Trish - FixHepC

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30 May 2016 at 2:01 pm in reply to: Sorry, but Australia is going to have to be Geoblocked #18045
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
CJ you just said it so well!

I haven’t read here for awhile either and I’ve been sitting here reading and feeling just plain sad

Such a wealth of information on this site. It has been a highlight in my life to have seen such integrity, selflessness and the strive to help and save lives that I’ve seen here. All I can say is ‘hear hear’ to what everyone has posted, and thank you Dr Freeman for being a man of integrity, courage and for all you have given!

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
18 May 2016 at 4:17 pm in reply to: FixHepC – Party Playlist #17418
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Robert Plant still has that curly hair too
[video]https://www.youtube.com/watch?v=acX_2zkA0KA[/video]

Sarah Blasko – OutKast’s Hey Ya cover
[video]https://www.youtube.com/watch?v=Mf339KTTdUAau4gLnY[/video]

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
18 May 2016 at 2:48 pm in reply to: Poor man’s svr 4 results #17415
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
great to read

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
18 May 2016 at 2:45 pm in reply to: You can….. make a difference #17413
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Ariel,
It’s excellent how you’ve put that post together.
The figure 2 graph just hits you doesnt it.
If we think about what’s been said about North American, and half of the people with hepc don’t even know they have it and the recommendation for testing of people born between 1945 – 1965, imagine how much more the hepatitis line would rise.

In another one of your posts you had the name of the regional director of WHO Western Pacific. Thanks for that because it gave me the idea to send a letter to all of the regional directors.
http://www.who.int/about/regions/en/

I really think that’s about all we can do with WHO, just ask them to do all they can in the view that the cost of medication is now the crisis etc. I think Greedfighter has hit on the crux the problem with it being all tied to legality and patents. For that reason I still think WHO are quite powerless (sadly, like many advocacy groups etc) and I doubt there’s much WHO can do apart from raising awareness and asking for reform.

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
18 May 2016 at 1:25 pm in reply to: Afraid to take the meds due to severe anxiety #17405
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
I’ve only just read this thread and it’s such a beautiful read. Incredible support by everyone and way to go Hope with your perseverance and successv

This post by LondonGirl is just brilliant, love it, so positive & comforting to anyone feeling anxiety about the meds.

LondonGirl wrote:

I agree with Life, my biggest side effect has been cheeriness

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
16 May 2016 at 11:40 am in reply to: SVR 5 #17296
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
brilliant news!

the perfect opportunity for me to use the dancing banana as described in the ‘Posting Images’ topic too

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
16 May 2016 at 11:21 am in reply to: You can….. make a difference #17295
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
The Desert Sun article,
I had to join facebook to read the comments and unfortunately I wasn’t able to post because of my recency with facebook (my f&fs will be gobsmacked that I’m finally on facebook now, thank fixhepc for that )…
but I don’t think it needed further comment anyway because Price and hazelriannon totally nailed it.

______________________________________

Something I’ve been thinking since I saw the link to here in the comments………
Fixhepc comes up grey with a question mark with Norton because it’s untested. Maybe the same with Mcafee etc . For me it was never an issue because we had already met the good doc when we were fortunate enough to find him when seeking safe and affordable DAAs, but possibly it may have some people unsure.

It’s not a problem on ipad, phone or anything that isn’t running these antivirus software.

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
16 May 2016 at 10:51 am in reply to: You can….. make a difference #17293
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Ariel, I can’t express enough how impressive I find your work and effort with what you’ve posted, thank you heaps for all of your info

I read on another thread someone saying they would bow and kiss Dr Freeman’s feet and I thought yep absolutely, me too. And now I would add you and all on here to the action, HOWEVER I think yours and beaches would be the easiest due to your regularly soaks in ocean!
_______________________________________

They have Viral Hepatitis on the agenda for the World Health Assembly and the document reflects the concern, urgency, costs, strategy and planning etc etc, it’s just not specific and detailed about hcv and DAA costs but perhaps it cant be too specific re:naming companies etc, ). Hopefully more will come from it.

Provisional Agenda/documents
http://apps.who.int/gb/e/e_wha69.html

Document A69/31
• Viral hepatitis, 2016–2021
http://apps.who.int/gb/ebwha/pdf_files/WHA69/A69_32-en.pdf

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
16 May 2016 at 8:39 am in reply to: The Centers for Disease Control and Prevention (CDC) 04/05/16 #17289
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
excellent graphic Price, give me a graphic over words anyday, cheers

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
16 May 2016 at 8:30 am in reply to: Ethiopia, Kenya or UK doctor and import enquiry #17288
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Hello and welcome Deborah
The wonderful people here will help all they can with info and sourcing quality & effective meds.
It’s an amazing website, packed with excellent information and help.
all the very best to you.

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
15 May 2016 at 6:53 am in reply to: FixHepC – Party Playlist #17235
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
[video]https://www.youtube.com/watch?v=y9LgwGiZe8M[/video]

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
15 May 2016 at 6:50 am in reply to: FixHepC – Party Playlist #17234
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
thank you beaches & Ariel
I love this thread, I’ve got to hear stuff I’ve never heard before and love it

I havent heard Heart for years so a special thanks for that video

Heart – You’re the Voice (cover of John Farnham’s original)
[video]https://www.youtube.com/watch?v=HQNxrdlk7-g[/video]

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
15 May 2016 at 6:40 am in reply to: You can….. make a difference #17232
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Just something I want to explain further…

Whether I was directly effected by hepc or not, I genuinely would hope that I would jump on this wagon pushing for safe treatment for people with hep c and fighting big pharmas hold over health outcomes because of business greed. What is happening is just wrong on so many levels.

I also want to explain my frequent reference to “this could be any medication” further by pasting a copy of something I wrote in a message today…
“I totally understand what you’ve said about the DAAs, please don’t think I’ll lose focus of them being the most important issue. I guess I just believe that this situation has the potential to be the example/precedent to take on big pharmas hold on health outcomes because of greed for profit. Sadly their hold has been there for sometime and increasing. I’m a registered nurse and recently a friend told me about a patient that mortgaged her house for a cancer med only to pass away 6 months later. It is just f***** that society has allowed and continues to allow business profits to dominate. Also I have honestly found that people listen more if they hear the story about the DAAs and hepc as being something that could effect them with a cancer, heart or any med. I sorta think people can be apathetic, me included, and they tend to focus on what directly effects them, so if they hear about something in a way that they can relate it to themselves they tend to listen and want to get involved more, so that’s why I say it could be any medication… ”

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
15 May 2016 at 6:36 am in reply to: You can….. make a difference #17231
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Thanks greedfighter and same back!

If you ever come to Aus, we’ll toast the joy of life without hepc hey

It’s funny how lurking on a forum and reading posts can lead to a feeling like you know, like and respect so many people. There are many here that I’d toast for their efforts and celebrate their life without hepc.

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
15 May 2016 at 5:14 am in reply to: You can….. make a difference #17229
Tricia
- Topics: 1
- Replies: 38
- Total: 39
- Treatment Warrior
@tricia
Lol thanks Greedfighter , if that included a bottle of wine I might half be tempted haha
My wonderful husband loves a wine but for a long time now he has given up all alcohol and is leading an extremely healthy lifestyle. And even though he keeps saying to me to have a drink if I want and it wouldn’t bother him, I don’t because I just think its more supportive for me not to show him what he’s missing lol. Anyway, the day will come that I’ll have a toast with him to his health.

all the very best to you.

reg nurse and wife of:
genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
Oct ’15 – Dx hcc
Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

.
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