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11 July 2016 at 10:40 am in reply to: Article – Do doctors understand what helps HCV patients…. #20798
All good except that we are talking about 85% of Doctors who have always placed themselves at the top of the Totem Pole of Life.
The 85% relates to Police Politicians Judges etc which unfortunately for us is rising as the majority cannot be told anything and even when shown they are wrong continually deny. As for the corruption $$ side it is unfortunately likewise and it will never be anything but rising each year.
We are blessed to have Doc Freeman and the other Knowledgeable people on this forum as they are advising Listening and most importantly sharing their Newly discovered KNOWLEDGE for our benefits.
I have met quite a lot of Specialists and had 3 different Professors work on my case at different times but the 40 minutes I spent with the Live Liver Surgeon in India was the most helpful and Genuine.
I live by a few mottos such as we are all here to eat shit and die etc and Respect is Earned and if I am treated with Respect I will Respect them no matter what Position on the totem pole of Life.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
I personally would see out the full cycle and complete the 6 months or whatever was recommended by the Docs but we are all different.
I started my first sof/dac in Jan 2015 and I was und at 4 or 6 weeks but after completing in July it was back again after 3/4 weeks but pricks never told me till Sep 16th.Restarted with my own supply in Jan 2016 after being told I wasn’t able to receive anymore and that by Xmas 2015 I would be in Palliative care and dead by March 2016. But I am still going and if it wasn’t for the Huge Hernias in my guts I would be able to work again. I have been und for months and even off the oral chemo but I may take these miracle drugs till I die. I am now taking a third drug to see if it can stop it coming back and in 9 weeks I will stop for 4 weeks to get tested again but if it comes back I will take it forever.
Each case is different and we all have to make decisions for our own health and evaluate the advice we get from our Medical professionals. In my case this year had I listened to them I wouldn’t be here as I was told NOT to take the generic course but I know it has saved my life.
Hep C is a shocking disease and is extremely hard to eliminate 100% good luck to us all and Thank you to Doc Freeman and others who have shared their experience and knowledge for our benefit. It is people like Bill Gates who need to take the rose colored glasses off, and like mr pegetron and me gilliad have a red hot poker shoved up their asses.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Got back from Perth today after Spec and Clinic visit on 23rd, went to go 60klm to see my old Doc as she has been great when she was here. Got halfway and they phone and say she is sick etc, I was a bit pissed off but. My mate lives there and I was gunna see him but I couldn’t contact him as his phone was out. Sitting on the side of freeway and bugger me dead my Doc rings me text her address and said come around.
Went to dinner that night with her kids and friend and again Sat night, I had aball and even got down to see my mate and at his new address on the River. He is moving in but it will take him 2 months as he has heaps of gear to move. I have a heap of blood test requests forms and added the Testosterone to one which I will get done next week. My friend reckons 1 will be high and the other low she did say which ones but I am sending her a copy of the results.
I was a bit sore Sat night in my inner thighs but it is getting worse and now it has become a struggle to walk, can’t believe it. I dont want to take pain killers but I might weaken, just started enjoying my life again and another kik up the ass.
I have 2 motto’s 1/ We are all here to Eat, Shit and Die. 2/ You only get out of life what you Deserve. I was never an Angel but it hasn’t missed me.If anyone knows about the pain and what it could mean I would love to hear as I googled and that just made me more confused as I have 2 hernias in my guts with one quite large.
Good Luck All Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Interesting reading thank you
What got me interested initially was the increase in blood flow and after reading some of the articles and tests it seems that they are both very misunderstood drugs. No thanks to the German then USA and Russia getting juiced up to win at all cost Athletic Bodies.
My contact is going to check out side effects for the Liver but says from what he knows I should be ok to try it. The way I see it is I don’t have much to lose whether I take it or not, I have 10 weeks before I do so I should be able to get some good info.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Unreal Great News
Lets hope for many more
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
7 June 2016 at 11:47 am in reply to: Beacon Pharmaceuticals … Sof, Dac, Sof/Dac, Sof/Vel Combo #18599Bea, I would check with us customs and see if you need a specialists script or any doctors script. It surprised me that I could use any docs script in Australia.
If one doc wont give you one go to another as after all it is your life. Good luck
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
They told me I am hep c genotype 1a Cirrosis.
Pretty easy mob Darvoni to get answers from as emailed them yesterday and answers within 5 min all good.
Just need an australian script to get it through customs legally.
Regards Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Sorry Doc I think I better stop posting as I dont seem to make sense.
I only take 1 per day and my Doc/ Spec just wrote the script so i could get 12 months supply as the majority of custom officers wouldn’t really know the real dose.
Not 100% on what fibrosis etc as I get confused with the number and will check it.
Regards Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Yeah thanks I am glad it doesn’t effect sof/dac but it would be good to have less gut pain as I have an enormous hernia and a couple of smaller ones. I have swollen feet and legs and have upped my Frusimide .
