I have just joined and very interested in what has been said regarding und etc.
I had a 48 week course last year under compassionate grounds and after 2 weeks I was clear, I completed the course in July 2015 and was pretty happy with the nil side effects and getting free at last. I had a Specialist meeting on Sptember 18th 2015 and In had 8 questions for whomever I got to see.
1st Q was can you give me an update on how I am going etc. Prognosis. His reply was I had 6 months to live and the hep c was back and had come back late july. I saw Red and absolutely abused him for not telling me earlier as one day in August my 11 yr old daughter was running late for school and raced in to brush her teeth. Later when I went to brush mine there was already a green one on the sink and I just thought thank christ i am hep c free. I had never spoken or saw this guy before and he fires back saying he is not impressed with the language I use and the way I speak, I lost it again and abused him some more calling him Gutless for not letting me know etc but the worst thing is that he had put my family at risk. He stated he was following the law in that it has to be face to face etc. one more flight to Perth wouldnt have killed me, I felt completely hopeless and shattered.
This is why I find this interesting when someone says why continue treatment, I now am being treated by a Live Liver Transplant Surgeon who is in total agreeance with me that we attack the Hep C first then even if the medication is too much we will drop the Nexovar first. So I purchased 10 months supply and starting on my 2nd week as I only got back Xmas day and have a couple of massive hernias to struggle with atm. I would be prepared to take it for the rest of my short life I have left if it meant my family is safe.
Anyone else having a 2nd go at the miracle drugs I would love to hear what you have been told and where you are at with the hep c.
Regards Barry