US Moderator announces our drugs are ILLEGAL

This topic has 363 replies, 36 voices, and was last updated 8 years, 5 months ago by Matt-Kenney-google.

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10 December 2015 at 10:05 pm #5838
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
wow, so here again, she comes out and misinforms the captured people on that forum that the drugs we have used here are
“ILLEGAL and PROBLEMATIC”….check out this ignorant drivel from the moderator on that forum:. The woman she was misinforming then said ” thank you, I don’t want to buy illegal drugs, I will wait”…..purposeful promotion of ignorance, I give up with those fools. Here’s the mod’s post below:

“I edited out the ‘how he got it’ part, and we will continue to do that when people who don’t seem to have the patience to go through what others have . . and ARE . . turn to illegal (in the U.S.) sources. The drugs obtained that way are potentially problematic and ‘we’ here, will not host the sharing of such ‘information’. You can try contacting him through the ’email’ or ‘PM’ links in his profile.

There ARE ways that may take a little time and effort, (and a positive attitude) for them to be available here, however, and we’re expecting them to be approved (application is IN) in the Spring.”

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
10 December 2015 at 10:16 pm #5839
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Well the ‘Generic’ thread I was posting in yesterday (where a few people had spoken up of obtaining their meds through the buyer’s club) has been excised completely now.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
10 December 2015 at 10:17 pm #5840
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
PFFF, not everyone has the time left to wait and wait.. How ignorant not to be open to proven generics.

YMMV
11 December 2015 at 1:07 am #5849
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Yes, just have to give up on them and let them ‘hug’ each other and WAIT and pray in peace., horse to water and all that stuff,
must be some kind of Australian expression for this kind of thing.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
11 December 2015 at 2:00 am #5858
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
So true Jan .

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
11 December 2015 at 2:33 am #5861
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Odd too, look at the last line in her tirade,

and we’re expecting them to be approved (application is IN) in the Spring

she’s either a spokesman for or very strongly self -idenitifies with Gilead
ah well…its going to take some kind of big public newsy thing in US to cut through this kind of misinformation.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
11 December 2015 at 3:05 am #5866
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
“people who don’t seem to have the patience to go through what others have . . “

I find this comment telling about the person involved, or am I wrong in reading an over controlling ‘you must take your punishment like I had to’ attitude into it?

I suspect in this case all we can do is work to grow the public information about generics enough that people from that site become aware of the opportunities through more open public media (big newsy things) and migrate to somewhere where they can get emotional support and valid information.

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
11 December 2015 at 3:53 am #5870
Chester
- Topics: 7
- Replies: 199
- Total: 206
- Guardian Angel
@chester
Except she didn’t have to wait. She got on what must have been one of the earliest trials back in 2012 or 2013. Oh and probably wasn’t all that sick. The person currently staying with me tried to get on a trial and said Gilead heavily cherry picked applicants to ensure the best chance of getting the results they wanted.

What gets me about these sort of people is that they fail to recognise we are all grown adults, perfectly capable of making our own decisions. How dare this interfering, patronising old bat presume to tell me or anyone else how to live their life.

Conversely, she’s clearly a god botherer and it’s perfectly OK for her to ram her religion down my throat in her sig. Believe in whatever imaginary being’s you damn well choose. But please it’s highly offensive to publicly force it onto others all the time.
11 December 2015 at 4:20 am #5871
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
They are not ILLEGAL, they are merely unapproved – 1:14

As true as it was then as it is now.

[video]https://www.youtube.com/watch?v=fvMPU0WaPcc[/video]

YMMV
11 December 2015 at 4:41 am #5872
Hieupham
- Topics: 9
- Replies: 50
- Total: 59
- Recovery Champion
@hieupham
I really do not understand why some patients have to risk their lives for WAITING…. As long as the drugs help, it counts. In the end, only the patients themselves feel the pain, not other people, not any legal documents, not the one who passes or fails the legislation, even the one who invents the medications…

HP

Nishkama Karma
C√πng nhau lo·∫°i b·ªè Vi√™m gan C tr√™n kh·∫Øp th·∫ø gi·ªõi!
11 December 2015 at 5:26 am #5873
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
This came to mind when I had read this thread “You can get busy living or get busy dying”

https://youtu.be/q6v_eSNVxec

SVR 24
11 December 2015 at 5:39 am #5875
tweakmax
- Topics: 18
- Replies: 238
- Total: 256
- Guardian Angel
@tweakmax
What forum is the usa moderator on
11 December 2015 at 5:47 am #5876
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
This one max http://forums.delphiforums.com/hepatitiscen/messages

Its an ancient dog’s breakfast of a format to negiotate, gotta say lol

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
11 December 2015 at 6:35 am #5879
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
If you’re thinking of going in there max, prepare to get chased away like the devil and after whatever you might post is thoroughly subjected to an exorcism, there will be a righteous sermon in its place, probably with some praise for Saint Gilead, the Savior….you might sneak something in late at night US time that might survive until she wakes up, looks like she resides in New Mexico, so about 2 hours behind New York time.

way, way back in the dark ages, it provided me with some useful information and I actually from what I read on there gleaned enough to decide I did not want to risk the interferon….but NOW, now its another story with the misinformation and scolding. …

So what’s the Australian saying for something like this, when you can’t get a fool to learn something obvious….gotta be something appropriate for this kind of foolishness, we would say something like, “can lead a horse to water but can’t make him drink”

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
11 December 2015 at 7:41 am #5882
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
May I suggest that someone asks this moderator to provide independent, documented evidence that has been presented in an appropriate publication eg: BMJ to support her notion that these medications are illegal….

Tina

SVR 24
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