hk - FixHepC

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22 December 2015 at 3:06 am in reply to: Background info on Sussan Ley’s announcement #7019
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
mgalbrai wrote:

Now it will interesting to see what the PBMs in the U.S. can negotiate. With our murky importation laws and no Dr. Freeman to pressure Gilead, the 3 plus million may have to continue to innovate or, as many promote, wait.
And get sicker…
And die…
Mike

Hear you, Mike. No matter what has happened in Aust, the fact that Gilead makes 50% of its total profit from Sovaldi alone and the US being by far its most lucratove market, shows how vital the continued supply of generics are. You guys need that pipeline to stay operational now more than ever.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 5:33 pm in reply to: Background info on Sussan Ley’s announcement #6967
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Yep sonix…think 1990 was the first year there was a screening test for hep C anyway. And I was never any kind of viable candidate for the Int/ribas tx because of my psych history.

Sorry to hear about your mate…at F4 they have little time to wait for the PBS. I hope they come around to that view asap.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 4:25 pm in reply to: Background info on Sussan Ley’s announcement #6944
zhuk
- Topics: 5
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- Total: 548
- Guardian Angel
@zhuk
True that, Jill. When I was diagnosed in 1990 I was (coincidentally) in a pretty bad state mentally, and couldn’t have cared less at the time about having hep. It took a lot of years to get to the point where I gave enough of a shit that I started to be concerned about my viral status. As you say, if people don’t care or are in denial, no amount of info about impressive cure rates is going to sway them.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 2:18 pm in reply to: Background info on Sussan Ley’s announcement #6910
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Chapel wrote:

About an avalanche of patients, I dunno, I had expected thousands to buy through Buyers Club back in October but it was a relative trickle of tens of people, although it has grown to thousands world wide now probably, still a fairly low response. There seem to be many people who know they have Hep C but won’t take action, even if it was free and in front of them. Many have been advised to wait. Members of this forum are the early movers.

True enough mate. Also its easy to be complacent when your symptoms aren’t particularly obvious – or if you attribute them to other causes.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 1:22 pm in reply to: Background info on Sussan Ley’s announcement #6901
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
flyingfox66 wrote:

I really don’t buy the idea that many people won’t want treatment. Of course they will!
They’ll be coming out of the woodwork in droves.
You’d have to basically be suicidal not to give it a go, especially now the community has formed so people can compare symptoms.
I’m not keen on being fobbed off with 8 weeks either.

And I would guess the $1bn previously allocated (and largely unused) to peginterferon/riba treatment has simply been swapped over to the new DAA’s.

As you say fox, if the Govt is expecting a slow, gradual take-up/demand for that 1 bil, they’d better think again.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 9:31 am in reply to: US Moderator announces our drugs are ILLEGAL #6879
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Takes the cake for unmitigated scaremongering, doesn’t it inch:

As if an online consultation is any different to seeing a doctor in surgery…WHERE YOU WOULD LIST WHAT MEDS YOU WERE CURRENTLY TAKING! Apologies for shouting heh

the….exasperation….arggh…lol….

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 9:12 am in reply to: Background info on Sussan Ley’s announcement #6876
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
There is absolutely no limit on how many people can be treated in any given year in terms of the government funding. Once the $1b threshold is reached the government stops paying for the treatment and the Pharmaceutical companies have to start paying for it. This is called the risk-sharing arrangement and they are locked into the arrangement as part of the negotiations.

If this is correct, they’ve agreed to fund all patients who fall past the $1bn/62,500 threshold…up to the total 230,000+?

Impressive…a world-first negotation re Gilead?

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 9:05 am in reply to: HCV-Related Nervous System Disorders #6875
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Yeah, I hear you on that Chejai – I’m optimistic after reading here too

Had all the investigations, ultrasounds etc which inevitably turn up nothing – but it must be just “getting old”? And like you, the symptoms seem to have ramped up in the past couple of years. Damn I’m still in my 40s and was pretty sure it wasn’t ‘normal’ to feel like this lol

This kind of long-standing viral infection has to have wide-ranging systemic effects, our bodies are under bombardment every day and can’t be expected to keep an effective lid on it indefinitely.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 6:51 am in reply to: US Moderator announces our drugs are ILLEGAL #6867
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Well I’m certainly praying, Mike! lol

Can’t wait for the next thrilling installment

Damned if I can find half these bloody threads though, that site needs a GUI bomb under it

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 6:05 am in reply to: Australian PBS listing in March! #6863
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Yeah I agree Chejai, the fact generics in general, starting with Greg’s pioneering journey, then Dr J and the club have been prominently in the spotlight to show up both the Govts inaction and big Pharma’s greed can’t have gone down well.

And they have their ‘eye on the 2016 prize’ for sure. All those moderate Libs newly elevated by Turnbull would definitely have that front & centre, just getting settled in their lucratively comfortable positions…nothing like a good news story they can ~~manipulate~~ milk in the run-up lol

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 5:08 am in reply to: 2 week blood work results #6860
zhuk
- Topics: 5
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- Total: 548
- Guardian Angel
@zhuk
2 weeks, woohoo! Awesome news spook

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 5:03 am in reply to: Google & fixHepC #6859
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Done

Refresh those caches!

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
21 December 2015 at 4:35 am in reply to: Australian PBS Listing – Follow the Money #6858
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
I think you’re close to the mark there, Chapel…what indeed makes Aust a standout case amongst the rest of the first-world, if we will really secure “universal access”? The whole deal can only be speculated upon; no doubt it comes under “commercial-in-confidence” provisions (alas no FOI here, Mike!), but yeah. Whole lotta underwriting for sure if so.

And what has Australia done to make it such a special case deserving of big pharma generosity? I think becoming a world centre for trusted generic sourcing has something to do with it. That and other promising drugs under development.

Well said.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
20 December 2015 at 12:03 pm in reply to: Australian PBS listing in March! #6812
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Don’t think its cynicism Lynne – its logic. Yes they are not putting “official” roadblocks restricting treatment only to the sickest (as elsewhere, and I agree Chester that this is a paradigm shift, well at least on paper)

However, in practice they mst be triaged supply purely due to the cost factor. The financial ability to treat only a relatively small proportion of the infected population means that everyone can’t get treated. Unless Gilead dramatically drops their price, the aussie $ skyrockets in value, or another much more affordable supply chain is found. Hands up anyone who thinks those are likely.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
20 December 2015 at 10:43 am in reply to: AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING #6804
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
It is an interesting question, Archer…I wonder if the various treaties/trade aggreements we are signatories to would compel the govt to stick with big pharma as the sole supply.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
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