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TOPIC: Phantom contribution

Phantom contribution 1 year 4 months ago #25607

  • Hazel
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Happy New Year everyone :cheer:
Here in NZ, a company called Phantom Billstickers does all the event postering at approved sites across the country. They also publish a lot of NZ poetry and paste it up on lamp posts all around the world, just because: thespinoff.co.nz/books/24-08-2017/let-us...-new-zealand-poetry/ . They publish a free cafe reader magazine, that has poetry, literature, art reviews etc, and some advertising. It has the biggest print run of any NZ magazine, and several 1000 get distributed in both Europe and the US.
Also in NZ, we have run out of people to treat for hep C, because we have no idea who has it or where they are. At the same time, we have no NGO to advocate for publicity, strategies towards elimination, or to inform people of their options, which are very confusing here.
Phantom Billstickers and FixhepC to the rescue, again! They offered me a page in the latest issue, some posters to come in the next few months. Here is the page, in print, and the front cover of this issue.
I have also attached the pdf file, because this is a page/poster anyone can print out, and put up anywhere- at work, in clinics etc.






File Attachment:

File Name: cafe-reader[3000].pdf
File Size:925 KB
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Last Edit: 1 year 4 months ago by Hazel.
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Phantom contribution 1 year 3 months ago #25745

  • vedruss
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Great idea Hazel
Thats given me some idea's
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Phantom contribution 1 year 3 months ago #25867

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I had been planning for a while to highlight that butterfly image, and a risk factor, by getting a tattoo- I did it, and got the news story, but they didn't show the finished butterfly!
They always get at least a couple of things wrong. Happy to see they shaved a couple of years off my age, and omitted all the ways I may have got it! www.stuff.co.nz/national/health/10131989...cure-is-within-reach
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Phantom contribution 1 year 3 months ago #25868

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Great work Hazel! Excellent original idea to spread the word about the need for Hep C testing. The tattoo looks great on you too :)
Last Edit: 1 year 3 months ago by Mar.
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Phantom contribution 1 year 3 months ago #25874

  • coral
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You're a great advocate (and NGO!) Hazel....with a simply beautiful tattoo. Having a media article with a personal story as well as facts always makes a bigger impact.
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Phantom contribution 1 year 3 months ago #25877

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Good stuff Hazel, There's nothing like putting the spotlight on those public servants that aren't serving the people they are employed for. :+1:
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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The following user(s) said Thank You: DrJames, Hazel, Greedfighter, rohcvfighter, hanknassi, Mar

Phantom contribution 1 year 3 months ago #25879

  • Hazel
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Thanks everyone, this probably belongs in Fun Stuff but will put it here, latest collaboration with my friend the cartoonist, Sas Peppercorn, please share


Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Last Edit: 1 year 3 months ago by fixhepc. Reason: Inserted image
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The following user(s) said Thank You: DrJames, coral, Greedfighter, fretboard, rohcvfighter, Mnem, hanknassi, vedruss, Mar
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