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Just read this and it blows me away as when first told I had a problem was Dec 2012 and the Doc who was relieving was from Africa, nice guy but I couldnt understand one word he said. He gave me a letter to take to Perth and I was sent to a Plastic Surgeon who just laughed at first.
I told him i was having trouble swalloowing and sore around the throught area and Had read where Chris Munce and my Bro in law had cancer of the throught both very fit. He said his Secretary was phoning allk around Perth trying to get me in to see someone as he said the Scans showed trouble in the liver.
He then prescribed me Pantaprozille and I have been on it ever since, last 18 months twice a day. Should I just stop taking them and see how it goes.
I am on the least meds atm for years as at one stage I was taking 25 tablets and peg injections per day. now down to Sof / dac, 1x pantaprozille, 1x Rifaximin, 2 Fruisemide am and pm same except no sof/dac. I was given till March to live but I dont think they have a clue, even though I have been in a coma twice and hospitalized 6 times this year. Got so bad I was unable to dress myself make a cup of tea, put a seatbelt on unlock a door, shower. change a toilet roll make a sanga, fuk I felt useless. Lucky I didnt have Doc Nitchke phone #Been feeling good last 2 weeks and due down again on 23rd June for clinic, which is an absolute joke. You see someone new each time and they spend the first 10 min finding out what meds you are on etc then say see you next time the front desk will make an appointment for you.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
So I can import it into Australia as long as I have an Australian prescription.
I just thought when it said Darvoni wasn’t licenced it would be legal in Australia without one.
Customs told me that with the sof / dac I only needed any Doctors Script as I thought I needed a Specialist. I ended up getting a Specialist to write it and they put on it to take 2 morning and night and the Liver Surgeon in India had no problems getting that amount through him for me. It was ordered 11am and delivered to my hotel at 7pm that night by the rep.
It looks like I better check customs again as 2 different times I was told the above.
Thanks for the reply Doc.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
If the product is not licenced does that mean you dont need a prescription to import drugs to Australia. Cost is reasonable.
I paid $ 2700 usd for 12 months supply from Natco India so not having to fly over and get 48 weeks for $ 2800 usd seems ok.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
I have been told by my Specialists that I am ineligible to get the drugs on the pbs even though I am Australian and have lived here for 63 years. Because I failed a trial last year, when Hep C came back after I stopped taking the new drugs.
That was why I flew to China then India and secured my drugs from them in India at a reasonable price, I have been on them since Xmas and am currently Hep C free and no longer taking Nexovar either as the Liver Transplant guy in India even told me in December to not worry about Nexovar and make sure we knock out the Hep C first and that it is probably the cause of the Liver Cancer.My Specialists here in Perth tried to get me to not take the Indian Drugs saying all kinds of crap about how I dont know what I am taking etc. I didnt agree as just because it says Australian made doesn’t make it perfect. The Indian Surgeon was the first Doc to agree with me on my treatment, now perth has finally taken me off nexovar and currently I am on the least medication I have had in 3 years.
This last week has been my best for the year, even started driving my daughter to school and back, a big improvement as earlier I was unable to dress myself, make a cuppa, toast or even put a seat belt on. I felt like a piece of S…. and just so useless. Perth told me to stop taking the Indian drugs but I said No I will take them for life as I was only given till March this year to live. They still say I wont be able to get it on the pbs, as I failed that Pegetron crap and the new one after 24 weeks. But even if I have to get my Indian Surgeon to send them to me I will do it but I am confident I can get a specialist here to write me a script.
I hope you are correct in saying that it will be available to all Australians on the pbs as it definately works and sweet f… all side effects.
Good luck to all and hope everyone gets the opportunity to have access to these drugs at a reasonable cost.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
sonix wrote:Shit. Sam the eagle.
I can see their point of possibly considering parts of the site as advertising, in that it espouses the benefits of medication and offers a source of supply. This follows the letter of the law but ignores the spirit of humanity. That the law is inflexible and could be seen to inhibit positive outcomes is not something we can change easily or quickly, and is certainly not the only law we have that fails to consider the value of borderline cases (ie. technically illegal but socially or morally beneficial).
Now that treatment is available at nominal cost to all Australians through PBS, the supply side of things is virtually irrelevant locally.
The site contains reams of information that is helpful or even essential for people contemplating or undergoing treatment. It is a tragedy to close off this info for Australians.Thanks again for your wonderful work, Dr. James, and I am very sad about this turn of events.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
Very sad to hear of your loss.
I have had a few dramas since we last spoke, basically I now have no Spec or help from my local hospital as they have said nothing they can do. My choice to tell them to shove it as I have had a gutful, I hope no one has to suffer what they have done to me. They have offered to give me meds to ease the pain and try to keep me as comfortable as possible.
I have started my 2 nd go at Sof and Del on Boxing day and hopeful this one is successful, I have 10 months worth so hoping I prove them wrong. Hope you start feeling better and be strong.
Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
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