Great that you're feeling so good Ann. I'm sure your four week bloods will make you feel even better!

And great first bloods of your treatment John.

Hi, I'm a newbie, this is my first post, HepC profile below.

I have decided that rather than wait indefinitely for Tx2, I'm going to try to get Sof/Dac via the Buyers Club.
I'm G3, F2/3, so I shouldn't need RIBA, plus I had bad anaemia during Tx1 so would rather avoid it if possible.
So far I have struck out trying to get a script in UK, but still avenues available including the Manchester Clinic that people have mentioned in another topic.
I have a video appointment with Dr Freeman on 7/10, hoping he will be able to provide script & meds.
Will post again after appointment.


HepC Profile
Born 1954, male
Genotype: 3a
Infected: early 80s
Diagnosed: 2013
Treatment: 24 weeks Int/Riba 2014 relapsed,
currently waiting for Sof/Int/Riba treatment (12 weeks) on NHS
Fibroscan: 10.3-F2/3 in 2/2014
Latest Viral Load: 52000 in 6/2015
ALT, ALP & AFP all in normal range 6/2015

For anyone looking for info about Harvoni treatment and side-effects, there is the Harvoni Support Group page on Facebook. Many, many reports from people currently undergoing treatment, mainly in the U.S. It's a private group and you have to apply to join but well worth it. Good luck, Sean : )

hello & Welcome
I'm also only a few days old on this forum.

There are a few of us here Geno3 with exactly the same treatment history of Relapse after the old Peg/Riba tx.

It is disgraceful that due to NHS, NICE & the UK government incompetence we have no access to TX when ill, after paying lifetime of taxes & NI.
Instead we're forced to look for help to countries that are much poorer then the West, if we wish to treat now & not wait for cirrhosis.
This is very sad state of affairs & I feel seriously let down by the UK governments, NHS managers & their incompetence.

Good luck with the appointment with Doc Freeman,

Hi guys
I'm G1 and F1, viral load log Hcv Rna=5. Ast130 alt 350. and I saw most of the people on this forum are taking sof/dac combo . Ive prepared to buy the treatment but really can't decide which one to go.anyone on sof/led combo can share your experience?

Thanks
Elaine

I am G1a F2-F3

Going for Harvoni for 24 weeks.

What did your doc recommended?

Hi
Dr freeman recommend either sof/dac or sof/led 12 weeks
I saw sames like not many people taking Harvoni here . I can't decide which one ....

Hello, I am about to begin the 12 weeks of treatment using the Sofo/Dac sourced through Mesochem. Though I have found a doctor in Tokyo, Japan willing to take blood tests he is not very supportive and insists that I pay all costs - actually 200/300% of actual costs as I am not covered for treatment by health insurance as I do not have a prescription. Nonetheless, I am grateful that he is willing to do the tests so accept the situation. He has been pushing the Interferon treatment as it is covered by health insurance but I rejected that option. He is also very, very hesitant to discuss anything related to treatment so I am in need of some advice.

First, some basic background info.

I have had my initial blood work done and have had a CT scan showing no cirrhosis/fibrosis/fatty liver. He will not refer me to a hospital for a Fibroscan and I cannot access it without a referral. I did not have the meds tested for purity, etc., as it is not possible to do so in Japan but I believe them to be safe as many people on the forum are using meds from the same company.

As of two weeks ago some of my numbers were: AST = 45, ALT = 66., HCV = 5.6 L.IU/mL. All of my other blood work shows that I am very healthy for a 53 year old.

On to the questions:

The doctor has recommended that I have blood tests done every 2 weeks during treatment. This seems excessive as the norm seems to be after 4 and 12 weeks, then perhaps after an additional 12 or 24 weeks to confirm there has been no relapse.

1. Can anyone confirm how often I should have blood tests? Is there any value in having tests every two weeks other than perhaps after the initial 2 weeks to confirm no negative reaction to the meds?
2. What tests should be done other than the following: Complete blood count (CBC), creatinine level, calculated glomerular filtration rate (GFR), and hepatic function panel are recommended after 4 weeks. Do the same tests need to be done at 12 weeks or just a HCV viral load test?
3. What are alarm bells to consider with the test results in regards to stopping treatment other than if quantitative HCV viral load has increased by greater than 10-fold (>1 log10 IU/mL) on repeat testing at week 6 (or thereafter), then discontinuation of HCV treatment is recommended?

If anyone has detailed feedback regarding the above questions I would be very grateful for any assistance.

Thanks very much. Regards, Gary

Hi
When will u start your treatment?

As soon as I get my meds, now trying to get them.

Are you from Taiwan?

No , I'm in Sydney

Are you seeing a gastro doctor? Did he recommend you anything?

Will see specialist next month, I think he will ask me to wait for it to be put into the PBS list

Ask your specialist whether sof+dac or sof+led is ok for you

Mine told me sof+led that's why i am sticking to it

You dont have to wait for the PBS if you can get your hands on generic meds.

I had a liver function test to make sure I was OK. That was at two weeks. I was having some sides that worried me. All is good now and the results showed I was responding well..... My liver showed great improvement immediately.

I will be getting viral load done at one month. Unless there is issues with your health monthly should be fine as far as I know. I am no doctor of course.

Good luck.