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  • in reply to: My first post,with questions. #29817
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Mar. It’s somewhat ironic that I’ve had more help from good people who I’ve never met than from my entire ‘healthcare’ team provided courtesy of the NHS, but there you go.
    I wish I had a doctor of Dr James’s calibre, his involvement in my case has been worth its weight in gold, I can’t stress this highly enough.
    Thank you for the details concerning origin and delivery of meds. In these unusual circumstances it appears little is guaranteed, although I would stress that that is only my perception of the U.K only.
    So it’s ‘onward and upwards’ for me thanks to all of you, I’ll most probably be back with more questions as I embark on my most important journey.
    Thank you again, I wish you well.

    in reply to: My first post,with questions. #29814
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Sven. Thank you for the encouragement,I really appreciate it.

    I’ve been talking to Dr James whose persistance has resulted in a 180 degree turn on my part.

    It now looks likely that I will shortly be becoming intimately involved with Epclusa.

    I am concerned with the availability of it given the current worldwide situation.

    I had a look around on here and found the details of costs for the combination but don’t currently know where (China or India) it’s actually coming from.

    Our postman has disappeared without trace and we’ve had no post here for over a week and the local office don’t answer the phone , ever!

    But, freshly spurred on I’m at least finally getting somewhere, persistance is my new mantra!

    Thanks again, take care.

    in reply to: My first post,with questions. #29809
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Fitz.
    Thankyou for your encouragement.
    I think I am resigned to the inevitable for a wide variety of reasons which I don’t want to burden you or anyone else with at this time.
    It is my intention to make this my last post here so please don’t waste your time and effort by replying.
    Best Regards Peter

    in reply to: My first post,with questions. #29801
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Dr James. I decided that before I spoke to you I would arrange for the various tests to be conducted first so that I would have all of the information needed. You may know that here in the U.K we have a two tier health service, the NHS and a number of private health providers. Because I am adamant that I will not have any involvement from the NHS in pursuit of treatment via this site I approached a number of private healthcare providers looking to happily pay for all of the tests required. I have found,to my dismay that this is not possible as every organisation I approached insisted that in order for me to give them money for their services I have to produce a letter from either my G.P or my current specialist. I know without asking that my specialist will not supply such a letter ( he refuses to see or talk to me following an exchange between the two of us), and my G.P. has formally refused to do so as I am, in his own words, actively upsetting the applecart. So no letter means no tests in the U.K.
    I am of course aware that it would be impossible/impractical to embark on any course of treatment in these circumstances so I have no option but to abandon the idea.
    I will take this opportunity to thank you for your involvement in my case and wish you well.

    in reply to: My first post,with questions. #29736
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Mar. Thanks for that information, it all helps.
    Now its a case of hoping your Dr James will chime in, I’ll practice twiddling things.
    Have a good day.

    in reply to: My first post,with questions. #29734
    teletubbies-10-ft-tall.jpgtellietubbie
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    @tellietubbie

    Hello Mar. Thanks for answering my questions, unfortunately they generate new ones. What is the purpose of the 2 sets of tests you specify? Are they essential? I ask because I live in the wilds and even attending a major city is problematic for me so if I can do without them I would.
    I’ve never had this itching before, it appeared out of the blue for no apparent reason, what I mean by that is that nothing (particularly diet) had changed to account for its appearance.
    I did 48 weeks with the big clunky hypodermics, Interferon alpha I think, that was bad enough.
    Then I was put on “opposition treatment” which used a different type of Interferon, that was the nightmare I never thought possible, I lasted 11 weeks and was taken off due to the side effects.
    So I’m not a fan of treating this disease, crazy I know but thats how its panned out.
    I’m praying that the itching disappears as mysteriously as it appeared, only time will tell.Everything is crossed.
    Thanks again, have a good day.

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