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TOPIC: AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5675

Angus-Holley-facebook
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Well it has been a long time coming but announced on the ABC this morning the Turnbull government to spend $1 billion dollars on DAA'S. That is great new according to the regional hepc specialist for my area, the reality will look something like this.
It will take a minimum of 6 months to setup & start dispensing & due to the set amount of money allocated, it will be a case of prioritiesing. So basicly " sorry but come but when you are sicker".
Well this being what we are looking at, I would suggest the the whole "Sicker" concept is something that is hard to define & even harder to test for, considering it only relies real on to tests,
1. LFT -well we are all going to have raised levels, all good so far.
2. Secondly- & far more important to where you will sit on theses new waiting lists is the fibroscan, now for that you need to have a minimum score of 14.5 to be consideted cirrhotic now just say HYPOTHETICALLY & BE CLEAR NOW I AM JUST LETTING MY THOUGHTS DRIFT HERE AS I STARE OUT THE WINDOW ENJOYING THE LOVERLY VIEW, that you just happened to FORGET to not eat before the fibroscan, not only that you just happened to eat a medium size ( so it wouldn't show up in a physical examination) of particularly dense heavy food. You just might find that your fibroscan scan is worringly high requiring treatment as soon as possible.
Regards Angus

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5678

Joy
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Cheat to get higher up the inevitable list?

I'd rather pay for generics thanks. Simpler, faster, surer.

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5682

emilio Offline Moderator In the field of opportunity its ploughing time Posts: 382 Thank you received: 476 Karma: 8	The headline is tx for all, I would think not but hey it's a great thing. 1 billion is a fraction of what's needed. It will be interesting to know what the negotiated price is? That will determined the number of txs. At 50k it won't be a lot of txs. Em
	Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. The administrator has disabled public write access. The following user(s) said Thank You: mgalbrai, Ariel, zhuk

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5683

mgalbrai
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Well,
The PBMs in the U.S. get Harvoni for around $56,000. Maybe the fact Aussies can openly self-import, where we up here can'f, forced them to go lower.
I would imagine not that much lower.
Most insurers in the U.S. require Metavir scores of F-3 or 4 to cover treatment. Some require being on the transplant list. A few people can get it who are not so sick, but it takes a year or two in most cases.
Mike

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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5684

zhuk
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I think that headline is a plays-good-to-the-masses on behalf of the Health Minister, but cost will undoubtably triage supply - its just no "official" guidelines will state who can be treated and who can't. Just get to the back of a very long queue if you aren't very unwell.

And yeah em, I doubt we would have beaten Gilead down by more than 50% to any less than an amount comparable with France ($50K)

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5685

Paul-Jarman-facebook Offline Moderator The gypsy woman told my mother Before I was born Posts: 383 Thank you received: 660 Karma: 9	I think about 4k per year will get access to meds a long way short of whats needed.
	Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5686

mgalbrai
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Nothing like pricing a pill at a $1000 a pop and then giving the government a 50% off sale price. That makes it a steal at $500.
If they had a pair, they would give that money to the Doc and really make a dent in the problem
Go figure...
M

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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

Last Edit: 3 years 8 months ago by mgalbrai. Reason: Addition

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5687

splitdog
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Funny how that works.....

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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5699

Johnboy Offline Premium Member Posts: 91 Thank you received: 78 Karma: 1	It's a farce actually. One billion will treat everyone...... If the price of the pills comes down to $4500 Joke. France got it for $50k. If did a little better we can now treat........ Not 230k but 30k and that's over five years. Who are they trying to kid? Access for all is just BULLSHIT.
	G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015 Last Edit: 3 years 8 months ago by Johnboy. The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5705

Tina-Hill-facebook Offline Platinum Member Posts: 733 Thank you received: 1602 Karma: 8	Joy wrote: Cheat to get higher up the inevitable list? I'd rather pay for generics thanks. Simpler, faster, surer. Right with you there Joy!
	SVR 24 The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5715

Archer
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In view of Gileads track record - I wonder whether there are conditions other than price that have been agreed to in sealing the "deal". I think our rights to access generics needs to be safeguarded. As an exercise in fiscal responsibility and the dollars earned hard on the backs of working Australians - I wonder if there was any serious consideration given to sources other than Gilead.

Fem. Gen 1a.18.4 kPa. IL28b - CT. Cirrhosis 4B/c. MELD 11. Portal Hypertension. Ascites. Varices. (Gr.3). post surgical Coma 2011- Tx denied. 15/09 - INR 1.2 platelets 58 (150-450) albumin 32 (35-50) bilirubin 40 (2-20) ALT 183 (0-45) AST 281(0-41) GGT 39(0-45). Liver lesions AFP 16 <8.

Last Edit: 3 years 8 months ago by Archer.

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AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5719

zhuk Offline Platinum Member Posts: 551 Thank you received: 502 Karma: 3	It is an interesting question, Archer...I wonder if the various treaties/trade aggreements we are signatories to would compel the govt to stick with big pharma as the sole supply.
	GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5730

Tina-Hill-facebook Offline Platinum Member Posts: 733 Thank you received: 1602 Karma: 8	...... have Gilead share prices increased?
	SVR 24 The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5741

mgalbrai Offline Moderator Posts: 1327 Thank you received: 2703 Karma: 26	A measly billion dollars might cover upper management's Christmas bonus... Mike
	This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 The administrator has disabled public write access.

AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING 3 years 8 months ago #5742

sonix
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mgalbrai wrote:

A measly billion dollars might cover upper management's Christmas bonus...
Mike

That's probably too close to the truth to actually laugh at.

A bit later......... yes I thought I read something today. From Dr James' blog -

According to Reuters John Martin, CEO of Gilead Sciences, has taken home $400.6 million dollars between 2009-2013 and is on track to take home $600 million making him the best remunerated executive in the USA.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia

Last Edit: 3 years 8 months ago by sonix.

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