Forum Replies Created
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LondonGirl wrote:
I have been a silent witness to this, and its the reason I have done a story about it in a magazine here in NZ.
That’s awesome Tina, do you have a link? would to to read it
go that bread and butter pudding
Ha ha – I had one last night
[/quoteIts not published yet as its in a quarterly magazine for The NZ Hepatitis Foundation – when its out I will post it up
Hey FF TOTALLY can relate here – I chose not to have children because of HCV but now since I’m on the road to killing this cockroach of a virus my thoughts of having a baby are returning – or maybe its just the hormones singing……??
Just need to find me a good man now lol
Ariel wrote:Chejai wrote:Honestly LG, that’s disgusting but sadly, too familiar for me here in Oz. I’m glad you held your ground and got through it but this endless judgement, prejudice and obnoxious behaviour we have to endure is outrageous. We are meant to be in the PC era (Politically Correct) and get constantly bawled out for using inappropriate terms for bloody everything – yet, something like HepC we’re still treated like pariahs by so many.
The Liver Clinic I attend in the Public Hospital has posters everywhere about staff not accepting verbal abuse, threats, intimidation etc (fair enough) yet I’ve still had to endure some Specialists ‘attack’ me and the general Hepc patient population for our appalling ‘lifestyles’ and treatment of our bodies!
Aaaah, yes, it’s time to bring out the
I feel better already
Yes Chejai! So LG we too are treated appalling
I’m in the music industry as you know and also spent a lot of years at the coal face in classrooms
Also a coastal rural area
So I got dumped ‘on the bench’ in Trials Clinic waiting for the trial that never came. I will never forget the first day I went down that rabbit warren to the clinic located in one of our major public hospitals
The receptionist looked at me and omg I must have turned grey under my usual happy demeanour as she LOUDLY announced so the whole universe could hear ” I saw your name on the list for today WHY ARE YOU HERE!!!” Noice, yup I taught her kids eons ago and she lives locally. Cut to a few weeks ago and I received my sms reminder to attend at the clinic
Of course by then I was already up and running thanks to James and Greg here, so I rang up to ask if seeing I had commenced tx on generics were they happy to monitor me, a reaonable inquiry
The same receptionist upon listening to me responded “you WHAT!!! Oh No No NOOOO!
It spiralled from there into a very strange case of being told “how do you even know what to take blah blah …
Now I have managed in work, produced shows and dealt with many people so I know how to play the passive firm quiet game and held that attitude as I listened to this RECEPTIONIST rant away.
I haven’t ‘sacked’ them, and I didn’t get my script from them which is maybe a power issue, but the shenanigans at the clinic certainly aren’t professional; talk about over familiar!!
Re blood collection
What a disgusting experience LG I have read it twice just to get my head around it. It’s so true what Chejai says we are faced off with all these signs posted about conduct etc but hello please will you behave too when you’re poking around in our arms. It’s rank the treatment you got. My best friend is a path nurse. She would freak out at your experience LG
OKAY so to focus on something good
First bloods done you lucky
Waiting to hear how you go
Keep the posts coming LG I am three days behind you in tx and check in regularly xxxx
Thanks and yes my to add to the bunch [/quote]Hi Ariel this has happened to me TWICE! where I have been told about a trial and dumped due to unforeseen circumstance on behalf of the Pharma company – I was devastated.
Evening to you LG
Glad you weren’t turned into a pin cushion for your bloods – sadly I’m not the least bit surprised of how many here have experienced some form of judgemental behaviour by the very profession deemed to care for people with HCV. I have been a silent witness to this, and its the reason I have done a story about it in a magazine here in NZ.
Good on you for standing your ground and I’m looking forward to seeing your results. Nice to hear you are putting on some insulation
go that bread and butter pudding. 
Wow ladies there are so many good things that have been suggested here and totally agree with LG that its valuable information for all that are about to begin treatment who are tx naïve – and those who are treatment experienced in recovery mode after Peg/Int and are now embarking on treatment with DAA’s.
Oil pulling has been well recognised for hundreds of years and is proven effective in the management of gum disease (in particular with coconut oil as it has antibacterial properties).
I recall with clarity when I first found out I had HCV and finding out about PegIN and Riba I was terrified beyond belief and I don’t think I would of been able to remain working in my current role. I don’t think I’ve meet or talked to anyone who has done it that hasn’t had any long term detrimental side effects as a result..
P.S I’m definitely going to hunt down this Elemis frangipani Monoi oil – it sounds friggin AH Mazing!
Great news about the Redemption trials in the US!!!
Do you think it’s possible for insurance to pay for it?..(sorry I’m not that familiar with US health insurance policies)
Ariel wrote:This is my favourite place on the forum
That’s beautiful Em I am now off on a chillax exploring his tunes
Tina the Transvision Vamp clip brought back so many great memories
Let’s keep this great mix going ty Tina for playing door girl at the discoIts a pleasure!
