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Viewing 15 posts - 1 through 15 (of 19 total)
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  • in reply to: Fibrosis F4 #30160
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi All

    I just wanted to share great news with you – my friend recently did fibroscan and the score is now 9,6 !!!

    For the comparison, his first fibroscan result was 23,4 :)

    I hope these results will give hope to many that it’s possible to get better and you should never stop fighting & trying!

    Thanks again to all of you for great support and kind words, it’s been very appreciated on this journey #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #30101
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi DrJames

    Thank you very much for your answer and confirmation, I appreciate that:)

    Stay safe & take care all of you
    :)


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #30090
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi guys!

    It’s been a long time since I posted my last message here…:)

    First of all, I’m sorry I’m not replying to any topic related to Covid and vaccination but I figured it would be better to post here since I’m asking on behalf of my friend who I wrote about here.

    Anyway, he has been wondering if it’s better for him to get vaccinated now, are the current vaccines safe for him, or it’s smarter for people with this stage of fibrosis to wait for (maybe) some better option?

    I know in these tough times the vast majority of us have been wondering about the same (vaccination in general) but maybe you guys have some opinion from the “fibrosis perspective”:)

    Thank you very much for any answer.
    Stay healthy!


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #28383
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi guys!
    I’m here to share some great news that my BF recieved a few days ago!
    He did fibroscan and he’s down from his previous 23,4 kPa to 11,2 kPa! He was also told that it’s expected that he gets even lower next year – hopefully that’s true!

    Also, he’s been virus free for more than year now and his blood results (ALT, AST etc) are regularly great.

    He’s been feeling amazing and even started exercising last year and he exercises almost every day, eats healthy and he’s not been smoking cigarettes for more than year now :+1:

    Have a nice day all of you and once again- thank you for your support through this journey #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26905
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    He had problems with gall stones few years back and they removed his gallbladder…

    I guess I’m gonna continue to search for an answer, maybe go through some other topics of this forum, anyway- thanks #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26903
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi James,
    thanks for answering.

    It doesn’t hurt to touch nor when taking a deep breath. It’s just a dull pain that comes and goes…when it hurts it helps him when he warms up that area (for example with a waist belt).

    Considering he succesfully finished the treatment, his blood results were great, he’s taking care of himself (eating well, mildly exercising…;) it just caught us by surprise. But maybe some pain after treatment isn’t completely uncommon?


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26886
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi guys!
    I was hoping there would be only good news to share since my BF has succesfully finished his treatment and achieved SVR12.
    But…
    He’s been experiencing some dull pain in his liver area last couple of days. He even said that he’s never felt that much pain before. And now we’re afraid and we’ve been thinking about what is causing it. As I mentioned in my previous posts he’s quit smoking and he’s been vaping for a couple of months now…Is it possible that the e-cigarette (specifically the propylene glycol contained in e-liquids) could be the problem? He’s also started exercising daily (couple of pushups) but that shouldn’t be a problem…

    If any of you have an answer or at least idea what could it be, please help.
    Thank you #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26760
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hello guys,
    I have great news, so I wanted to share them with you. :)
    It’s been 12 weeks since my BF finished treatment so he did pcr test and he’s NEGATIVE! If I understand this correctly, he’s almost 100% sure the virus is not going to return.?
    Also, he did blood tests and his results were:
    AST 20
    ALT 16
    ALP 93
    GGT 27
    cholesterol 4,63
    (3 months ago it was 6,61)
    HDL 0,76 (lowered from 0,87)
    LDL 3,22 (compared to previous 4,84)

    Oh and one more good news- he’s quit smoking! (he’s now a vaper)

    Have a nice day and keep fighting. #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26380
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Ok, thanks a lot! :)
    He would just exercise a bit at home, nothing major. Definitely won’t go nuts. :lol:

    Haha walking every day is a huge thing, you’re definitely not lazy! ;)


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26378
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi Gaj,
    thanks for your answer #flower
    Yes, it’s unfortunately very hard for him to stop smoking…that’s why he’s been looking for an alternative that would satisfy him without causing that much harm to his health. We’ll see about the e-cigarette.

    That’s great how much you’ve improved! I will try to convince my BF to walk as well. Until few years ago he used to do pushups, situps, lifting some light weights etc, but I assume that wouldn’t be so great for him? (Just to confirm.)

