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rohcvfighter.
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22 July 2016 at 12:20 pm #21228
Yes RHF, there has been some debate here in the UK re this when some NHS England Drs have refused monitoring eg, One of my consultants included. Turned out his education was funded by big pharma, most of them, his blythe, arrogant attiyude was truly something to behold. Among other things shouting ‘YOU CAN WAIT’ at me
hmy: Thankfully there are more Docs coming around to the idea of monitoring here slowly, thanks to Dr F’s EASL presentation I feel, even though most are ‘incognito’ as they don’t want to get in trouble with the NHS suits. It Seems in the UK at least, it’s those invisible suits that are mostly to blame and the docs have to decide whether to risk being supportive. The ones totally beholden to big pharma, obviously don’t want to risk the comfortable lifestyle provided, but I now have a lovely supportive specialist Nurse / clinic thankfully. The Dr at the head of this dept. doesn’t associated himself with this as far a I know, after waiting over 3 months for my initial appointment on diagnosis, and trapsing to the hospital with severe back, hip & pelvic pain, he didn’t bother to even show up, leaving a note saying he ‘didn’t want to see me’ – Extremely distressing at the time.
Thank heavens for Dr F and Dr D hey?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC22 July 2016 at 12:48 pm #21229Many years ago my brother told me:
“In the race between the greater good and self interest, back self interest every time”
It took me a good 20 years to understand……
Sadly doctors are not immune to this.
At the moment I feel like the little boy saying the king – aka Big Pharma – has no clothes.
It’s only a matter of time before others see, but it is remarkably lonely.
YMMV
22 July 2016 at 2:41 pm #21230Someone told that it is always good to look in the history and learn from it.
Somebody else said that sometimes talking in metaphors helps in better understanding a delicate/critical situation.Regarding the Hippocratic Oath and the HCV patients, my metaphor is related to the solar system where:
– Life (or Health) = SUN (center of the solar system)
– The Hippocratic Oath = EARTH (the place where the patients and doctors are bounded via gravity)
– Intellectual Property = MOON ( a satellite orbiting the Earth and influencing it, via tides, from time to time).Hundreds/Thousands of years ago, people believed wrongly that the MOON and the SUN are somehow similar, having almost the same size. They were thinking this by looking with their own eyes to the 2 celestial bodies. In time people got smarter and more educated and noticed that in fact the celestial bodies are not so similar. People like Giordano Bruno knew about this truth and …. he was burned at the stake. (I hope this will no longer happen…..). Years later it was confirmed he was right.
In the HCV context, LIFE is and will remain always the center of our solar system and has the highest role / importance / meaning / INFINITE VALUE.
The Hipocratic Oath with its satellite (the Intellectual Property) are orbiting the LIFE. No one should claim or say that the MOON (Intellectual Property) is the same with the SUN (Life). It would be a fool to sustain such things.It will take however time until people will understand the real difference between Life and Intellectual Property, as it happened in the past with the MOON and the SUN….
Last but not least, in the days without clouds in the sky, whenever I looked at the SUN, it was always round and FULL in shape. But in the case of the MOON, I noticed there are days with FULL MOON, with HALF MOON, and with NEW MOONS. To me this means that the Intellectual Property should and must sometimes make a step back, while the LIFE will always remain/preserve the highest value!!!
Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved23 July 2016 at 9:51 pm #21284I tried to make a visual representation of the metaphor from my previous post …. I am not so skilled in graphics, so in case someone else might give a better representation, it would be great:
Making a parallelism between what people knew in the past about the solar system…..
and what (many) people think today when talking about the generic medication for HCV…..
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved15 July 2017 at 10:31 am #26583There is one doctor in Romania that I never met, but I like reading his messages on the internet, especially when he is answering to people’s questions.
I will not make an advertise for him, but I like a lot his answer to the following question as he is one of the very few doctors from Romania making such information available:
” Romanian text:
I: Am inteles ca exista mai multe medicamente generice foarte eficiente in hepatita C, ati avut bolnavi tratati cu ele, cum au mers?
R: Anul trecut am* urmarit cateva zeci de pacienti tratati cu generice si toti s-au vindecat, iar efectele secundare au fost minore, fara sa fie necesara modificarea tratamentului.
* am corectat o mica eroare de tiparire..
// english translation //Q: I understood there exist more generic drugs being very effective in hepatitis C, did you have sick people being treated by them, how did it go?
A: Last year I* followed a few dozen of patients treated with generics and all got cured, while the side effects were minor, without being necessary to modify the treatment.
*I corrected a small typing error.
”Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved -
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