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  • 30 October 2015 at 4:57 pm in reply to: Can hep C cause strange symptoms? #3075
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Enkel wrote:

    Hi Zhuk,

    I am possibly 26 years carrier of hepc since being 6 years old doing two operation in hospital. I am F1 but have a lot of the strange symptoms.

    Are your symptoms migratory? Do they go from one place to the other?
    In some articles the hepc is related to psychosomatic illness.

    Hi Enkel

    Thanks for your post and your PM links too :)

    Yep as I mentioned I have ‘travelling’ pain and strange sensations, buzzing etc quite often at night which keeps me from sleeping sometimes. And its hard to tease out what could be the chronic pain and what could be the Hep C. I do get that “itching” sensation in the liver quadrant, is that also a thing with some people? Sometimes some ‘stinging’ as well, however a GP told me that wasn’t likely to be my liiver…which I found hard to believe as it is spot-on in the right area lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    30 October 2015 at 4:51 pm in reply to: Can hep C cause strange symptoms? #3074
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Alsdad, thank you very much for your reply. In fact that is precisely what I remarked to her – that even if the meds were approved surely due to cost it would be triaged and, as you logically point out, I’d have to be way back in the list. She then said, ‘Oh no, it would be available to everyone’ – which kinda negated my mention of the $3 billion cost which isn’t going to happen lol

    So yes…might be time to at least think about treatment. I have only come across this site very recently,. so its all a bit of a learning curve!

    Thank you again for your response, I can see there will be a lot to take in :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    30 October 2015 at 2:53 pm in reply to: Can hep C cause strange symptoms? #3068
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hi everyone,

    New member to the board, hoping I can learn more about the possibilities of treatment as they arise. Have been HCV positive since 1988 with Gen 1a and treatment naive, largely due to a significant history of depression & other mental illness aspects, which my Dr sees as pretty much contraindicating 12 months of the pegintf/rib combo.

    I’m also fortunate enough to have a F0 fibrosis score (2.9 fibroscan) and a VL only in the couple of hundred 1000s – not the most urgent candidate for treatment anyway, I know.

    However I do suffer from the sudden crushing exhaustion, dizziness, buzzing sensations, brain fog and general out of body detached feelings others have described here. Plus I have a significant chronic neurological pain condition of 14 years standing which flares up to the point that functioning can be difficult somtimes…and I think that there may be symptoms I’ve attributed to that which might really be due to Hep C (joint and muscle pain particularly)

    My doc (specialist at a major Sydney hospital) put me off the whole idea of accessing overseas meds at an appointment today, saying that the Govt will very likely allow the new DDA’s in from early next year – I have absolutely nil confidence that this will happen. In the meantime, I know that while not badly affected it is the back of my mind that the longer you have this disease (coming up on 30 years) the possibility that things could go south at any time. I am also mindful of the Govt/TGA finding some way of legally thwarting operations like the Buyer’s Club so none of us will have any recourse at all…I can’t see any of the treatments being passed by Federal Cabinet with a collective $3bn price tag.

    Apologies for the length of my post; having only found out the OS supply of meds recently its something in the back of my mind regularly now.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

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