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Viewing 10 posts - 1 through 10 (of 10 total)
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  • 1 August 2016 at 12:42 pm in reply to: Sofosvel (velpatasvir) #21750
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    I gotta say congrats to Beacon for releasing Sofosvel. I am amazed at how quickly they got it out and well done to James for the presentation on world Hep day. I bet Gilead shat their pants

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    25 January 2016 at 6:41 pm in reply to: Sirs treatment journey! #10404
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Hey Sirchinenge, how r u doing ? I guess u should be finished 12 weeks by now. R u going to do another 12 weeks? I am starting my twelfth week of Sof and Dac and was undetected at 4 weeks. Take care man ! Sean

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    17 November 2015 at 6:17 am in reply to: Mesochem #4075
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Just a quick update : I went to Australia and got Sof and Dac thru the buyers club. Am back in Ireland and have just completed week 1 of treatment.

    Apart from a couple of very lucid dreams the first two nights, I haven’t had any side-effects and feel absolutely normal.

    I guess it will take 2 to 3 weeks before I am saturated with the drugs and then I will see if there are any sides but for the moment, things are fine.

    Bye for now : )
    Sean.

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    7 November 2015 at 11:23 am in reply to: Joan Started treatment #3465
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Well done Joan ! Wishing you a smooth side-effect free journey. From what I have read, some people can feel a bit flu-ee ( is this a word ? ) for the first few days and then it lifts. Good luck :) Sean.

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    6 October 2015 at 6:29 pm in reply to: Ledipasvir or Daclatasvir #1935
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    For anyone looking for info about Harvoni treatment and side-effects, there is the Harvoni Support Group page on Facebook. Many, many reports from people currently undergoing treatment, mainly in the U.S. It’s a private group and you have to apply to join but well worth it. Good luck, Sean : )

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    26 September 2015 at 8:45 pm in reply to: Mesochem #1489
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Hi Sirchinenge. The consultant said he couldn’t because there would be a legal trail back to him – coward : ) and yea, I have sent an email to the good doc and I’m just waiting now for him to reply. Any progress with you ?

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    26 September 2015 at 6:36 pm in reply to: Mesochem #1487
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Just a quick update : I saw the consultant on Thursday. Bad news : he reckons I won’t get Tx with Harvoni for another 2 years. Also, he would not write a script for me. Good news : he is willing to monitor me and my G.P. has written a script : )

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    23 September 2015 at 6:30 pm in reply to: Mesochem #1457
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Thanks Sirchinenge, Dointime. Wilko and Emilio. Lots of useful info. I got a call this morning from the Irish Medicine Board (H.P.R.A.). They say no way to importing A.P.I’s for personal use. Would have to have a manufacturers license. Only way is to bring them in in tablet form. Good luck to you all with whatever way you do it and thanks again for the advice.

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    22 September 2015 at 7:46 pm in reply to: Mesochem #1432
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Hi Dointime.

    Thanks for your reply. I would be travelling via London anyway as there are no direct flights from Dublin. It is legal to bring 3 months worth of meds into Ireland from abroad so long as you have a script and you are carrying them with you. It is illegal to have them sent through the post or by courier or to buy them online. I am going to get back onto the Medicines Board and see what they say about API’s. Will let you know what they say.

    Anyway, it seems like there are some options : whether it is getting the stuff from the Buyers Club in Oz or getting it sent to a mate in the U.K. or even getting generic Twinvir from Bangladesh – every day it changes. The genie is out of the bottle and Gilead are not going to be able to stop it now ! At least I hope so ;)

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

    22 September 2015 at 7:01 pm in reply to: Mesochem #1430
    Sean
    • Topics: 1
    • Replies: 10
    • Total: 11
    • Acolyte
    • ★★
    @sean

    Hello everyone.

    I am Sean from Dublin. I was diagnosed with GT 1a and a Vl of 2m. in 2008. I did Tx with Interferon and Ribavirin in 2010 – it didn’t work. I have been waiting for Harvoni to come on stream with the health service but it looks like I will be waiting a long time as I am not sick enough in that I don’t have cirrhosis yet.

    I have been following Greg from Tasmania’s progress for months now and was planning a trip to Delhi to get generic Harvoni but now it looks like that has been delayed indefinitely. So, I have have been checking out getting API’s from Mesochem. They sell Sofosbuvir and Ledipasvir. I sent them an email last week telling them I am in a medical research project (Greg’s suggestion). I got a reply and they can sell me what I need : 35 grams of Sof. and 8 grams of Ledi. for $1941 = €1743. A return flight to Beiijing is €450 – €500 – a lot cheaper than I thought it would be.

    I have an appointment at the liver clinic with the consultant on Thursday. I might run this idea by them but somehow I don’t think they will approve. I am also trying to get my G.P. onside in the hope that he will write me a prescription because I have been informed by the Medicines Board that it is illegal to get prescription medicine sent through the post to Ireland. However, if the medicine is in the form of API’s, rather than packaged tablets, then I don’t know what the law is.

    I am ready to go next week to Beiijing. I just want to be sure that if I get stopped at customs that they won’t confiscate the stuff. Any advice anyone can give me would be appreciated.

    Cheers, Sean.

    Gt. : 1a. VL : 2m. Fibro : F1.
    Dx : 2008.
    Previous Tx : Squalamine : ’08
    Ozone Therapy : ’09
    Int. & Riba : ’10
    Sof. & Dac. since 9th Nov.’15
    UND @ week 4
    12 week SVR at end of April ’16

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Viewing 10 posts - 1 through 10 (of 10 total)