It sounds like some of the regional liver clinics are behind the eight ball. And many seem to have very long waiting lists for new patients. Knowing your genotype and weather you have any fibrosis via a fibroscan is important for getting your med combination right.
I got my doctor to make an appointment for me at the the Liver Clinic at St Vincents in Melbourne, as a back up when Geelong Hospital were trying to pursuade me to have a biopsy, instead of another fibroscan and generally acting pretty grumpy. Hepatitis C Australia suggested I do this, to get a second opinion, also suggesting that the City hospitals were more advanced in dealing with Hep C patients than their regional cousins. It seemed their current waiting lists weren't as long. I was able to ring the nurses there anytime for reassurance and advice. Which I'm sure you can do too.
I aslo suggested to the Geelong clinic that they might contact their colleagues in Melbourne to seek their advice on patients using Generic meds. They have done this and are now a bit better at dealing with Generic Rebels. Though, the nurse at Geelong is wonderful.
I cancelled my Melbourne appointment after a few more reassuring conversations with the nurses at St V's Melbourne.
I'm wondering, as word spreads of these new wonder drugs that "work". More and more folks with Hep C are going to be seeking treatment to what appears to be an already overloaded system. How many fibroscan machines are actively working? When will the Liver Clinics extend their opening hours?
It's one thing having these drugs put on the PBS or getting them via a buys club, but it's important that you know whether you have any fibrosis or other medical conditions that might influence treatment.
My biggest concern was getting my med combination right for a successful outcome. So far so good/great/fantastic!
It's wonderful that we all have got the treatment now. We are on this journey together, advocating for each other and other peoples lives who can be saved.
We will, keep on asking questions, keep on getting our doctors and specialists to keep up to date with treatment and monitoring.
Take care and keep on keeping on x