Hi Coral

I hope your treatment with the new scripts is going well & that your well on the way to being clear.

I am glad to have found this site & hoping that ityou can give me a few pointers in my search to be clear.

I am a 55 year old male, I think I picked up the HepC from tattoos when I was 18 or 19, it went undetected until I was 52, although I had been going to my doctors on & off for 20 year complaining of massive bouts of fatiguebrain fog and lethargy but they never found it, it was only by chance after changing doctors 3 years ago that I was diagnosed, Ive got to say strangely it was a great relief being diagnosed as I thought I was going mad for the past 20 years of going to the doc’s to be told we cant find anything wrong with you.

I was treated in the UK in the summer of 2016 with Harvoni, however I was only given an 8 week course, I suspect this was due to cost savings meaning they could treat 3 people for the price of 2, which is great when everyone treated is passed as clear. I was showing as clear after the 8 weeks of treatment but at 12 weeks the virus had returned & I am now left wondering if that extra 4 weeks would have resulted in me being fully cleared when I mention this in the hospital they seem to agree but wont come out & say it.

I went back to the hospital yesterday 1/11/2017 for a follow up appointment & they told me they are no longer going to treat relapses, again I would imagine this is due to cost although no one is prepared to admit to this as yet.

I am now not sure what to do or where to go with this, I’ve told them I am prepared to go to India to get medication but will need their backing I assume.

Another problem I have is that I appear to be too healthy, my fibro scan score’s are within the normal range so they are viewing me as being health & so they are unwilling to treat me.
I am not prepared to just sit back & let this condition slowly destroy me in the final years of my life, I have kids & grandkids on the way that I want to have a full & healthy life with them, I will not sit here & wait for the HepC to give me liver cancer or complications, I just need to get the right information & form a plan of action.

Thanks for listening & any help or advice will be gratefully received.

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