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  • 10 February 2019 at 8:58 am in reply to: Riba or not riba? #28982
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Hi everyone and thanks very much for your support.
    Sorry for leaving this post unattended for a while.

    UPdate: I was undetected on my week 5 under treatment and after a conversation with doctor James and my GP I decided to take the long way. I’m going to continue treatment with another 12 weeks. Being a self founded patience is hard so took me a while to decide what to do and get the money for it.

    Anyone in the forum that have taken the same path? 24 weeks seems like a long time but sometime you have to do what you have to do.

    Thanks Again

    6 January 2019 at 3:44 am in reply to: Riba or not riba? #28897
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Thanks for your words RSF, really appreciate it.

    I’m not sure about Riba yet because of side effects. As you said anticipation is worse than reality so the best thing to do right now is calm down and wait next week for my results.

    Thanks for the book recommendation, I will definitely check it out.

    Just one more thing, I don’t want to sound negative on my treatment outcome. I think this new medicine are a great scientific breakthrough. It just the access to all this information and different opinions is a bit overwhelming sometimes. I really trust my GP, he was recommended to me by a HepC organisation so i have not doubt he knows what he’s doing.
    Anyways, as you mentioned I need to keep a positive mind in this journey and I will.

    Thanks for the support

    Chris

    6 January 2019 at 3:26 am in reply to: Riba or not riba? #28896
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Thanks for your reply DrJames

    The side effects of Riba scares me because Epclusa has not been pretty so far. More tiredness would lead to inability to do my job and I can’t allow that in my life right now. I would prefer extend the treatment if necessary. Too many questions and so little answers.

    Looking forward to discuss this privately DrJames

    Thanks

    Chris

    3 January 2019 at 10:06 am in reply to: Riba or not riba? #28886
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Thanks very much DrJames

    I think my options now is to add Riba half way treatment or not to add it. My question is should I add it regardless of my results next week or only if I’m not clear?
    This is important in term of timing because if you think I should take riba regardless of the results I can order them right now and start taking them next week.
    Answering your question, I’m in Australia but I self funded my treatment. My experience ordering 12 week Epclusa was very good in terms of I got them on my door 8 days after I put my order.

    That leads me to another question, do I need prescription from my GP to get Riba? How are Riba’s side effects compare to epclusa?

    Very confuse right now so I would really appreciate your help

    Thanks very much

    Chris

    23 December 2018 at 3:44 pm in reply to: Flu during treatment #28851
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    My update DrJames,

    I feel much better than yesterday but still coughing with no pain now . Feeling a bit light headed too but less than before. Congestion still persist.

    What do you think?

    Thanks in advance

    22 December 2018 at 12:01 pm in reply to: Flu during treatment #28850
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Thanks DrJames, I’ll let you know

    22 December 2018 at 11:22 am in reply to: Flu during treatment #28848
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Hi DrJames

    I’m in australia.

    I’ve been told for my GP that side effects last a month in most cases. What is your experience?

    If we set up a “miserability ” scale where 0 is not miserable and 5 fully miserable, i would say

    Treatment start on the 6th of December = 1-2 (I wasnt felling ok already)

    First 2 days = 1-2 (Nothing changed)

    From day 3 to day 10 = 2-3 (Feeling very tired at the end of the day for 2 or 3 hrs only and back to 1-2)

    From day 11 to 14 = 3-4 ( everything I felt before plus joint pain and general flu-like symptoms)

    From day 15 to 16 (today) = 4-5 (Basically in bed with a cold/flu, cough with chest pain and mucus in my nose but not runny nose (make sense?))

    What do you think DrJames? How i said I have had the same type of cold/flu before and what happens is the symptoms go away after 3-4 days but the cough stays for a couple of week but much subtle with no chest pain. Now is different because of the “Miserability scale”. If the actual flu goes away I may still feel flu-like symptoms because of the DAA so how can I tell what symptoms are produced by each factor?

    very confused at the moment

    I hope you can help decluttering my thoughts

    Chris

    22 December 2018 at 10:25 am in reply to: Flu during treatment #28846
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Hi DrJames and thanks for your reply.

    The mucus is green (light green)
    I started taking Paracemol 500 mg 24 hrs a go
    I have fibrosis F3 produced by Hep C

    I have had this type of cold/flu before with mucus on my chest. The last one was maybe a year a go. Pretty much every time I get the cold/flu is with cough and chest pain. In saying that, I get it no more that once a year.
    I should mentioned that I do smoke but no more than 3 or 4 a day.

    My main point is if the fact that I got the flu affects my treatment in any way?

    Thanks again

    Chris

    21 December 2018 at 10:19 am in reply to: Flu during treatment #28839
    RockHard
    • Topics: 2
    • Replies: 9
    • Total: 11
    • Acolyte
    • ★★
    @rockhard

    Thanks very much Hazel for your quick response. Yes I’m feeling all the normal symptoms of a flu plus cough with mucus but no runny nose so far. Is it paracetamol safe to take? I have fibrosis F3 so I dont want anything that could affect my liver. Anything else that I can take for flu Symptoms ? Cough syrup maybe?

    Thanks again!

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