emo Hep C QLD Factsheet Draft

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6 years 7 months ago #1855

Hello,

Hepatitis Queensland is drafting a new factsheet about importing new hepatitis C medications in Australia. This is in response to many enquiries from members. The fact sheet is mainly intended for people living with hepatitis C. The secondary aim is to provide information to health workers who may be supporting an affected community member.

We need your feedback please. The information you provide can make a concrete and practical difference to the lives of people affected by viral hepatitis.

Your feedback may be published but your name and contact details (if you choose to provide them) will not be published.

1. Please click here if you would like to open a new window and look at our current draft of the fact sheet.

2. The survey is here: www.surveymonkey.com/r/HQDraftFactsheetHCVImport


I know the time allowed is short, but this is urgently required by those requesting guidance. Please provide your feedback before 9:00AM Monday 2 November.

Thank you for your time.

Regards
Clint Ferndale
CEO



(07) 3846 0020 I (07) 3844 8065 I infoline 1800 648 491 I This email address is being protected from spambots. You need JavaScript enabled to view it. 0417216761
Suite 2, 12 Cordelia Street South Brisbane QLD 4101 I PO Box 3490 South Brisbane QLD 4101

Hepatitis Queensland is working towards a Queensland free of viral hepatitis. Visit us at www.hepqld.asn.au
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Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
Last Edit: 6 years 7 months ago by Paul-Jarman-facebook.
The following user(s) said Thank You: DrJames

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6 years 7 months ago #1857

Just click the link and add a comment or 2 on the survey guys, we are well placed to give an informed opinion.

cheers


Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

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6 years 7 months ago #1858

Here is an interesting excerpt from the factsheet put out by Hepatitis Queensland
that may be of interest for those waiting for hep cures to be on the PBS.


"How long until these new
medications are free in Australia?
Based on current information, it is unlikely that the
government will fund these new medications before
February 2016. Some news sources have reported
that this could be pushed back to mid-2016"


Get your meds now and live!


Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise
Last Edit: 6 years 7 months ago by miko3. Reason: Grammatical errors

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6 years 7 months ago #1859

Hi Paul, for me the link went to 'We can't find the page you requested'.


NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.

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6 years 7 months ago #1863

Joy wrote:

Hi Paul, for me the link went to 'We can't find the page you requested'.

All Fixed thanks for that.

And while i'm at campaigning here is another from NSW www.hep.org.au/campaigns/

The QLD link again - www.surveymonkey.com/r/HQDraftFactsheetHCVImport


Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
Last Edit: 6 years 7 months ago by Paul-Jarman-facebook. Reason: Correction

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