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TOPIC: New Front on my Journey

New Front on my Journey 10 months 3 weeks ago #26820

  • zippeh
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Hello everyone,

I've been on quite the journey for the past 7 years. It all started with digestive issues, mostly reflux. PPIs and H2 blockers did little to help, and it turned out the cause of my symptoms was bile reflux. Managed the symptoms for all those years with diet. Then, about 2 years ago, I got violently sick and my white blood cells dropped very low but bounced back a month later. I have residue fatigue, muscle and joint pains, and brain fog that all come and go. Further, I get lightheaded and feel like my blood sugar dips, but all tests show my glucose control is very tight and normal.

I've been to numerous doctors and I saw my second rheumatologist last week, who took an hour with me. She looked up after everything and asked if I was ever tested for hep C? I'm getting the test done tomorrow, but was curious if symptoms like this have ever been encountered with patients with C? I've never used injectables (or drugs besides marijuana) and don't recall ever being stuck. I've worked in the healthcare field for over 6 years now, while being in PA school 2 years ago (and having to drop out due to the symptoms).

I know the best answer is to just wait and get the test, but curiosity has gotten the best of me. The only test that ever comes back significant is a fluctuating ANA level, which will bounce from 1:1280 to undetectable. The literature I've skimmed has stated that viral infections can cause ANA levels to spike, and hep C has a tendency to activate autoimmune responses. I've already had a very large autoimmune panel run in the past, all coming back inconclusive.

My liver enzymes have always come back normal, besides one time a year ago with an elevated ALP of 123, which isn't very high and also normalized later...

So anyway, just curiosity and an evaluation of a hope that this could be my answer based on relevant accounts. Thanks for your time.
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New Front on my Journey 10 months 3 weeks ago #26824

  • zippeh
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Well, it only took about 6 hours till I got my results back for the hepatitis C. It's negative. Back to the drawing board, unfortunately. Thanks for your time!
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New Front on my Journey 10 months 3 weeks ago #26826

  • Songbird
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I know it is frustrating having symptoms that can't be explained by your doctor and tests that have been run. It seems the body has its own way of reacting to things and often unexplained by doctors and certain tests.
I found it a tad odd when you said " a hope that this could be my answer" when tested for Hepatitis C .(possibly hoping having Hepatitis C would be what was causing your symptoms).

Maybe I don't speak for all of us here ,however, I for one would have been overjoyed to have tested Negative for this terrible virus some 18 years ago.

Congrats on testing negative for this zippeh and good luck with getting to the bottom of what is going on.

S
Diagnosed: 2001 GT1a , HCV since mid-70's.
Biopsy 2010 F1
Fibroscan and Fibrosure 2018 F2

Treated in trial 2010 with Dac/Peg/ Riba and Relapsed.

Resistance test 2017. Have Ns5a Rav Q30r/H58d enhanced from doing Dac.

Start Tx. Jan 18th/18 w/ Vosevi /Riba 12wks. plus 6 wks.Viekira Pak +Sof/Riba(From Dr Freeman @GP2U)

VL start: 1.6mill.ALT 125 AST 88
Wk. 4 Det @LLOQ <15.
VL Wk.8 UND Alt &Ast 22
Wk. 12 UND
EOT:UND

EOT+12 >>>UND (SVR12)! ALT11 AST13
Nov6/18 SVR 24!
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New Front on my Journey 10 months 3 weeks ago #26832

  • DrJames
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Hello zippeh,

You may want to consider Herpes 6 which seems to cause chronic fatigue and issues in some people. The significance is that we get generic valganciclovir for the doctors that specialise in this "hard basket" field and I'm told it has magical results on selected cases.

There will be something driving it and there may be a useful treatment.

Best of luck finding it.
YMMV
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New Front on my Journey 10 months 2 weeks ago #26864

  • Greedfighter
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So you need to get with your doctor and figure out if you have a problem. Good luck

Just an FYI, things could be maybe related to your diet. You need to eat lots of fruits and veg
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
Last Edit: 10 months 2 weeks ago by Greedfighter.
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