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Hello Stingray,
That’s a great story. It took some guts to do what you did AND IT WORKED!
I’ve just had a look at my profile: I see that I first posted in February 2016 and finished treatment (24 weeks altogether) in July 2016. I have been very well since and it rarely occurs to me to wonder how life would have been if I hadn’t taken the Fixhepc route to the cure.
Now that I pause to reflect, I can have a stab at answering that question: The NHS would have messed me about for about another year – my consultant’s hepc nurse rang to book me in to her clinic in March 2017- and then they would have given me 12 weeks of treatment instead of the 24 weeks I did with Fixhepc, which may not have worked because I had genotype 3a and a fibroscore of 9.5 initially. But before that the disease would have progressed, of course, though we can’t know how bad it would have become. I was suffering from constant fatigue, my digestion was very poor – I had symptoms which I thought were due to IBS – and was living on omeprazole. I had zero tolerance to alcohol – a few sips would give me a terrible hangover and any sniff of a steroid inhaler gave me headaches too. I am asthmatic and had to use something else. In short, life was bad and getting worse!
I am self employed and that’s been the case for nearly all my life but it’s unlikely that I’d have been able to work for that much longer. That would have been a huge problem because I like my work and need the money. I also need the self esteem that working brings me. Again, I have a large and beginning-to-be-lovely garden (it has been 18 years in the making and may be alright in another 10!) and a family of whom I am very fond, which includes my husband and two very beautiful but seriously naughty cats!
We never really know how events would have been but I’m sure life has been miles better than the alternative scenario.
The bonus has been that I’ve encountered some delightful and very dedicated people. You’ll just have to get a new hat, Dr James, you must have outgrown several!
With love and my very best wishes to all of you,
RSF
PS Sometimes I think of a lovely man, known as Gaj on this forum. Very sadly he lost his battle with hepc but not before he had made his mark by encouraging and supporting so many of us here. Perhaps you’ll pause for a moment and be thankful? R
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Chris,
Sounds like you’re having a tough time but Dr James is, as you have already found out, right behind you. That should reassure you, as everyone on this forum knows.
I would certainly takes the Riba, potential side effects and all, if I were in your shoes. As with most things in life, anticipation is usually worse than reality.
With best wishes for 2019,
RSF
PS Have you ever read ‘Love, medicine and miracles’ by Bernie Siegel MD? It is about the way positive thinking influences health outcomes but also much more and how, practically, to help yourself. If your view of the treatment you are having is that it will work, you measurably increase the odds that it will. Further, you can minimise side effects of treatment using the visualisation techniques Siegel employs with his patients. R.
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hello Kaju,
I’m very pleased to hear your news. You must be feeling really good about it. Perhaps you could afford to relax a bit now? I say this because you mention that you’re looking forward to the next set of results but if your viral load is undetectable at 24 weeks it is almost completely certain that you are fixed. Dr James could give you the statistics which support what I am saying.
With all best wishes for a healthy 2019,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
A very merry Christmas to everyone, especially Dr James,
It’s a long time since I posted on this forum but I do look in from time to time. Thanks to the good people at Fixhepc I no longer have Hepc and have just enjoyed a really good Christmas, with a few glasses of wine.
It was a sudden inability to cope with alcohol – having a glass or two with dinner gave me day long hangovers – that alerted me to the fact that I had a liver problem. People can be pretty stupid, especially myself! For several days I suffered and thought it must be an ordinary viral infection, but it didn’t improve at all until I stopped my (very moderate) drinking. That’s when the penny dropped.
Now the next bit may make you laugh. Many years ago, actually about 25, I had an HIV test which was negative but was told that I had contracted Hepc. At the time I said, when offered counselling, that it was about the least of my problems since I was going through a very painful divorce. So I did nothing about it. Some years on from that I moved to a new town and routinely signed up with a GP whom I told about the Hepc. He wanted to send me to a gastroenterologist who he said would do a liver biopsy etc. etc. What was proposed sounded very unattractive and the treatment sounded even worse. Please bear in mind here that I was quite healthy and had no symptoms – or not many but see below. Consequently I said to the GP that I wished him to take no action and decided simply to get on with my life and ignore the diagnosis! I actually forgot about it.
It must be said that I was right for all the wrong reasons (over many years certain people have had the temerity to suggest that I’m a posh, arrogant bastard who always KNOWS that he’s right though it’s a vile calumny) because the early treatments on offer for hepc were both unpleasant and often ineffective. In fact they caused long term damage to some patients without curing the disease. By the time I developed the alcohol problem DAAs had become available and thanks to Dr James et al they were affordable too, at a time when the NHS was rationing them and therefore keeping patients on waiting lists while their condition deteriorated leading to great suffering, an inability to work causing poverty etc. Frankly this is a damning indictment of a poor health care system which employs corrupt and uncaring medical personnel, but I digress.
So I want to express my enormous gratitude to an honest and caring physician and the good people around him here at Fixhepc as well as the many good people who post and have posted on this forum. One in particular stands out: Guy, or GAJ as he was known here, is no longer with us having lost his long fight with the disease. I think he was probably the kindest and most worthwhile man I have ever encountered in my 64 years on planet earth. If he hasn’t disappeared into the oblivion which I think awaits us all and is actually floating around on a pink cloud that’s within earshot then RSF says “Hello mate, hope the cloud is comfortable and there’s something good to read!”.
