Waiting is
so stressful
in my head I think that I know that I am ok
anxiety kicks in though and I acknowledge that my treatment has gone to plan and I am very thankful for that. What is it that throws me these negative and repetitive concerns through out my waiting, waiting moments?
so to a different clinic
last week I visited a gastroenterology clinic in the city recommended to me by a forum friend. I was given a comprehensive path request for a whole range of tests. I was booked in for a fibroscan and ultra sound. I asked my new doctor if I really did need to test for SVR24 and he tilted his head and looking at me said ‘ah no, not really’ and then said ‘ but I haven’t walked in your shoes’
so kind
he told me that 450 scripts had been issued via PBS from this Melbourne hospital so far and I thought to myself that wasn’t really many at all
someone close to me suggested that I might be suffering a kind of trauma of ‘aloneness’ signifying that since diagnosis I had carried this knowledge with me and told no one
so true
I’ve been thinking about this a lot because I was isolated in clinics and by doctors and felt
so traumatised that I couldn’t start my own blog on fixhepc because I was terrified
so many supportive friends here though, thank you
SVR24 means 99.9% cure and
and so the doc phoned today
and said 'I checked 3 times'
I held my breath
he said ‘can you live with out it?’
you are undetected
certainly you are ok
however believe it when I say that I will test every year
I recognize that waiting is a known given for all those of us with HCV and also for those as yet untreated and those retreating. I acknowledge the horrendous interferon experience that people have suffered through previous treatments
I think about the unavailability of these drugs across the world and the consequences
I wish everyone wellbeing and health
Thank you James and Greg and Fixhepc team also GP2U
so then I went for a walk and