English
×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Main Forum
Patient Stories
New to Forum
Hello to all my future friends
  • Page:
  • 1
  • 2

TOPIC:

Hello to all my future friends 7 years 9 months ago #19320

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Welcome Semisweet. I remember Day One - it's fabulous! B) Look forward to hearing from you along the way.

Coral #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: beaches, cheese, fitz

Hello to all my future friends 7 years 9 months ago #19326

  • rightsaidfred
  • rightsaidfred's Avatar
  • Offline
  • Premium Member
  • Premium Member
  • G3a infected 40 years ago
  • Posts: 94
  • Karma: 8
  • Thank you received: 326
Hello Semisweet and welcome,

Day one is a great feeling.

All my best wishes for a good outcome.
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: beaches, fitz

Hello to all my future friends 7 years 9 months ago #19327

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
I had water in the car. Left the chemist, back to the car and downed the first one right away.
On the road to a new world of feeling good
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
Attachments:
The following user(s) said Thank You: cheese, fitz

Hello to all my future friends 7 years 9 months ago #19341

  • fretboard
  • fretboard's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Defender-Against Big Pharma!
  • Posts: 175
  • Karma: 3
  • Thank you received: 340
Good for you semisweet and welcome to the forum! Glad to hear you got your Harvoni!!


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
Attachments:
The following user(s) said Thank You: cheese, fitz

Hello to all my future friends 7 years 9 months ago #19368

Thanks to all and glad to meet you!!! #flower

I thought I'd be posting on my first day. but I found myself needing some quiet time to really take it in - what this means, how long I've been waiting, and how I had resigned myself to not getting treatment..... and how scary that was. And now that it's here it seems too good to be true! Surreal....

I'm about to take my third one. So far, no sidesl, so different from the IFN/Riba poison. I'm elated, and in awe of this tx!
The following user(s) said Thank You: mgalbrai, Gaj, beaches, GT2, cheese, fitz, Sven

Hello to all my future friends 7 years 9 months ago #19419

Well! Hello semisweet! Love that monicker :lol:
See what happens ... a guy takes a couple of days off (away from this crazy world of electronic gadgets and such) and up pops another American :ohmy: we're kinda like weeds in the land of OZ. :lol:
Truly happy you discovered this place. You'll find you can't stay away. It's my home away from home. As you've already seen, they treat ya like family here and EVERYONE has a story. Thanks for sharing some of yours with us. Congrats on starting tx and TG for Dr. James and Fixhepc indeed! I know like the rest of us here, you'll want to spread the word to those of us whose "grains of rice" had to come from that rice bowl, because Gilead was too greedy to share from theirs. ;)
Looking forward to following your progress sis :+1:

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: mgalbrai, Meg, GT2, cheese, fitz

Hello to all my future friends 7 years 9 months ago #19474

  • CC2B
  • CC2B's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 173
  • Karma: 2
  • Thank you received: 300
Welcome SS and best wishes for a quick UND and SVR. Keep us updated :)
You can add your stats under your profile.
Best wishes for few or no sides! :+1: #flower #love
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google, GT2, cheese, fitz

Hello to all my future friends 7 years 9 months ago #19589

Hi Matt-Kenney and CCB2! Sending virtual hugs!

I'm on day ten. I had a really hard workweek...I've been working four ten hour days with three days off, by choice. i don't know if it was from the meds, but I just couldn't fall asleep for hours, and also had the dreaded wake ups and couldn't get back to sleep. I was crushingly tired all week, especially my last day. i really don't know how I made it through. So, I'm changing to four nine hour days and a 1/2 day on Friday. I think that extra hour at night will help me wind down. I've felt better over the weekend (got in some good sleep). Waiting for my burst of energy!!!
The following user(s) said Thank You: mgalbrai, beaches, Matt-Kenney-google, GT2, cheese, fitz

Hello to all my future friends 7 years 9 months ago #19592

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Hey Semisweet

I'm not a doctor but I do believe people who have gone through the previous regimes of Tx have a harder time of it initially. Your experience is certainly different to mine but hopefully the good bits will kick in for you very soon.

#flower :+1: :)
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google, Meg, GT2, fitz

Hello to all my future friends 7 years 9 months ago #19595

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
Hi semisweet,

Apparently insomnia is an issue for about 6% of patients while on Harvoni. fixhepc.com/forum/experts-corner/786-off...t-reports.html#12379

Hopefully for you like many others it will just be until you get over the novelty/excitement of commencing treatment. Giving yourself more time to wind down each night should help as you say (switch off the computer :P ) and depending on other factors you may be able to look at adjusting the timing of your medication. Here are some suggestions from Dr James.

fixhepc.com/forum/experts-corner/598-how...y-insomnia.html#8330
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: DrJames, mgalbrai, beaches, Matt-Kenney-google, Meg, GT2, fitz

Hello to all my future friends 7 years 9 months ago #19604

Hi Semisweet,
Sounds like what my doc calls "broken sleep". Work you ass off, go to bed and sleep great for a couple of hours and wake up at 2:00 am with a tired body and a mind in overdrive and toss and turn until its almost time to get up and drop off to sleep again. It was hell for me and left me tired, listless and cranky. About every fourth night I would simply pass out from exhaustion.
This started happening to me during the stressful fight for treatment and continued until about week 3 or 4, when my first great labs came back.
I have no tips on how to deal with it. I would say relax, but that sounds stupid.
Age, for me, is another factor. I just don't sleep as well as I used to..
The days get longer.
The years get shorter.
The sleep comes harder.
Then there's the peeing.....
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: beaches, CC2B, Fara, Matt-Kenney-google, Meg, GT2, fitz, Sven

Hello to all my future friends 7 years 9 months ago #19661

Yup semisweet,
What mgalbrai said ... :lol:
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: mgalbrai, Meg, fitz

Hello to all my future friends 7 years 8 months ago #20717

Well said mgalbrai!

And for me, add hot flashes to the list! Sigh......
The following user(s) said Thank You: coral, mgalbrai, Fara, Matt-Kenney-google

Hello to all my future friends 7 years 8 months ago #20734

Hi semisweet,

I'm happy you are starting treatment. You will be fine, your energy level should increase! On your way to the cure!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
  • Page:
  • 1
  • 2
Forum
Main Forum
Patient Stories
New to Forum
Hello to all my future friends
Time to create page: 0.422 seconds

Copyright © 2015-2020 FixHepC

Delivery Guarantee Privacy Terms of service
Back to Top