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  • #28689
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hello,
    It is our goal, intention, to get this butterfly symbol widespread recognition as equalling Hep C .
    The World Hepatitis Alliance, No Hep has given me a place to talk about it this month- anyone you can think of that might help get it put there, please share.

    http://www.nohep.org/story/nohep-supporter-spotlight-hazel-heal/


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #28720
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Some more butterfly traction
    http://www.scoop.co.nz/stories/GE1811/S00070/changing-the-world-from-new-zealand.htm?fbclid=IwAR1n6MxPyRdLMkrmLG8Nq7frZgfvVO9DGaC3eOd7jTFrY5xVIio4uEfeJkA


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #28722
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    Great work Hazel, very very nice :+1:


    Making the world a better place – one patient at a time.

    #28723
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Hi Hazel,

    I’d love to see this message and the Butterfly spread throughout the USA. It’s so ironic that the country where all these cures originate from, is the place where patients have almost no access to treatment unless they are in an advanced stage of cirrhosis.

    My interpretation of the situation is that an organization would have to be based abroad, and then advertise the message in the media here via the New York Times or Washington Post. Any US citizen, under the current government, could face prosecution for somehow trying to profit, or to undermine the patents here. In the USA, a company can sue you and bankrupt you with legal fees. Or worse, have you found guilty of some kind of crime. America has become a fascist state. American patients need to know about generic medications!

    #28955
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    We have had a great boost for Project Butterfly this week, as first featured story in the World Hepatitis Alliance Hep Voice news.
    http://www.worldhepatitisalliance.org/sites/default/files/resources/documents/hep_voice_january_2019_0.pdf

    ScreenShot2019-01-26at11.06.40AM.png


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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