    Thanks again and have a nice day! :)


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26372
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi! Thank you! :)

    Raise the beneficial hdl through (1) excercise, (2) lowering trans fat intake (unhealthy trans fats are found mainly in partially hydrogenated shortenings), (3) moderate alcohol intake may help (usual advice is that if you do not use alcohol already then do not start). And reduce the ldl cholesterol through (1) increasing dietary fibre intake by eating more of the good stuff (legumes, vegetables, grain foods, fruit, nuts, seeds), and reduce saturated fat intake. (2) Loose excess body fat if you’re over the recommended body weight recommendations, (3) reduce sugar intake (remove sugary sodas, fruit juice, processed foods).

    Now that you’ve mentioned exercise, I’d like to ask if it’s ok -considering that he has cirrhosis- to exercise? Because he’s been avoiding exercise thinking he could worsen his condition.
    He eats well overall and he is at normal weight, hasn’t been drinking alcohol for over 20 yrs… His only problem is smoking cigarettes. He’s been talking about replacing them with an electronic cigarette but he’s not sure if the electronic one is harmless (especially for his liver).
    Thanks for all your answers and opinions, I aprecciate them very much. #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26370
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi, thank you for your answer!
    HDL is 0,87 (lower than it should be)
    LDL is 4,84 (higher than it should be)
    Sorry, I should have added these details.


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26368
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    For an overall picture, I’m adding his last blood results, they slightly changed.

    Previous results:
    Glucose 5,1 4.9
    Urea 3,4 3.9
    Creatinin 74 80
    Proteins 62 78
    AST 27 22
    ALT 45 24
    ALP 90 82
    GGT 101 44 :+1:
    Amylase 78 86
    LDH 186 159
    calcium 2.34 2,36
    sodium 141 (same)
    potassium 3.82 3,6
    chloride 104.2 101
    CRP 0.30 (same)

    Glucose 5,1 4.9 …….4,4
    Urea 3,4 3.9 ………4,4
    Creatinin 74 80……..(same)
    Proteins 62 78
    AST 27 22 ……..25
    ALT 45 24 ………28
    ALP 90 82………90
    GGT 101 44…….48
    Amylase 78 86……..77
    LDH 186 159……..191
    calcium 2.34 2,36……..2,37
    sodium 141 (same)……..142
    potassium 3.82 3,6……..3,90
    chloride 104.2 101………102,8
    CRP 0.30 (same)………0,32

    He’s been wondering if it’s ok that AST and ALT have increased a little bit?
    But all of the results are normal, except for cholesterol (6,61 – should be <5,2).


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #26300
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi guys!
    My BF finished his 12 weeks therapy and did PCR test that says he’s NEGATIVE! :+1: :)
    We were really happy to see that although he’s still worried about his F4 and doesn’t know what to expect. He’s planning to do Fibroscan once again by the end of the year. Hopefully we’re gonna have another good news to share.
    Have a nice day all of you and good luck to everyone who’s fighting this virus!
    #flower


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

    in reply to: Fibrosis F4 #25752
    SonjaTheGF
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @sonjathegf

    Hi guys, I’m here to give you some update. :)
    My BF did blood tests last Monday (40 days after 1st pill of Harvoni) and his results (in comparison with the previous results) were:
    Glucose 5,1 4.9
    Urea 3,4 3.9
    Creatinin 74 80
    Proteins 62 78
    AST 27 22
    ALT 45 24
    ALP 90 82
    GGT 101 44 :+1:
    Amylase 78 86
    LDH 186 159
    calcium 2.34 2,36
    sodium 141 (same)
    potassium 3.82 3,6
    chloride 104.2 101
    CRP 0.30 (same)

    And from 1 485 632 IU/ml to <12 ! :+1: :+1:

    We are so glad, we had to share it :) Have a nice day all of you!


    HCV genotype 1a
    Hbs and Hiv negative
    1 485 632 IU/ml —-> <12 IU/ml
    ALP 90 —> 82
    AST 54 —> 27 —> 22
    ALT 85 —> 45 —> 24
    GGT 114 —> 101 —> 44
    (above-mentioned improvement after 4 pills of Harvoni and then after 40 days)
    Fibroscan 23.4 kPa (F4)
    Harvoni 12 weeks – started on 16th of Feb 2017

Viewing 15 posts - 1 through 15 (of 19 total)