Welcome, Guest
Username: Password: Remember me

Social Login

TOPIC:

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21011

Ok so I need to know if everyone who has posted on this thread is cool with me sending Felonuis Monk a pm via facebook of this thread?

I think he'd be rather inspired with it B)


BTW this is his Twitter profile pic - I really like this guy. :evil:




:idea: Be cool to get a Fix Hep C logo in the palm - then another pic of the Gilead logo on the bottom Then a cool blurb at the top Generic's VS Gilead as an example. Im sure there is enough collective thought to come up with something catchy.
SVR 24
Attachments:
The following user(s) said Thank You: Hieupham, rohcvfighter, fitz, nads

Please Log in or Create an account to join the conversation.

Last edit: by Tina-Hill-facebook.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21012

  • rohcvfighter
  • rohcvfighter's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Vindecat de HCV cu med. generice. Cured with generics HCV drugs.
  • Posts: 389
  • Thank you received: 1594
Hi Tina,

I would be fine :)

Thank you for this great and also funny idea,

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: Tina-Hill-facebook, fitz

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21013

What is life without laughter #love
SVR 24
The following user(s) said Thank You: fitz, nads

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21014

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Thank you received: 3082
I think Dr James has already made an approach hasn't he?
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: pat1

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21015

Hi Gaj yes he has.
SVR 24
The following user(s) said Thank You: fitz

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21039

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 605
  • Thank you received: 1811
Great idea Tina. I love Felonious Monk and his rants and I'm pretty impressed with your lead in words/lyrics! It would be pretty powerful to connect the two!
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Tina-Hill-facebook, fitz

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21041

Thanks Coral #flower

Ive got a couple of verses in my head which I was thinking of posting up however without the expression and nuances it will lose its punch.
SVR 24
The following user(s) said Thank You: coral

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 1 month ago #21049

  • fretboard
  • fretboard's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Defender-Against Big Pharma!
  • Posts: 175
  • Thank you received: 340

Tina-Hill-facebook wrote: Been having a few thoughts
This got me thinking that wouldnt it be awesome if this guy did a rant about Gilead vs Generics :woohoo:


Yep, great idea! Good for you!!


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
Attachments:
The following user(s) said Thank You: Tina-Hill-facebook

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 4 weeks ago #21207

Hey guys,

I have a relative living in Russia who happens to be a respiratory specialist. She works in a few hospitals and clinics etc. She's the type of doctor that will go out of her way to help. I know that she's seen quite a few patients come through who happen to have HCV and it's devastating because access to any treatment (even interferon :S ) is limited.
SO... I want to somehow help. What can I do? Is there an option of receiving generics in Russia or would it involve travelling to a nearby country? If I can pass on some information to her, I feel like it would help so many people, but I'm not sure where to start.
genotype 1a
viral load 160,000
age 29, F0, treatment naive, il28bcc
unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

week 4 - alt 12
week 12 - viral load undetected
svr12 - NOT DETECTED!
The following user(s) said Thank You: pat1, Ariel

Please Log in or Create an account to join the conversation.

Last edit: by Peach.

Spreading the news about HCV generic medication-place for ideas 6 years 4 weeks ago #21214

  • fretboard
  • fretboard's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Defender-Against Big Pharma!
  • Posts: 175
  • Thank you received: 340

cheese wrote: 2. I am having a few of Doc Freeman's published work on generics printed out and will offer them as reading material at public health centers where folks without insurance go to get help. (With permission of local staff)


I like this idea, Cheese, think I will borrow it and spread the word, if you don't mind. I can think of two clinics that are in my area, one is Harm Reduction Services and the other one is a free clinic downtown, not really free but close to it. Anyways, both have plenty of HepC patients who don't have any insurance whatsoever and would be really happy to hear they could possibly get treatment without the likes of Gilead in the picture!!! Not only that, the medical staff would want to hear about this as well, The doctors who work there care more about helping patients, than any regulations set forth by Big Pharma or insurance companies. I'm sure they would allow the information to circulate freely in their waiting rooms. ~Cheers!!

