hk - FixHepC

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15 November 2015 at 3:04 am in reply to: Emilio’s Place #3969
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Sorry if this is so, em, and you’ve lost friends and connections there. Did you happen to notice one of their mods joined up here last night?

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
15 November 2015 at 2:40 am in reply to: Emilio’s Place #3965
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Hmmm, so its not only me, em!

For whatever reason it might be and you are right it could be their site issues. I haven’t been a member there long and really just posted my opinions on the likelihood (or not) of universal PBS access, which is against the ‘Party-line’ I suppose. But your posts have always been straightforward and nothing which could be construed as inflammatory, far as I could see. Unless its a forum-stance to shut down anything positive re the generics, which would be pretty unfortunate. People need to hear there is an alternative, and how well that works.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
14 November 2015 at 4:05 pm in reply to: My twinvir story #3946
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Good to hear you’re over that hurdle, max.

Makes sense that depending on the individual it might take a bit of time for your system to settle into the meds…can’t help but wonder how I will fare in my journey, when I get to it heh. But all good.

Hope you feel better and better from here on mate

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
14 November 2015 at 7:50 am in reply to: Liver Clinics and Generic Rebels #3928
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
All the very best with it Lynne, and coral The road starts here and I wish you both a smooth one.

Hope to be following you all in a few weeks, with a bit of luck…I know that feeling of impatience heh.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 5:33 pm in reply to: Blood tests by post in the UK #3889
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
LondonGirl wrote:

Thanks zhuk – Hand and butterfly fail last time – No fun!
Still, next time water!

Argh yeah it isn’t!

Can I ask – do your veins come up OK or are they thin and hard to see? I don’t suppose an English winter helps. I had a pathologist try a surgical glove filled with hot water once to get mine to the surface lol

But it worked heh

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 4:44 pm in reply to: Blood tests by post in the UK #3884
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Just quickly chiming in here, don’t want to jump on your thread guys –

Can concour on the water…I am what’s commonly known as “a pathologist’s nightmare” in the profession, and if you have trouble with bloods then having it thick is only going to complicate matters. I also must get a butterfly every time (fortunately I can request one and explain and no one gets bent out of shape!) and in the back of the hand, which can be awkward. Only a couple of times have things gone pear-shaped – so I comisserate with you LG.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 3:16 pm in reply to: Pharma Scores Rap Drug Cover-Ups #3878
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Too right Alsdad…you would think this might come under the heading: ‘falsifying evidence’ (well In an ethical world)

Pretty appalling when people’s health and lives are dependent on the outcome

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 6:59 am in reply to: Australia and the ANZUS alliance #3833
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Definitely GAJ – corporate greed knows no borders.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 6:54 am in reply to: Treatment over waiting for SVR #3830
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
”James-Freeman-facebook” wrote:

Sadly, approving funding for only one drug doesn’t make it any cheaper for Government because the number of people requiring treatment is the same. Government pays a fixed price for a cure no matter what drug is used.

I would have to disagree with this. New Zealand uses precisely this strategy. Their policy is that we need 1 or 2 good treatments for this problem, not every treatment from every manufacturer.

This translates into a reverse auction where manufacturers are invited to submit their best prices to get and keep the Government subsidy.

New Zealand’s prices prove beyond any doubt that hard negotiation encourages Big Pharma to sharpen their pencils.

We pay 8 times more than New Zealand for the 73 common drugs – I am not making this up….

http://www.australianprescriber.com/magazine/37/5/150/1

The population of New Zealand is similar to that of Sydney. By rights we should be able to negotiate better volume discounts.

The cost savings to the PBS on this have been estimated to be more than $1 billion a year.

Very interesting link, thanks Dr James.

This is particularly pertinent – seems the majority oif drugs listed on the PBS are adjuncts to existing publicly-funded medications, not those which are “important therapeutic innovations”. And that NZ funds less of these adjunct-meds than we do, leaving more $ for other drugs with new therapeutic advantages:

Only a minority of new drugs provide a definite therapeutic advantage over standard treatments. Of the 217 approvals by the Australian Therapeutic Goods Administration between 2005 and 2007, only seven were rated as important therapeutic innovations.8 Most of the drugs funded in Australia and not in New Zealand were additions to an existing therapeutic class rather than new drugs providing important therapeutic benefits.4 New Zealand is less likely to fund ‘me too’ products.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 6:44 am in reply to: Australia’s rejection of costly new treatment 2014 #3827
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
There has to be a political component, I am sure…as you say its a disease most commonly affecting one of the most maligned/marguinalised groups in society – not really any vote winners on that score.

Have to think it could also be the numbers involved – not quite a quarter mil people – possibly new pricey cancer drugs aren’t necessarily going to be used on those kind of patient numbers (just talking off the top of my head here, no stats)

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 6:32 am in reply to: Treatment over waiting for SVR #3824
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Sure Seymour…why they will be forced to triage the meds, as every other Western country has had to do. Its never going to be universal access for everyone affected.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 5:42 am in reply to: Treatment over waiting for SVR #3820
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Believe they are in the same process as we are, re the new meds berrinice – but the Dr pointed out they are generally able to negoitiate lower pharm prices than Aust does…at least we could try his suggestion of not asking for all the new drugs at once but maybe a couple of start with, to keep the price more affordable.

And they are advising a 2-3 yr wait before expected approval of sovaldi + Intf/Riba, according to the hepatits Foundation of NZ

http://www.hepatitisfoundation.org.nz/index.php/hepc/treatment/

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 5:16 am in reply to: Treatment over waiting for SVR #3813
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Can imagine its an anxious wait, Seymour, esp with two previous treatment attempts. Great that you were able to get on a trial – and hopefully the 2wk undetected is a good sign for SVR.Fingers crossed for you

You are right mate – I hope the publicity and media focus is causing the Govt to squirm uncomfortably too, as it bloody well should. As Dr James has pointed out, no one in authority seems to be pulling their finger out in the way NZ does when negotiating meds pricing, to their shame.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 5:02 am in reply to: My twinvir story #3811
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Sounds positive Max, and you’re only a few days in so far. Hope you continue to feel better!

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
13 November 2015 at 4:57 am in reply to: Emilio’s Place #3810
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Chester wrote:

klhilde wrote:

What happened? Shouldn’t the cast be off soon? Did they do surgery?

Comes off Tuesday thank god. I can use it for a lot of things but the cast won’t let my wrist flex so still not much good for typing.[/quote]

Good to hear you’re on the mend mate…once the cast is off you should improve. I had shoulder surgery 3 months ago but unfortunately have nerve issues now, looking at MRI/nerve conduction tests in Dec

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
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