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Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14130
HI This is my first time on just about any forum!!! I have Hep c Geno 2b fibro scan 6 , viral load 1, 420, 000, log 6.15 I am just starting my hep c meds , 2 nd week April 2016, with the 12 weeks to go , -using solvadi and declatisvir, -and I have sourced the meds today from a compounding chemist, who made them into capsules. I am very thankful for the help from hep c forum, and hep c club generally, and gp2u doctors and prefered pharmacists , especially, - who assisted me with excellent information , giving me the confidence to decide on which treatment and how to go about sourcing treatment meds. If anyone is confused or feeling thwarted, try gp2u! -* I put off calling them for weeks due to cost , but it ended up being the best support , contact , and decision yet. Today, I was able to action and source the alternative, often mentioned as having less side effects i.e declatisvir /solvadi, after a month of frustration , trapped by lack of funds and conservative medical practitioners, who could only advise that the ' only option' for me was the Australian pbs choice for hep c geno 2, -solvadi and ribavirin. ( I was concerned about possible worse side effects from ribavirin) Saying that, if there had been no other choice really, and the cost prohibitive, I would have been humbled and grateful still to have any treatment rather than none (and so low in cost, on pbs and or health care card) and so would have bite the solvadi/ribarvirin bullet!! *I am aware this combo does clear hep c very well for many geno 2. As there are not many hep c geno 2's apparently , and this drug combo solvadi/declatisvir for geno 2 not exactly standard-as yet in OZ , I plan to share the journey re side effects and outcome, which I hope is helpful to others on their similar journey ☺ Regards Juen | |
Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14134
Hi Juen and welcome. You've made a wise choice in avoiding the ribavirin which I feel should only be used for more difficult to treat cases due to the side effects. It's a shame G2s are unable to access Daclatasvir as a standard treatment in Australia. Looking forward to hearing how your treatment progresses. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14149
Hi Juen-- another "exotic" 2B, eh? me too--I took the same thing you are taking with no ribavirin. If your experience is anything like mine, you won't have much to report other than probably being clear at 4 weeks or less and then you won't be "2b" anymore!. I basically had zero side effects, other than weird dreams and popping awake after 4 hours of sleep like somebody just hit the ON switch. My last tests were 8 weeks eot and im still UND and now im running 2 to 3 miles a day, my color is better, and I'm just way better than I was. Best of luck to you from one (formerly) 2B to another! GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!" The following user(s) said Thank You: Juen | |
Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14160
Hi Juen, Glad you accessed the oral drugs, best to avoid Ribas if possible, they never did me any good & I had to go through 4 tx's with them & the dreaded Interferon You wil go really well on the orals, so happy for you. Remember to drink plenty of water. All the best, Cindi x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Juen | |
Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14192
Hi Juen, Welcome The 12 weeks actually go by quickly. Good luck you are in the right place GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 The following user(s) said Thank You: Juen | |
Starting sovaldi and declatasvir geno 2b 8 years 2 weeks ago #14197
It occurs to me that if someone is offered Sovaldi with ribavirin from the pbs or some other country's insurance equivalent, just say OK, then take their high priced sovaldi from them, then go buy some daclatasvir from buyers club and flush the ribavirin they give you down the toilet...well, maybe not the toilet, it might be bad for fish or something...whatever, just don't take it. GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!" The following user(s) said Thank You: LondonGirl, Juen | |
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