G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
Attachments:
The following user(s) said Thank You: Gaj

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 4 weeks ago #21215

  • Serg
  • Serg's Avatar
  • Offline
  • Senior Member
  • Senior Member
  • Posts: 72
  • Thank you received: 67
Hi Peach,

Probably, you can refer russian-spoken people to the big russian-spoken HCV-forums - hv-info.ru/gepatit-forum , hcv.ru/forum . These forums have channels for importing indian generics into Russia. Usually, indian generics are delivered into Russia from India via EMS speed post.
Probably infected in 1977
2005 - diagnosed with HCV 1b, compensated F4, 15 mln viral load, ALT 320
2005-2006 - PegIFN/rib 48 weeks treatment, relapse
2016 - compensated F4, MELD 8-9, ALT 100-160
2018 - compensated F4, MELD 8, ALT 91
The following user(s) said Thank You: pat1, Ariel, Gaj, Peach

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 4 weeks ago #21220

  • fretboard
  • fretboard's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Defender-Against Big Pharma!
  • Posts: 175
  • Thank you received: 340

Peach wrote: Hey guys,
I have a relative living in Russia who happens to be a respiratory specialist. She works in a few hospitals and clinics etc. She's the type of doctor that will go out of her way to help. I know that she's seen quite a few patients come through who happen to have HCV and it's devastating because access to any treatment (even interferon :S ) is limited.
SO... I want to somehow help. What can I do? Is there an option of receiving generics in Russia or would it involve travelling to a nearby country? If I can pass on some information to her, I feel like it would help so many people, but I'm not sure where to start.


The Redemption 3 (etrial) is available to all countries. If Russia doesn't block meds through Customs, then Monkmed will get the delivery done. There was a page that listed all the countries that Redemption had patients in, I can't find it right now, but check out the link. It explains everything involved in getting into the clinical trial. This is an fda approved clinical trial, all drugs are tested before delivery. You have to supply your own doctor to order blood tests and answer questions, maybe even write a prescription, I don't know all the particulars. The link has the whole story, my guess is your relative in Russia could help a lot. good luck

fixhepc.com/forum/redemption/203-so-what...ls.html?limitstart=0
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
The following user(s) said Thank You: pat1, Ariel, Peach

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 4 weeks ago #21221

fixhepc.com/blog/item/74-new-russian-for...tp-gepatitka-ru.html

Peach, Serg has given some good links. This is another Russian forum with similar goals to us. It also has doctors prescribing.
YMMV
The following user(s) said Thank You: pat1, mgalbrai, Gaj, fitz, Peach

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 3 weeks ago #21261

Wonderful, I have passed on information about the ILC 2016 presentation, fixhepc, REDEMPTION and gepatitka.ru/
She is going to share this with her colleagues!
genotype 1a
viral load 160,000
age 29, F0, treatment naive, il28bcc
unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

week 4 - alt 12
week 12 - viral load undetected
svr12 - NOT DETECTED!
The following user(s) said Thank You: Ariel, Gaj, Hieupham

Please Log in or Create an account to join the conversation.

Spreading the news about HCV generic medication-place for ideas 6 years 3 weeks ago #21288

Sorry Have not been active on this forum for awhile but have been active in telling my story to all that will listen via Facebook, in person, at needle exchange places in Boston and several other communities. Also participated in the redemption data collecting and also in a generic med study that was referred to me by Greg J. Sometimes I have been a bit disheartened that my story about generics and the buyers club does not seem to rev people up, but I know I made a difference in at least two peoples lives that were/are infected and had no idea about the generics that are available. My goal was to reach at least one person.

A bit of news from the lab in Bangkok this morning since my first blood test post treatment on August 29th 2016

HCV RNA (quantitative) result HCV RNA not detected. #flower #flower #flower

Physically I feel like the clock has been turned back five years to when I last felt normal. Am off on a motorcycle trip through Burma in early December, yes things are back to normal.

Have never met any of you folks on this forum in person but I can unequivocally say that I have the utmost respect for all of you. Your grit, determination, courage and humour in the face of this horrible virus and the horrible people that profit from it will prevail.

Cheers
Cheese
GT 1a
VL 4.9M
F0-1
Since Late 60's
Meds Cipla SOF/LED
Start June 7, 2016
The following user(s) said Thank You: DrJames, Chapel, coral, Ariel, Gaj, beaches, Hieupham, fitz

Please Log in or Create an account to join the conversation.

Time to create page: 0.068 seconds

Copyright © 2015-2020 FixHepC

Back to Top