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Just checked it out mike…even though I can’t post there, love your work heh!
And welcome honkers
It should be relatively straightforward to get here & get treatment, once you have the paperwork sorted…the advice on this thread has been spot-on. Best of luck and hope to hear about your journey(s) down under.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Gotta say even wiith a personal positive experience at RPA, my specialist explained they couldn’t write a script for me so wouldn’t be surprised if your rather more obstructionist doc won’t either, Chej. I’d guess that is some kind of political directive from above, as my doctor seemed quite apologetic.
It’s an academic question in any case – we are very fortunate to have online access to Dr James.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Seriously Chejai I feel like /headdesking on your behalf! inch:
Really mate you’ve shown the utmost patience but it sounds like you’re hitting roadblack after roadblock with the clinic. Yes the specialist is talking the talk but it seems that he is not prepared to walk it…no contact with the nurse about your case. And for all the candidness of the nurse, I can’t see how she can suggest that “nothing could have happened in 2 years” if you haven’t had a fibroscan. How could she know otherwise?
At this point I would just sign up with GP2U and go the Hepascore route to get current results…then Dr James can write your script, and get the ball rolling. Finally!
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hear, hear Archer….couldn’t have said it better
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Gaj wrote:Or me! I like Brussel sprouts, can’t wait for winter each year. Yum!
…..but I don’t boil them until they are grey and mushy and stink of sulphur like Mum did.
The horror….the horror….
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hi beaches, and welcome
The Buyer’s club is facilitating us to import the generic API’s (active pharmaceutical ingredient), and on arrival in Aust they are tested and enscapsulated by a compounding chemist. Read a bit on it in the blog section here
http://fixhepc.com/getting-treated/importing-from-china/chinese-suppliers.html
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hi Sue
The AFP test Dr James mentions stands for alpha-fetoprotein, which show tumour markers used to diagnose primary liver cancer; U/S is ultrasound…I’ve had a biopsy but not the AFP.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hmmm, maybe so heh
My mum grew up in the Depression so they was the inevitable “clean your plate because there are starving children in India” directive too
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Haha CJ, win!
I am an only child though, so it was harder to get away with things in general
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26CJ wrote:Thanks Paul, yes I’ll give him Vit C later tonight.
I suppose mung beans, brussel sprouts and spinach are all out as well
Hehe! definitely none of those foods!!!!
You know how weird it is, he won’t eat mango’s ( even a slither) or watermelon, or any of those nice summer fruits, he loves strawberry milkshakes & ice-cream but wont touch a strawberry.Oh…. just remembered, he has eaten little bits of pealed apple before if the bribe’s good enough.
….but that’s about it.
Kids, huh!
I guess gone are the days when you were told to eat what was put in front of you, or you wouldn’t get anything else…yeah my parents were very old-school. Consequently I have a deep and abiding intolerance of brussel sprouts, parsnips & turnips
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26I couldn’t find anything specifically on that one either, Cindi
But here is a complete rundown of all 156 drugs which interact with Harvoni: Hope you find something there, couldn’t see Brompheniramine.
http://www.drugs.com/drug-interactions/ledipasvir-sofosbuvir,harvoni.html
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26True, DT. The PBS has held out against Gilead’s (at least initial) pricing, otherwise a deal would have been struck by now. So I’ve heard they are attempting to negotiate one along the lines of what was brokered by France ($50-60K, instead of approx $100K) but if you believe the official spin that treatment with be universal, then whether it turns out to be $20 bil or 11 bil pricetag makes little difference – neither are in the slightest bit affordable, or thus likely to happen.
Interferon treatment costs roughly the same per patient, but the nasty sx profile and relatively low cure rate means the percentage of people treated has been minimal here, around 1-2%. Extrapolate that to the new DAA’s where people would be caught in the stampede to be first on the line lol…and there is no doubt it will be triaged here, as has been done in every other first world country.
Just a terrible position that due to all the financial wrangling & the PBAC’s insistence that tx be afforded to everyone, those who are sickest have had no help, and 2 aussies continue to die every day.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26You said it Paul. Yet the clinics are still hanging onto the fiction of universal treatment, against any even vaguely logical measurement of facts
Conclusion #5 was the kicker for me. Once I realised through the years of continually instructed waiting that even when/if approved, I’d be at the bottom of a 200,000+ strong queue…and one which is growing all the time.
Conclusion #5. If you are F0, F1, or F2, and your doctor tells you to wait, forget it. At current prices and current treatment rates, the queue in front of you is getting longer. As far as getting treatment through the NHS is concerned, you are “F-ed”.
My chances for treatment would have been pretty much nil, had I not been given the chance
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey Chejai, hope you get some movement on the fibroscan possibility, or if not arrange for your bloods re the Hepascore route. It does sound likely that your specialist was merely in PYA-mode, considering they were so well disposed to the idea initially. Fingers crossed its a bit smoother sailing for you from here on
And as for the trials…me, impatient? Lol
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Some really impressive results there Dr James, good to know that this dosage method is just as efficacious. Roll on the Redemption trials!
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26 -
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