Hi FF

Nice to have you in this thread you are absolutely correct about the skin and kidney relationship (good advise about the brushing too).

I cant believe that your bleeding wasn’t taken seriously pfft……

I’m looking forward to when you start treatment, I sincerely hope you kick off in March with the PBS – if I remember correctly from your previous posts that you have been quite unwell thanks to this cockroach of a virus. If you are not treated straightaway then having the access to generics is a godsend.

I have emailed my specialist asking their advise on the dry skin and hair loss issues and whether there are products out there recommended to use.

Unfortunately for me coconut oil doesn’t work, in fact I get small histamine rashes after using it – I do like the look of the apricot kernel oil – might have to give that a whirl. I haven’t had any hair loss however my hair is VERY dry and brittle atm.

Another member on this thread had sent me a pm…. can you do it again? I tried to respond and when I did my reply seemed to disappear (I did see in the public chat that this happened to others as well)

For Gilead for who’s beds are burning.

https://youtu.be/ejorQVy3m8E