Again, I wish you all a very happy Christmas and a much more settled (and entirely Trump free) 2019!
Love,
RSF
PS For years I had what I thought was irritable bowel syndrome. But it wasn’t because all the symptoms went when the virus did. Also, I am mildly asthmatic and believed that was why I got chest infections, needing antibiotics, every time I caught a cold. However I have had several
colds in the last two winters but no chest trouble, so that was hepc too. R
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Nick,
If you contact Dr Freeman via GP2U an online consultation is what will happen. The cost of this will be covered by the one off fee you will pay. It will be like a Skype conversation.
All the best,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Nick,
Welcome to this forum. Everything you need is here and some very nice people too. It shouldn’t take long to get the bloods you need and perhaps a fibroscan and then you can have a think about your options.
All the best,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hello Kaju,
Wishing you all the very best.
Good luck!
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Tracy,
Welcome to this forum. By now you will have seen the evidence given by Dr James and Hazel that this site is legit, as it certainly is. If you explore it a bit, I think you’ll see that it couldn’t possibly be a scam as there is far too much of it, with a long time line too, and it is also far too complex.
It is sensible to go into this with your eyes open as there’s a lot of nonsense out there in cyberspace but this is entirely genuine. You can get all the help you need here.
All best wishes,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Thank you for that Ariel,
I’m glad Guy’s last days were peaceful and that you were with him. The compilation of his supportive quotes for his sister is a really good idea. I’m sure it will help her.
Big hugs to you too,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hello all,
No longer being a regular contributor to this excellent forum, I have just seen that Guy (Gaj) has died. I didn’t know him personally but we exchanged a few PM’s which just confirmed what I knew anyway from his posts.
That was that he was a truly special man. Soon after learning that I was finally free of the virus I messaged him to let him know of my intention to continue monitoring the forum until he was too. I did this because I had come to love him and you all know why.
I thought he was in the clear until a few moments ago so this is a real blow, not only to me but to everyone here. I am selfishly relieved that in my last PM to him I told him what a good man he was, very directly, but perhaps that will be of little comfort to his family and friends who must be feeling their loss keenly?
I hope that they will find some solace in the understanding that his life and work meant so much to so many.
Of course his contributions to this space will continue to help people for quite a while, which is a lovely thought and the one I’ll leave with you.
RSF
PS I hereby give permission to anyone who knew him personally to reprint this post and to give it to Guy’s family and friends with my warm greetings. R.
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Vedruss,
I see you’ve got your meds now and have started taking them, which must feel brilliant. Very pleased for you.
Meanwhile, I was looking at your profile a moment ago and see that you had a biopsy in 2002, which showed some relatively mild damage. There is now a procedure called a fibroscan which is non invasive and gives a good idea of the state of the liver. It measures the elasticity of the organ from which can be deduced the degree of fibrosis (which is expressed in Kpa) because fibrosis makes the liver stiffer.
I wonder if you’ve ever had one done? If not, you might like to consider it. I say this knowing nothing about what tests are available where you live and whether or not you have to pay for them but if this test was done soonish and then when you get to SVR 12 as you almost certainly will, you would be able to see the current condition of your liver and to what extent it has repaired itself after you are clear of the bug, although the repair process goes on after that very often, if it needs to do so.
Obviously having the test will make no difference to your health but it would mean you were better informed about it. Clearly this assumes that you haven’t had it done already so if you have please forgive me for boring you!
All the best,
RSF
In my own case there was significant damage before treatment – the initial reading was 9.5 Kpa – but I now have an entirely normal liver and knowing that makes me feel very good! You can find out much more about this topic elsewhere on the site and in the forum, if it is of interest. R
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Oh that’s good Vedruss, it won’t be long now. Do please let us know how it goes from here and feel free to ask anything you need to know. Someone will be able to help, almost whatever it is.
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hello Vedruss and welcome to the forum. I had a (mercifully) short hiccup with the shipping of the drugs – security alert in India and then nonsense with UK customs – so I have an idea of how you feel but it’ll get sorted. My father used to recommend smashing eggs against a wall as a cure for frustration but I find being gratuitously rude to people who cold call me more satisfying………
Anyway, I wish you the best of good fortune through this process. You’ve fallen on your feet in finding this little haven in cyberspace. All the information you need to crack your problem is here and as you are already finding out, some lovely people.
I feel very lucky to have been pointed this way and am now both well and happy. No doubt you will be too in a little while.
Bye now,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hi Kaju,
On the basis of what you’ve said previously sof/dac is probably going to be best for you but a 12 week course of treatment would be preferable. 8 weeks may well work for you but statistically a 12 week period carries an improved chance of cure.
If your doctor will only give you an eight week course, because of his budget, you may want to consider contacting Fixhepc and asking if they could just get you enough for the last 4 weeks.
I know English is not your first language, so if you don’t understand please say you don’t.
All best wishes,
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
Hello Everyone,
Hope all of you will have a wonderful Christmas and a happy and healthy New Year. Mine is going to be a lot merrier this year: I can drink a little wine now!
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wksEOT 6/7/16
SVR 12
SVR 24PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
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