Home Forums Main Forum FixHepC Admin I am struggling to negotiate the site

Viewing 9 posts - 1 through 9 (of 9 total)
  • Author
    Posts
  • #15963
    jstigwood
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    @jstigwood

    I need to order Harvoni to be delivered to the UK. I just cant find where or how do it please help!

    Also is the product insured in case it goes missing in the post?

    jon

    #15964
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    The Getting Treated drop down menu towards the top of the page will cover many of your most immediate questions but:

    For ease of UK access, probably your most suitable option is via the Redemption eTrials http://fixhepc.com/redemption-imagine-freedom-from-hepatitis-c

    These will result in supply of HCV generics manufactured by pharmaceuticals companies that are well known to the UK medical establishment for their supply of other generic medications. You will also gain access to the Monkmed team to provide HCV related medical advice during treatment.

    Please feel free to post in the forum if you have general questions that members may be able to answer while for specific Redemption trial questions your best option is to contact help@fixhepc.com


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #15965
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    You may also find this recent thread on the same topic useful.

    http://fixhepc.com/forum/patient-stories/854-has-anyone-used-the-buyers-club-from-the-uk.html?limitstart=0


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #15967
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    I’m pretty sure Monkmed guarantee to get it to you (they Fed Ex it) as part of the redemption trials. Also you need to start off by making an appointment to get your script from GP2U.
    Hope this helps.
    Any questions, please ask :)
    Cheers #flower

    #15976
    jstigwood
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    @jstigwood

    Thank you – I eventually found the redemption trial application link so my next question was how do I get the script!?! Do I have to pay for an on line consultation to get one or can my GP here write out a private script from the UK?

    Alternatively can my friend who is a doctor in Australia simply write me a private script?

    My hepatologist here in London has agreed to monitor bloods because bloody NHS England can’t get it together to offer everyone their legal right to treatment!

    #15978
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    The UK’s laws on import of prescription medications are quite liberal, the main issue seems to be getting UK doctors to write scripts. Your GPs script will be fine and I assume would be based your hepatologist’s advice as to type and length of treatment?

    Otherwise a script from an online consultation with http://www.gp2u.com.au or your Australian based doctor would also work. In those cases you would need to supply your medical history for HCV including genotype and liver fibrosis stage, etc.

    That your Hepatologist is prepared to monitor is great news.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #15982
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Really pleased that another person is getting NHS monitoring for generic hep c drugs! Yay! :+1: ( Wonder if your consultant went to the liver conference last weekend?)
    If you have to go through Gp2U for a script it’s very reasonably priced, can’t remember exact figure at the mo.

    #16008
    jstigwood
    • Topics: 1
    • Replies: 2
    • Total: 3
    • Novice
    @jstigwood

    Yes my consultant did go and he was also very impressed with fixhepc. I don’t think he can officially saction by-passing the NHS but is more than happy for me to use the generic versions from India.

    Even though NICE have approved the new Gilead high priced regimens in the UK, NHS England does not the budget to treat everyone, so it is being rationed on the basis of either those who shout the loudest – or those with higher fibroscans. Despite my LFTs and fibroscan being normal i suffer the most debilitating fatigue. I also keep suppressing my VL to very low levels – I yoyo from millions to (at my last count (10,000). there was one 12 month period in which I yoyoed between totally undetectable and a few thousand VL like clockwork every three months!

    My Doctor friend in oz is nervous about writing the script – is there anything he should know?

    #16009
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi there, don’t know of any Drs who will write the script in the UK, will PM you – Great re monitoring :) I wouldn’t push yr consultant too far .


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 9 posts - 1 through 9 (of 9 total)
  • You must be logged in to reply to this topic.