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2A treatment begins
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2A treatment begins 5 years 10 months ago #18862

  • SShady43
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Hi all,
I'm excited to say that after a few hurdles and months have gone by, I finally began my tx, 24 wks Sof/Dac + Riba last week. Day 6 today, and so far, so good! I got my meds from the wonderful and helpful Rachel at Mesochem ( smooth sailing getting them imported into the US; again, Rachel is the best!) FINALLY found a GP who was willing to monitor my tx. I was just too nervous to do this unsupervised because of the RIBA. So Doctor is on board and I finally got my husband to be ok with my going rogue to get my treatment as well. Hey, if this is what we have to do, yahoo, lets get this party started! I'm happy and excited to have this chance to clear this damn disease, but I gotta say, I'm nervous too. The highest my VL ever got after I relapsed was 2,600,000. Blood work done pre- treatment this time around says VL is 10,600,000. Wow.; that's a lot of virus to kill. ALT 32, AST is 29, so I don't think that's too bad; chin up. Staying positive and hoping for the best. Will keep everybody posted as labs come in. I see that many folks here have started or are currently on treatment now and are UND. So happy for you all, such GREAT news!! Here's to all of us who fight this battle. Praying good health for us all!
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 10 months ago #18863

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SShady, you have already had 6 days of that brew, and your viral load is already going to be absolutely slashed! Good luck.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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2A treatment begins 5 years 10 months ago #18870

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Hi SShady, my VL was also very high and it didn't seem to matter, my meds seem to have worked (UND at end of treatment, waiting on SVR12 in September)
Rotsa Ruck
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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2A treatment begins 5 years 10 months ago #18875

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Hey SS43!
Another "Ugly American" :lol: is on board the Hep C Fredom Train. Great news indeed. I too, was amazed at the ease of importation to US. Spread the the word! :woohoo:
I'm happy to hear you're already into day 6 with continuing, "smooth sailing"
My VL was at 13000000 and AST/ALT astronomical at, 162 & 241 respectively. At 3 weeks into tx, my VL was 138, that's not million, it was, one hundred thirty eight! My AST/ALT had dropped to, 27/31 respectively.
That was getting awfully close to UND at only 3 weeks. I'm just over six now and feeling really good.
As others pointed out to me back at 3 weeks, "The way it's going, in another week you should reach undetected." I don't know for sure that I have, because my doc wants to wait to EOT to initiate more labs, but I certainly feel like I could have.
Back at you on the good health to all wishes.
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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2A treatment begins 5 years 10 months ago #18890

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Hi Beaches,
Good to hear; best of luck to you as well!
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 10 months ago #18891

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Hey Matt K,
Niccccccccccccce numbers!!!!!! Best of luck to you as well; keep us posted!!!
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 10 months ago #18892

  • SShady43
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Thanks Hazel!!
Yes, it's quite a cocktail we've all mixed up for ourselves, huh??!! It still amazes me that us lay-folk can do for ourselves what the medical community and major drug manufacturers can't. When I do the math and see what the street value of these drugs are compared to what I paid for them, it's just obscene! Best of luck to you as well!!
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 10 months ago #18932

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Hi SShady

Does the double S signify your second attempt at slaying the stubborn little shit that’s refused to clear out?

There’s been a lot of success here for GT2s using Sof/Dac. The added Riba is no doubt because you have relapsed. I’ve got a gut feeling that you’ll win the battle this time. Good luck with your treatment. I look forward to following your progress.

I love your attitude and tenacity.

Cheers
GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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2A treatment begins 5 years 10 months ago #18976

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Thanks GT2!! I'll take all those good vibes you're sending and return some to you as well!!! I hadn't thought about the double SS for slaying "the stubborn little shit" disease, but perhaps I should make it so. Or simpler yet; Shit Slayer, lol!!
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 10 months ago #18977

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I like it lol Shit Slayer! :evil:
Welcome and congrats on starting tx :+1:
Best wishes for no sides and a quick UND :)
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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2A treatment begins 5 years 10 months ago #18996

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Sshit Sslayer it iSs Sshady

Ccould Ccoin HepCc Cconquerer for CC2B

Genotype 2 = Double consonants avatars

Must change to GGT2

:)
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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2A treatment begins 5 years 9 months ago #20247

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Hi all,
2A here again. I've been on treatment for 4 weeks now. Just had my appt with my GP on Friday and am tickeled to say that with a 10,600,000 VL to start, I am now UND! Whoop whoop! Staying positive and chasing away any thoughts of possible relapse; I have 5 more months to go yet, with a much stronger cocktail this time; Sof/Riba with added Daclatisver.
I have to say again to anyone in the US who is hesitating to go this route with generics. I got mine from Mesochem. It was incredibly easy to get them ordered, and they arrived in about 10 days. I got all the information I needed regarding compounding from the good people here on the Fix Hep C website. These lifesaving drugs are affordable. They are working. Please take care of yourself and DO THIS NOW!! and stay in touch with everyone here. There are true warriors here, and every one of them will gladly offer what they've learned and a kind word.
I'll drop in with updates as I get them. Sending out continued prayers for good health and UND's for us all.
2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.
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2A treatment begins 5 years 9 months ago #20258

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Wow - Awesome SShady :+1: :cheer:
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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2A treatment begins 5 years 9 months ago #20264

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SShady43 wrote:
Hi all,
2A here again. I've been on treatment for 4 weeks now. Just had my appt with my GP on Friday and am tickeled to say that with a 10,600,000 VL to start, I am now UND! Whoop whoop! .

Yay! Another American is showing UND!! Great news Shady and welcome to the forum!
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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2A treatment begins 5 years 9 months ago #20300

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Hey SShady. That is fantastic news. Thanks for sharing and just enjoy #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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