Hi all. As part of a conference application for the middle of year, I have promised to put together a collection/collation of hepster stories, jokes, black humour, heart and soul, one liners, art, or poetry, media links- along the the theme of, 'I am here to tell you how it feels'.
Please help! email me any thing at all that occurs to you. There is no time, I will be pasting it together with some assistance. This email address is being protected from spambots. You need JavaScript enabled to view it.
Note:
*I will not identify anyone unless they expressly ask to be named, tell me what you would like as a credit, eg, funny joke from MG, USA, or whatever. If you want to send me someone else's great post you remember, do, try ask them yourself or I will just make it anonymous anyway. You can find past gems by a keyword or 2 in the search function top right. Just note the post number, or paste it to me or open it and send me the link.
*I won't be able to include everything, please understand, I will try, I am asking in several places.
* I need it finished by end of May and it is not really started! It is to go on display at the No Hep Village at next hep summit.
* I just plan to print a couple of copies, put together like a photo book, then will put it up online for everyone sometime this year.
I want to report on, for instance- What stigma, fear, relief, hope, etc feels like, in medical setting, family, personal, workplace. What a difference support on this forum has made. How the whole global transnational friendship helps- or not, what ever, tell me anything.
Thanks,
Hazel
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716