows in San Telmo.
    Too bad you wont be able to taste some of our very good red wines! And be careful with the “parrilladas” (a lot of different kinds of meats on a single serving) some are really high on fats. :)
    I’ll probably be in Buenos Aires by then. If so, I could drive around to show you the city. Although, chances are I could be flying to somewhere in the world to get the meds. Australia, China, Bangladesh or India by then.
    I really hope that twelve weeks would do the job. I can’t wait to regain my energies. Until now I’ve been loosing strenght and close to give up hope. This forum has been an injection of new life for me…
    Best wishes and if there is anything you need to know about Buenos Aires, just let me know.
    Julio
    The puzzled nickname was just to show how I felt about this ordeal, but i’m feeling more and more Unpuzzled… :cheer:

    in reply to: Potential 3-week treatment? #3184
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Hi Paul!
    I carry the same genotype 3a as you do. I was just searching the web to find out what combos were rigth to fight our genotype. Found that with just Sofosbuvir + Ribavirin the treatment shoul be of 24 weeks.
    On this forum I was told that the combo you are taking is the right option for us. I see that you’re already on the way with it. My question is for how long you’ll take it and how did you got the meds?
    I’d rather stay away from the ribavirin, but, if there is no other way… it certainly beats the peginterferon!
    I was never treated, between F1 and F2, very fatty liver and begun some ten days ago to start feeling some symptons.
    Thanks a lot from Argentina

    in reply to: Hi Everyone! Questions from Argentina #3119
    Puzzled
    • Topics: 2
    • Replies: 6
    • Total: 8
    • Novice
    @puzzled

    Hi James, I’m Puzzled from Buenos Aires, Argentina. Genoype 3a, between F1 and F2 and a very fatty liver.
    I was told in this forum that the best option for me would be Sofosbuvir + Daclatasvir. Do you agree? Will I need to add Ribavirin to those two? I really wish not to need the later… but, doctors opinions come first.
    I’m seriously thinking about taking a trip to Hobart to get the meds. Checking on the net for flights and hotels, but not knowing how long I’ll need to stay there before coming back home with the meds. I understand I have to do it thru the buyers club.
    Anyway, probably in ten days I will be able to see my doctor and talk to her about it.
    Another question is what medical information I should ask her for in order to do it right.
    Will a prescription from her (she is a senior specialist in an important public hospital in Buenos Aires) be good enough? Should it be written in English or Spanish will be Ok?
    I’ll thank you for clearing out my doubts… Then I would be Unpuzzled… :)
    Best wishes

Viewing 6 posts - 1 through 6 (of 6 total)